Latest hospital trip

[daisy11]

Well I see various consultants and yesterday went armed with my usual questions and update on latest visit to ST T, but I did not get half through what I wanted to say and he was already writing out my appt sheet, I thought, I cannot take this anymore and so I did not bother saying anything else. I felt that because I am a complicated case and have been referred to St T that they have washed their hands so to speak. My confidence at ST T is brilliant but here, very low. Has anyone had this type of appt where it has not got anywhere? This particular consultant had received letters from London but he just did not read them.

[MaryF Administrator]

Hi there, this does not sound good. I wonder if there is anybody living in your area who sees anybody else, who is a little more upbeat. It might be worth asking, and then seeing if your GP would transfer you. How do you get on with GP? are they supportive. I am glad that you have St T's in the equation, however I also understand your frustration! Mary F x

[daisy11]

Hi

Thanks for replying, I have been seeing this Hept person for a good number of years, but felt that yesterday it did not go to plan and the time was ticking by. My GP is brilliant and she understands so well, for years she was always trying to get the consultants together to just know what was going on, but although it was promised, it was never carried out. When I went to have my bloods done yesterday, INR included, I was kept waiting for ages and the Haem ward said that they had more serious patients which I understand, but at times feel that they do not quite understand APS

[MaryF Administrator in reply to daisy11]

Oh dear, you need to write a clear list of points and go and visit your GP with you very valid iist of gripes, this is important, your GP will then be reminded to fight your case. Do let me/us know how things pan out. Mary F x