Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for December 2017

Are there good days and bad?

The first day after receiving Sinemet (not sure how to spell that), Dad seemed to perk up a little and come out of the "death stare." It was short lived...

The first day after receiving Sinemet (not sure how to spell that), Dad seemed t...

•6 years ago

Dat Scan

I wonder if anyone can please help me with this. My husband who is still ' query psp' had a dat scan. ( investigations being done at Queens square, London with...

I wonder if anyone can please help me with this. My husband who is still ' query...

•6 years ago

Looking for advice on equipment to transfer loved one from wheelchair to car

Bonjour, It's getting harder to transfer my brother from his wheelchair to my van (Honda CRV). He's still able to stand up but has great difficulty in...

Bonjour, It's getting harder to transfer my brother from his wheelchair to my va...

•6 years ago

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My Barry passed on 27th November

The last few months of his life were unbearable for him and all his family and friends. He was a fighter who eventually succumbed because he wanted to. PSP...

The last few months of his life were unbearable for him and all his family and f...

•6 years ago

Memories continued...

NannaB's post about memories has made me think of a few things/times that me and David had together, and follows on from my reply to that post. I saw this...

NannaB's post about memories has made me think of a few things/times that me and...

•6 years ago

Happy Memories

This photo just popped up on Facebook reminding me of a “memory” from 3 years ago today. I went to book a table for 6 for a Christmas Lunch at our local...

This photo just popped up on Facebook reminding me of a “memory” from 3 years ag...

•6 years ago

And don't forget the potholes - Chuckles

Thank you everyone for your lovely supportive and insightful posts to my previous post. I am writing this fresh post so that its more visible. Well the...

Thank you everyone for your lovely supportive and insightful posts to my previou...

•6 years ago

New to PSP and to this site-not so new to PSP symptoms

My family and I are new to this diagnosis of PSP. Unfortunately, not so new to the symptoms. I have read quite a few posts on here about the progression of...

My family and I are new to this diagnosis of PSP. Unfortunately, not so new to ...

•6 years ago

"No plain not followed by a slope"

An old Chinese saying. They do the obvious so wonderfully well. Well I have had the slope and now, please, have arrived at the easy plain. Liz has been...

An old Chinese saying. They do the obvious so wonderfully well. Well I have ha...

•6 years ago

Helpless and Guilty

My mother was diagnosed with CBD in July, but she's had symptoms for approximately 3 years. She uses a walker around the house, balance is horrible, her right...

My mother was diagnosed with CBD in July, but she's had symptoms for approximate...

•6 years ago

She keeps fighting back

Again last week I thought that the end may be approaching. Mum, now 7 years on from the onset of CBD, keeps fighting back. A nasty cough that started last...

Again last week I thought that the end may be approaching. Mum, now 7 years on f...

•6 years ago

Dad is finally free

Thank you to everyone for your kind messages over the past few months and especially the last couple of days. Dad died tonight at 10.30 p.m. He spent the day...

Thank you to everyone for your kind messages over the past few months and especi...

•6 years ago

I made a huge effort today.........

This-morning I knew there would be high tide and a great opportunity for yet another picture of my local road bridge. My left arm is becoming more useless and...

This-morning I knew there would be high tide and a great opportunity for yet ano...

•6 years ago

Did any of your loved ones talk about their loss, their fears.....

Hi, Phew, a tough evening. Some days are ok, some days have a laugh, others a feeling of normality, this evening was hard -Dad was obviously upset about...

Hi, Phew, a tough evening. Some days are ok, some days have a laugh, others a fe...

•6 years ago

Return from respite

Hi Came home today from my week in a lovely cottage 8 miles away! Worked really well, girlfriends popping in long walks with them, visited a couple of national...

Hi Came home today from my week in a lovely cottage 8 miles away! Worked really ...

•6 years ago

kalms

we tried these for anxiety. my husband has CBD they worked amazing for him

we tried these for anxiety. my husband has CBD they worked amazing for him

•6 years ago

Final day tomorrow

It’s mums funeral tomorrow it has been the longest 2 weeks of my life. Everything is planned we just want to make it perfect for her. She chose the song just...

It’s mums funeral tomorrow it has been the longest 2 weeks of my life. Everythin...

•6 years ago

I miss you all

I am kinda selfish here since we 'got' PSP in 2013 andon this site since '15..and died in '17...I miss those who were in that time...I want to make it a goal...

I am kinda selfish here since we 'got' PSP in 2013 andon this site since '15.....

•6 years ago

Another sad day

George is coughing and choking so much, making me feel really worried. To be honest I thought he would be better off to pass away, now we are at this stage I...

George is coughing and choking so much, making me feel really worried. To be ho...

Yvonneandgeorge

•6 years ago

give calms a try x

My husband has CBD and has sucferex for ages with anxiety and the he desribes it as a horrible anxious feeling in his tummy. We tried some calms herbal tablets...

My husband has CBD and has sucferex for ages with anxiety and the he desribes it...

•6 years ago

My latest blog post for anyone interested, thanks for reading.

https://lookingafterdadblog.wordpress.com/2017/12/03/home-sweet-home/

https://lookingafterdadblog.wordpress.com/2017/12/03/home-sweet-home/

•6 years ago

I fear Dad’s battle is almost over

Dad has deteriorated vary badly over the past few days. He is emaciated, not able to swallow meds or thickened fluids much (300mls in last 24 hours). Unable to...

Dad has deteriorated vary badly over the past few days. He is emaciated, not abl...

•6 years ago

It was a rough week...

And then I heard this. My apologies to Leonard Cohen, but I can't stop laughing. I needed this. Change a few words, and you will get it. I hope it does...

And then I heard this. My apologies to Leonard Cohen, but I can't stop laughing...

•6 years ago

My condition

I am diagnosed with CBD and I want to learn more about it Any tips?

I am diagnosed with CBD and I want to learn more about it Any tips?

•6 years ago

At peace

After 9 years mum has finally lost her battle with this horrible disease. She never gave up and fought till the end xx

After 9 years mum has finally lost her battle with this horrible disease. She ne...

•6 years ago

The PSP Chronicles... Final Fall Update

Sorry I haven't posted much lately, if you read the blog... you'll understand. Still having issues copying the link, the address is:...

Sorry I haven't posted much lately, if you read the blog... you'll understand. S...

•6 years ago

New tau drug delays the onset of Alzheimer's by two years.

http://www.dailyrecord.co.uk/news/scottish-news/alzheimers-wonder-drug-invented-scotland-11608899 We will be contacting our doctor next week to find out if...

http://www.dailyrecord.co.uk/news/scottish-news/alzheimers-wonder-drug-invented-...

•6 years ago

My wonderful husband

My fantastic husband Les died at 3.45 pm on Wednesday 29 November. How can I ever fill this void? It would be impossible to fill I think. I was able to stay...

My fantastic husband Les died at 3.45 pm on Wednesday 29 November. How can I eve...

•6 years ago

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