Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2012

Severe tiredness

Hi all I was just wondering how many of you suffer from tiredness I just seem tired all the time it's horrible apart from this I have no other complaints but I...

Hi all I was just wondering how many of you suffer from tiredness I just seem ti...

Moonbug

•12 years ago

25 Replies

What helps mind/body when you are having a bad day?

I'm new but already can see this is a community of heroes with many different resources to draw on. Wondering what works for you mentally and physically?

I'm new but already can see this is a community of heroes with many different re...

aussiesue

•12 years ago

21 Replies

Suzypawz story.

OK, sorry it's took till now to put a story up! So here's a 'little' about me: I've...

OK, sorry it's took till now to put a story up! ...

Suzypawz

•12 years ago

21 Replies

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Burning Sensations and Shooting Pain?

Has anyone had sharp shooting intermitted pain in their fingers? Also I've had burning sensations on my skin and I find the spot on my leg and nothing is...

Has anyone had sharp shooting intermitted pain in their fingers? Also I've had...

jean48

•12 years ago

10 Replies

Tremors........ Great I get uncontrolable shakes

I have started to get tremors which I find hard to control this is even when I'm relaxed and not stressed, I was wondering if any one else suffers with...

I have started to get tremors which I find hard to control this is even when I'm...

Frank004

•12 years ago

11 Replies

Could these symptoms of my Stroke, actually be APS?

I had a stroke and was diagnosed with APS in 2005. Since then as well as the dizzy spells, double vision, joint pain, skin problems etc, I have had a number of...

I had a stroke and was diagnosed with APS in 2005. Since then as well as the diz...

DelH

•12 years ago

6 Replies

Has anyone got a vitamin b12 deficiency?

Hi Everyone, I was diagnosed with APS in December after having 2 miscarriages. Didn't take the news to well!! Been suffering from anxiety ever since. Last...

Hi Everyone, I was diagnosed with APS in December after having 2 miscarriages. ...

Hidden

•12 years ago

11 Replies

I've had this disease diagnosis for 16 years. On a scale of 1 to 10 how serious do you think this disease is?

jean48

•12 years ago

34 Replies

What is the average time it takes for Warfarin to have any effect?

Whilst attempting to correct her INR's, my daughter says it takes three days for the dose given today to have any affect . Is this right? If so,given her...

Whilst attempting to correct her INR's, my daughter says it takes three days for...

WayneL

•12 years ago

16 Replies

I can HARDLY stand this anymore! At a loss right now....

I am close to a breaking point...think I may have reached it today. Ugh. I am waiting to switch from coumadin to Lovenox injections because I am in...

I am close to a breaking point...think I may have reached it today. Ugh. I a...

pumpkincake

•12 years ago

17 Replies

Has anyone had their nose pierced while being on coumadin? Did you bleed a lot?

jean48

•12 years ago

12 Replies

Awaiting definitive diagnosis?

I'm new to this site and think its brilliant! I wonder if anyone else has been through a similar experience or can give advice? I am a former paramedic and...

I'm new to this site and think its brilliant! I wonder if anyone else has been ...

aussiesue

•12 years ago

20 Replies

Does my diagnosis of Lupus Anticoagulant mean that I have Antiphospholipid Syndrome, and is Hughes Syndrome another name for this, please?

I am male, 55 years old, and have been diagnosed as 'positive for Lupus Anticoagulant Antibody', following a pulmonary embolism completely at variance with...

I am male, 55 years old, and have been diagnosed as 'positive for Lupus Anticoag...

struggling

•12 years ago

21 Replies

Hello I have APS, fibro and bursitis and I have been in pain since my diagnosis in 2001 I have been on and off narcotic pain meds for years

I was wondering if anyone else takes this kind of medication and if so, have you been on it for years? I was told not to take any anti inflammatory medication...

I was wondering if anyone else takes this kind of medication and if so, have you...

grovet29

•12 years ago

7 Replies

Anticoagulant self monitoring machine

I was just wondering if anybody is in receipt of full sickness benefits for APS and how to go about getting one of these machines at home through the NHS???...

I was just wondering if anybody is in receipt of full sickness benefits for APS ...

traceylou

•12 years ago

14 Replies

Has anyone got damage to their legs due to DVT and how does it affect you ??

Hi all I have suffered multiple dvts in my right leg and a Pe in 2004 i had a heomorage which resulted in full lost of circulation to my right leg, there was...

Hi all I have suffered multiple dvts in my right leg and a Pe in 2004 i had a ...

Hidden

•12 years ago

9 Replies

My story

Hi Everyone, I've only just found this site and have been reading all your amazing stories for the last couple of days so I thought I would share mine. Ten...

Hi Everyone, I've only just found this site and have been reading all your amaz...

Pablosmum

•12 years ago

13 Replies

My APS experience

I seem to have discovered this site by accident!! But how interesting and informative it is to read stuff by others who have the same condition. I got...

I seem to have discovered this site by accident!! But how interesting and inform...

Suejane

•12 years ago

5 Replies

I have aps and body tremour/ fitting? Does anyone else expereince this?

I have been diagnosied with lupus and aps. I have also had two body tremour on my right side, that looked to witness has a fit. Has anyone else had simiular...

I have been diagnosied with lupus and aps. I have also had two body tremour on ...

dulcie

•12 years ago

7 Replies

Blood Group Types

Just wondered if blood group type has any bearing on Hughes, or is it just due to a faulty gene?

Just wondered if blood group type has any bearing on Hughes, or is it just due t...

anje

•12 years ago

5 Replies

My story with lupus, APS and it's complications

I'm a 55 yr old nurse who was diagnoses with SLE 12 yrs ago after having a stroke due to Systemic lupus erythematosus (SLE) with Cerebritis and Vasculis...

I'm a 55 yr old nurse who was diagnoses with SLE 12 yrs ago after having a stro...

Mew808

•12 years ago

10 Replies

sunscreen

As well as Hughes and fibro I have symptoms of lupus and Sjogrens so my skin is very sensitive and burns within minutes. I was using a sunscreen recommended...

As well as Hughes and fibro I have symptoms of lupus and Sjogrens so my skin is ...

panda60

•12 years ago

6 Replies

Moods...emotions and low INR

I take an antidepressant and have for years. Beyond the "emotional rollercoaster" that we go on when being hit sideways with different symptoms and...

I take an antidepressant and have for years. Beyond the "emotional rollercoaste...

pumpkincake

•12 years ago

12 Replies

Pregnancy

I am currently taking warfarin but am worried getting pregnant and the complications that may occur, does anyone have any advice please?

I am currently taking warfarin but am worried getting pregnant and the complicat...

fluffy_kitten

•12 years ago

12 Replies

My Day of Hell

It all started a few weeks before I went into hospital, where I was having bad pains in my legs and chest. Me being only 20 thought nothing of these pains and...

It all started a few weeks before I went into hospital, where I was having bad p...

fluffy_kitten

•12 years ago

8 Replies

Mitral valve

Hi everyone, I wonder if any of you can help me. I have been diagnosed with APS for 10 years following a PE. Last year it was noted that I had a 'leaking...

Hi everyone, I wonder if any of you can help me. I have been diagnosed with AP...

aubretia

•12 years ago

12 Replies

radio!!

I've just been told it's either on in 10 mins!!!! or this afternoon, just thought I'd let you know as I knew!! :) time to go red in the face!! :)...

I've just been told it's either on in 10 mins!!!! or this afternoon, just though...

Suzypawz

•12 years ago

8 Replies

Anyone take Peppermint Oil? Know any reasons why I shouldn't take it?

I was just Dx with Hughes syndrome this week so I am very new to all of this. Peppermint oil has many benefits but I was just curious if there is any reason I...

I was just Dx with Hughes syndrome this week so I am very new to all of this. Pe...

SassyOne

•12 years ago

3 Replies

accident :(

I had an accident in the winds , snow & rain here yesterday :( ....I looked out & saw another fence panel had come out in my fence so I went out & put...

I had an accident in the winds , snow & rain here yesterday :( ....I looked...

Suzypawz

•12 years ago

38 Replies

Brain Fog/Memory

I'm a sometime lurker here, 55 years old and have been on warfarin since my 2nd DVT 10 years ago. My memory (both short-term and long-term) seems to be...

I'm a sometime lurker here, 55 years old and have been on warfarin since my 2nd ...

jhberkley

•12 years ago

32 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2012

Severe tiredness

What helps mind/body when you are having a bad day?

Suzypawz story.

Burning Sensations and Shooting Pain?

Tremors........ Great I get uncontrolable shakes

Could these symptoms of my Stroke, actually be APS?

Has anyone got a vitamin b12 deficiency?

I've had this disease diagnosis for 16 years. On a scale of 1 to 10 how serious do you think this disease is?

What is the average time it takes for Warfarin to have any effect?

I can HARDLY stand this anymore! At a loss right now....

Has anyone had their nose pierced while being on coumadin? Did you bleed a lot?

Awaiting definitive diagnosis?

Does my diagnosis of Lupus Anticoagulant mean that I have Antiphospholipid Syndrome, and is Hughes Syndrome another name for this, please?

Hello I have APS, fibro and bursitis and I have been in pain since my diagnosis in 2001 I have been on and off narcotic pain meds for years

Anticoagulant self monitoring machine

Has anyone got damage to their legs due to DVT and how does it affect you ??

My story

My APS experience

I have aps and body tremour/ fitting? Does anyone else expereince this?

Blood Group Types

My story with lupus, APS and it's complications

sunscreen

Moods...emotions and low INR

Pregnancy

My Day of Hell

Mitral valve

radio!!

Anyone take Peppermint Oil? Know any reasons why I shouldn't take it?

accident :(

Brain Fog/Memory

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