Posts - PSP Association | HealthUnlocked

PSP Association

9,176 members11,302 posts

All posts for April 2022

Anticipatory Grief is REAL

I find myself having days that are incredibly hard —- today is one of those days...
bazooka111 profile image

Continuing Healthcare Funding

Hi there, I’m new to the group my Step-Dad was diagnosed with PSP a couple of ye...
KatieHeyes profile image

Registration now open for the Leeds Family and Friends Day

We would like to invite you to our Family and Friends Day in Leeds on Saturday 2...
HelenPSPA profile image
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PSP best advice = Please Stay Positive

PLEASE STAY POSITIVE = PSP best advice IMPROVING PSP SYMPTOMS – MY PERSONAL JOUR...
timbowPSP profile image

The PSP-CBD Ice Cream Challenge 2022

Tee minus 4 days and counting until the PSP-CBD Ice Cream Challenge for the mont...
daddyt profile image

PSP & CBD Awareness Week, 23 to 29 May

A much-loved awareness campaign is returning soon. Does anyone recognise it?
HelenPSPA profile image
Administrator

Eyes not responding

I am a full time carer for a lady with psp who was first diagnosed 2019 I have b...
Redaler profile image

Sudden loss of ability to move?

Hello all, I haven't been posting much. But I'd appreciate your advice. On Fri...

Caregivers - what do you do to nurture yourselves?

Coming out of a long cold springtime here and just in time!!! The green grass an...
Debspottery1 profile image

Cravings for sugar in late stage PSP

Hello all. My husband has been wanting extra sugar for a few months. More syrup ...

Reality Check

It’s Monday … I choose JOY. I wanted to share something - Someone sent me a p...
bazooka111 profile image

Reality Check

It’s Monday … I choose JOY. I wanted to share something - Someone sent me a p...
bazooka111 profile image

Easter

Happy Easter everyone
fishponds profile image

Easter JOY … a true gift

By far, my most favorite Easter morning in a very long time! The joy she expres...
bazooka111 profile image

In bed all day

Hi, Rick has stayed in bed all day. It was just so out of his normal. I called t...
Hidden profile image

CBD

Hope you are all keeping well. I haven’t been on here for a while. To be honest...
Mariawatters profile image

Is chronic itching for no reason related to PSP or CBD?

My husband always itches, mostly on his back but sometimes everywhere. There app...
Perrywrinkle profile image

Gentle Hands

This is by far the most favorite activity I have done with my sweet Momma! Casti...
bazooka111 profile image

Is extreme body heat part of having CBD?

Hello Everyone! My husband suffers from CBD and is uncomfortably hot all the ti...

Help Ulster University research access to rehab services

If you have PSP or CBD and are living in Northern Ireland could you help researc...
HelenPSPA profile image
Administrator

Thank you to everyone here

My dad died on Sunday from this awful disease. He was stoic throughout, from di...
Nodbod profile image

The latest edition of PSPA Matters is now available!

The latest edition of PSPA Matters is now available for you to download to read ...
HelenPSPA profile image
Administrator

Hi everyone, I'm new here.

I was diagnosed with PSP in the summer of 2020 and have been having stiffness in...
Adoey profile image

What things have you changed or modified in life to get through it all more simply or easily?

I’ve stopped fighting difficult things to help get through all this as the patie...
Kayelless profile image

Black Pepper essential oil may help with dysfagia

Dear all, since my mother, affected with PSP, has died last March, I have found ...
Zibo profile image

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