Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for July 2019

Hopelessness

How much more can a person take!!! Hubby has had a horrific couple of weeks dealing with more stages of this messed up disease! He is on constant pain...

How much more can a person take!!! Hubby has had a horrific couple of weeks deal...

demlac

•5 years ago

20 Replies

How uniquely strange

My son and I went for a short day hike in the mountains. We had driven at least a dozen miles off the main road and hiked a couple more after we parked. At...

My son and I went for a short day hike in the mountains. We had driven at least...

Dadshelper

•5 years ago

16 Replies

CBD final stages

Hello all, I know I don’t post often, due to looking after dad and life in general. Dad went into hospital 2 weeks ago with sepsis, they told us to prepare for...

Hello all, I know I don’t post often, due to looking after dad and life in gener...

daddysgirl1916

•5 years ago

62 Replies

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Memory Lane

Taking a trip down memory lane was incredibly interesting! I asked Mom if she wanted to take a ride ... I packed a lunch and we drove through our park system,...

Taking a trip down memory lane was incredibly interesting! I asked Mom if she wa...

bazooka111

•5 years ago

4 Replies

Sudden Changes

I posted last week about how dad has fooled hospice and the doctor by pulling thru from what appeared to his body shutting down as kidneys were non-functioning...

I posted last week about how dad has fooled hospice and the doctor by pulling th...

bgentges

•5 years ago

16 Replies

✔️ Bucket List

Pure joy here! We have checked off the bucket list to meet Goofy!! Bless her heart, her smile makes my heart explode. Several times, Mom has managed to...

Pure joy here! We have checked off the bucket list to meet Goofy!! Bless her he...

bazooka111

•5 years ago

30 Replies

MY NEW TOY.........

Getting the hang of steering, in 'snail' mode. Ebay purchase https://youtu.be/9Iwq_lY8Vts Patrick. XXX

Getting the hang of steering, in 'snail' mode. Ebay purchase https://youtu.be/9I...

Bargiepat

•5 years ago

23 Replies

Medication

Hello Have not written for a while as things got a little crazy....dad had a uti which led to urosepsis and a 10 day hospital stay. Now his home and bedbound...

Hello Have not written for a while as things got a little crazy....dad had a ut...

Nat08

•5 years ago

8 Replies

Final days

Just a few words to let you know we are at home now for the final days. It was a battle with social workers and hospital officials to finally get dad home,...

Just a few words to let you know we are at home now for the final days. It was ...

BEST7

•5 years ago

13 Replies

AbbVie Trial pulled for PSP

Hi Folks This is the link for the news on the Abbvie Trial for PSP....

Kevin_1

•5 years ago

5 Replies

Tremors

Joe has had some twitching but today he was getting them every few minutes. Please, any advice appreciated

Joe has had some twitching but today he was getting them every few minutes. Plea...

Hidden

•5 years ago

16 Replies

PSP Ice Cream Challenge - Follow Up

We get one day for National Ice Cream Day and across the pond, the UK gets one week - totally unfair. So in solidarity with my friends and family in the UK, I...

We get one day for National Ice Cream Day and across the pond, the UK gets one w...

daddyt

•5 years ago

30 Replies

1 year on

have just passed the 1 year aniversary of my husbands passing , dont know where it went. hoping now that maybe things will get a little easier .find it hard...

have just passed the 1 year aniversary of my husbands passing , dont know where ...

lindaD_

•5 years ago

9 Replies

Moments with Momma

No sun outlasts its sunset, but will rise again and bring the dawn. - Maya Angelou

No sun outlasts its sunset, but will rise again and bring the dawn. - Maya Angel...

bazooka111

•5 years ago

3 Replies

Struggling

Dear all Having read some posts, I am so sorry for those who have lost loved ones to this cruel illness. My husband was finally diagnosed with PSP in...

Dear all Having read some posts, I am so sorry for those who have lost loved on...

Toddet

•5 years ago

15 Replies

My darling husband is now at rest

It is with a sad heart that I tell you that my darling husband Roy passed away at our home, on Friday 19th July 2019. 4.55 p.m. We had been told more than once...

It is with a sad heart that I tell you that my darling husband Roy passed away a...

DenB

•5 years ago

78 Replies

Final Wish Fufilled

Today Dad was laid to rest in the small family plot. He is with his parents and 1 brother. It was nice graveside service with lots of family. The reason it...

Today Dad was laid to rest in the small family plot. He is with his parents and...

Dadshelper

•5 years ago

13 Replies

anger and misinterpreting

I live in US and my husband has been diagnosed with PSP. He is 73 years old and always very healthy. We have been married almost 49 years and have know each...

I live in US and my husband has been diagnosed with PSP. He is 73 years old and ...

ncgardener799

•5 years ago

21 Replies

Keeping myself busy

When hubby sleeps I found a paint by number kit to keep my mind occupied. It keeps me from worrying about the future and it gives me something to do between...

When hubby sleeps I found a paint by number kit to keep my mind occupied. It kee...

SewBears

•5 years ago

23 Replies

Sister Therapy

Mom had a beautiful afternoon today with her sisters! All smiles! Talking to your sister is sometimes all the therapy you need. Finding the JOY in each day!

Mom had a beautiful afternoon today with her sisters! All smiles! Talking to yo...

bazooka111

•5 years ago

5 Replies

PSP and HD B1 Thiamine

My husband has PSP Diagnosed about a year ago after originally being diagnosed with PD in 2015. It took about 4 years to get the PD diagnosis. His main...

My husband has PSP Diagnosed about a year ago after originally being diagnosed w...

Patsylorium

•5 years ago

16 Replies

Is it really PSP?

We're on one of those plateaus where we have adjusted to a "new normal." Sometimes during one of these lulls, where things seem to be stable, I start to wonder...

We're on one of those plateaus where we have adjusted to a "new normal." Sometim...

journeyofjoy

•5 years ago

9 Replies

So Confused

On Wed, it was noted that dad had not had any urine for nearly 48 hours, so they strait cathed him to drain the bladder. On Thursday morning, he had not...

On Wed, it was noted that dad had not had any urine for nearly 48 hours, so they...

bgentges

•5 years ago

16 Replies

So thin

Last July I started to feed Larry. He was giving up on his plate after he got half of what he was served into him. He had started to noticeably lose weight....

Last July I started to feed Larry. He was giving up on his plate after he got ha...

Hidden

•5 years ago

27 Replies

CBD

Hello all my husband seems to be struggling to remember things. He also seems to struggle to understand things I say. Had anyone else experienced this please

Hello all my husband seems to be struggling to remember things. He also seems to...

Northstar1

•5 years ago

20 Replies

Holiday days over??

I have fabulous work family and they walked Snowdon a few weeks ago to raise money for me, embarrassed as I was by that people kept telling me if that’s the...

I have fabulous work family and they walked Snowdon a few weeks ago to raise mon...

Unicorn2022

•5 years ago

7 Replies

Sometimes......

...we need to slow down and just smell the flowers. Mother Nature puts on quite a display for us, if we notice. Ron

...we need to slow down and just smell the flowers. Mother Nature puts on quite...

Dadshelper

•5 years ago

17 Replies

Winner winner chicken dinner!

So .. To beat the heat wave, we decided to spend the day at thw casino! Look who won!! Smiles from ear to ear!

So .. To beat the heat wave, we decided to spend the day at thw casino! Look who...

bazooka111

•5 years ago

17 Replies

HI, Jillann!

I see from a "like" that you have been here, and wanted to say how happy it makes me to see your smiling picture and to know you are checking in. Thanks,...

I see from a "like" that you have been here, and wanted to say how happy it make...

easterncedar

•5 years ago

20 Replies

PSP Halucinations

My mums Halucinations My poor mum has been suffering from PSP for a while now and I’m so sad to believe she is in the latter stages of this cruel disease. She...

My mums Halucinations My poor mum has been suffering from PSP for a while now an...

mav46

•5 years ago

21 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2019

Hopelessness

How uniquely strange

CBD final stages

Memory Lane

Sudden Changes

✔️ Bucket List

MY NEW TOY.........

Medication

Final days

AbbVie Trial pulled for PSP

Tremors

PSP Ice Cream Challenge - Follow Up

1 year on

Moments with Momma

Struggling

My darling husband is now at rest

Final Wish Fufilled

anger and misinterpreting

Keeping myself busy

Sister Therapy

PSP and HD B1 Thiamine

Is it really PSP?

So Confused

So thin

CBD

Holiday days over??

Sometimes......

Winner winner chicken dinner!

HI, Jillann!

PSP Halucinations

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive