Posts - PSP Association | HealthUnlocked

PSP Association

9,390 members • 11,420 posts

All posts for December 2017

In the hospilal with Bowel blockage

My guy's has been having a lot of problems with bowels and bladder,but still loves his food .He started with heartburn and then he was throwing up and this...

My guy's has been having a lot of problems with bowels and bladder,but still lov...

•7 years ago

Hating PSP!!!

Thought you might like to see what my niece's dog thinks about PSP. It's not just us and he never even met Steve. Enjoy Christmas everyone. Lots of love Anne...

Thought you might like to see what my niece's dog thinks about PSP. It's not ju...

•7 years ago

Help with freezing episodes

Freezing episodes are worsening for my husband. Any advice? Do any meds help?

Freezing episodes are worsening for my husband. Any advice? Do any meds help?

•7 years ago

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Sinemet and PSP

My husband was diagnosed with Parkinson's disease in 2016 at age 68. Subsequently, he was started on therapy with Sinemet and developed episodic periods of...

My husband was diagnosed with Parkinson's disease in 2016 at age 68. Subsequentl...

•7 years ago

One last picture, for now

This one has the view with snow. The coast of Maine gets all the attention, and it is gorgeous, but there is more to the State than lobster boats. I love the...

This one has the view with snow. The coast of Maine gets all the attention, and ...

•7 years ago

This was a good winter!

Here's a picture of the old farmhouse from a few years ago. We don't have this much snow yet, but this is what I hope for. My sweetheart built a neat and cozy...

Here's a picture of the old farmhouse from a few years ago. We don't have this ...

•7 years ago

Heartbroken Today contd....

Mum, (Zeberdee) you did an amazing job looking after dad for so many years. He had the best love and care anyone could wish for and he stayed home, which is...

Mum, (Zeberdee) you did an amazing job looking after dad for so many years. He h...

•7 years ago

PSP Specialists

My wife was diagnosed with PSP early this year. We live in the US Midwest (Omaha) where we are blessed with excellent health care facilities. As strong as the...

My wife was diagnosed with PSP early this year. We live in the US Midwest (Omaha...

•7 years ago

Catheter goodbye

Well, after three days, Charles pulled out the catheter. I woke up to him standing at the end of his bed with blood everywhere! So much for the catheter. He...

Well, after three days, Charles pulled out the catheter. I woke up to him stand...

•7 years ago

Heartbroken Today

Today my heart has been broken.....my beloved hubby of 53years passed away quickly and quietly. As I cuddled him, my daughter and son held his hands and we...

Today my heart has been broken.....my beloved hubby of 53years passed away quick...

•7 years ago

Springtime

Here's one on a cloudy April day, with wild plums, forsythia and daffodils to cheer the lowery view.

Here's one on a cloudy April day, with wild plums, forsythia and daffodils to ch...

•7 years ago

Snow-bound now

A long time back, someone asked me for a picture of the place I was always talking about, my man's home in the western mountains of Maine. I'm sorry it has...

A long time back, someone asked me for a picture of the place I was always talki...

•7 years ago

Why

My name is Rob and I care for my wife Mary who was misdiagnosed with Parkinson's disease in August when she had reasonable mobility and function. Because she...

My name is Rob and I care for my wife Mary who was misdiagnosed with Parkinson's...

•7 years ago

Christmas poem to friends, family & PSPers 2017

What’s happening with us? Firstly, Charlie was struck by a stroke I’m sure you’ll agree, it was no joke. But he didn’t get better, he began to fall down, He...

What’s happening with us? Firstly, Charlie was struck by a stroke I’m sure you...

•7 years ago

Aggression towards spouse

Hello Has anyone experienced very aggressive behaviour and nasty words from their loved ones? My husband presses my arms so tightly it really hurts and has...

Hello Has anyone experienced very aggressive behaviour and nasty words from thei...

•7 years ago

Hospice

Rog going into hospice today, wise daughter with me. I needed someone to take over the care i need to be his wife not his nurse, i owe him that. We need to be...

Rog going into hospice today, wise daughter with me. I needed someone to take ov...

•7 years ago

Time to regain strength after PEG tube fitting?

Hi, a question for those who got the PEG tube fitted for their loved ones suffering from PSP; How much time did it take for regaining some strength? Mom was...

Hi, a question for those who got the PEG tube fitted for their loved ones suffer...

•7 years ago

the cough and phlem

Davids had a cold for a couple of weeks but its left him with a terrible cough mainly in the mornings its causeing a lot of phlem which makes him feel sick. Is...

Davids had a cold for a couple of weeks but its left him with a terrible cough m...

•7 years ago

Downhill

Syringedriver been in place a couple of weeks. Hyoscine to help dry up secretions created by the terrible coughing and morphine for the pain caused by the...

Syringedriver been in place a couple of weeks. Hyoscine to help dry up secretio...

•7 years ago

Frightened

Have had to make the decision today that Rog is too ill to attend our niece's wedding on the 27th dec. His deterioration has been quite rapid this week, no...

Have had to make the decision today that Rog is too ill to attend our niece's we...

•7 years ago

Huntingtons breakthrough

http://www.bbc.co.uk/news/health-42308341

http://www.bbc.co.uk/news/health-42308341

•7 years ago

Here we again

Sorry folks just when you thought I had vanished into the ether and was long gone - here I am back again like a bad penny . Well I have had my hip operation...

Sorry folks just when you thought I had vanished into the ether and was long go...

•7 years ago

Lifevac

Has anyone heard of this and would you recommend for Psp? Mum recently diagnosed. Thanks

Has anyone heard of this and would you recommend for Psp? Mum recently diagnosed...

•7 years ago

Antibody trial.

http://media.biogen.com/press-release/corporate/biogen-licenses-phase-2-anti-tau-antibody-bristol-myers-squibb We've been given a printout from the pspa...

http://media.biogen.com/press-release/corporate/biogen-licenses-phase-2-anti-tau...

•7 years ago

A little tranquillity

I thought I would share a small joy and our tranquillity. Since Liz went into care her cat developed new habits. One is liking to sleep on the desk next to...

I thought I would share a small joy and our tranquillity. Since Liz went into c...

•7 years ago

Does anybody need any supplies?

My father was a victim of this horrible disease. I would like to help anybody who needs any supplies to care for their love ones. I am on Long Island in NY....

My father was a victim of this horrible disease. I would like to help anybody wh...

•7 years ago

Mum is now at peace

It is with a heavy heart that I write this post. My dear dear mum passed away at home last Sunday the 3rd December. Myself and my sister were at her side...

It is with a heavy heart that I write this post. My dear dear mum passed away at...

•7 years ago

Going down quickly

Hi folks Liz seems to be going downhill fairly rapidly since being in care. Here ability to speak, she can't open her mouth much at all and feeding is...

Hi folks Liz seems to be going downhill fairly rapidly since being in care. Her...

•7 years ago

My lovely dad has gone

Dad passed at the hospice at 6am today. So glad his battle is over and he's now free. We were all with him, and the end was so peaceful. It was snowing outside...

Dad passed at the hospice at 6am today. So glad his battle is over and he's now ...

•7 years ago

The Dreaded Catheter

Well today was D day. Catheter inserted and counting down. The Hospice nurse said when the catheter goes in the countdown begins. Right now Charles is...

Well today was D day. Catheter inserted and counting down. The Hospice nurse s...

•7 years ago

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