Posts - PSP Association | HealthUnlocked

PSP Association

9,254 members • 11,351 posts

All posts for July 2017

CBD?

I wrote a post a few month back. I was dxed with YOPD and I think it could be CBD but not sure as my right hand is extremely dystonic it's gone into my right...

I wrote a post a few month back. I was dxed with YOPD and I think it could be CB...

•7 years ago

Revised Guidelines for Diagnosing PSP

In case your neurologist has not seen this... http://www.alzforum.org/news/research-news/revised-guidelines-diagnosing-progressive-supranuclear-palsy

In case your neurologist has not seen this... http://www.alzforum.org/news/resea...

•7 years ago

CBC vs PSP

My husband is declining rapidly . He still does not have a final diagnosis and his movement specialist made a referral to Mayo Clinic in Minnesota....

My husband is declining rapidly . He still does not have a final diagnosis and...

•7 years ago

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Seizures as well now, don't know what's next.

My mum is in late stage PSP, probably 6-7th year. She has been bedridden since December. She started having seizures yesterday, I was wondering if this is a...

My mum is in late stage PSP, probably 6-7th year. She has been bedridden since D...

•7 years ago

Go or neurologist

Hi all Just a quick general question. How do we distinguish between symptoms of psp/ cbd and ģeneral age related problems. I find myself getting in muďdle...

Hi all Just a quick general question. How do we distinguish between symptoms of ...

•7 years ago

Clinical Trials North America

Clinical Trials callout Go to https://clinicaltrials.gov/ct2/show/NCT02365922?term=boxer&recrs=a&cond=ftd&rank=1 to learn more. Adam L. Boxer, MD, PhD is an...

Clinical Trials callout Go to https://clinicaltrials.gov/ct2/show/NCT02365922?te...

•7 years ago

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Clinical trials California

https://clinicaltrials.gov/ct2/show/NCT02365922?term=boxer&recrs=a&cond=ftd&rank=1

https://clinicaltrials.gov/ct2/show/NCT02365922?term=boxer&recrs=a&cond=ftd&rank...

•7 years ago

Ride London 100

I have been supporting my son doing ride 100 today. Thousands of people cycling for charities. Many congratulations to anyone raising money for PSP. We have...

I have been supporting my son doing ride 100 today. Thousands of people cycling ...

•7 years ago

Kidney damage

Hi all haven't posted for a long time. Hope everyone is ok. Dad was taken to hospital Thursday,doctor says he has kidney damage and is very unwell. Also said...

Hi all haven't posted for a long time. Hope everyone is ok. Dad was taken to hos...

•7 years ago

Dear carers

I seldom have time to reply to your messages. So if you see 💛🙏 know that I'm with you in spirit. Althea

I seldom have time to reply to your messages. So if you see 💛🙏 know that I'm w...

•7 years ago

WIFE NOT EATING

my wife has been losing weight gradually now for the past 5 years , she is only 43 but to be fair looks 80 she has no muscle left or strength to move about ,...

my wife has been losing weight gradually now for the past 5 years , she is only ...

•7 years ago

Newby in the house

Hello to all my new PSP friends. My wife was diagnosed with PSP a month ago. She was originally diagnosed with Parkinsons about 2 years ago, but was re-dxd...

Hello to all my new PSP friends. My wife was diagnosed with PSP a month ago. Sh...

•7 years ago

Any tips on how to keep the mouth closed?

Mum's mouth is open pretty much open all day. I'm worried it'll dry out as she already has a peg and is nil by mouth. Any tips welcome.

Mum's mouth is open pretty much open all day. I'm worried it'll dry out as she a...

•7 years ago

Peg, how do you keep the mouth moist?

My mum had a Peg fitted 2 weeks ago, she has been nil by mouth during this period and really struggled with even a small amount of thickened liquid. I don't...

My mum had a Peg fitted 2 weeks ago, she has been nil by mouth during this perio...

•7 years ago

Thank you.

Lovely people of this site, Thank you for all your kind words over the last few weeks. As you will know from Dad (Georgepa) the funeral was a true celebration...

Lovely people of this site, Thank you for all your kind words over the last few ...

•7 years ago

Husband starting not walk in a lot of pain

Hello all I was wondering if any one else is going through this, Charlie now has PSP over 11 years none of the medicines seem to work anymore and his legs are...

Hello all I was wondering if any one else is going through this, Charlie now has...

•7 years ago

Continuing Healthcare Assessment

We have a meeting next week about CHC for my father. I’d be grateful for any tips from those who have experience of the system. He’s in hospital at the moment....

We have a meeting next week about CHC for my father. I’d be grateful for any tip...

•7 years ago

A new start I suppose

Well the funeral is over and where do I go from here . If you can say a funeral is a good funeral then Veronica's funeral was a good one . She had a...

Well the funeral is over and where do I go from here . If you can say a funera...

•7 years ago

Meaning of aseptic/swallowing assessment

Me again!! Just got back from hospital. Nurse looked at dad's notes and said "he's aseptic" and that he's been aspirating for a long time, there is infection...

Me again!! Just got back from hospital. Nurse looked at dad's notes and said "he...

•7 years ago

My wife and carer is slipping into a depresion

I feel that my wife is slipping into a depression and there is nothing that I can do about it. I feel that i have been getting a bit worse over...

I feel that my wife is slipping into a depression and there is nothing tha...

•7 years ago

Back to our second home

Well Archie is back in hospital again thought it was too good to be true at least 6 weeks at home The lovely pressure again telling these hospital idiots...

Well Archie is back in hospital again thought it was too good to be true at leas...

•7 years ago

Day 6 of cannibis oil

I have been putting 1 drop of cannibis oil on Barry's gums. Morning and night. His body is more relaxed and he is enjoying his food. His sleep is less...

I have been putting 1 drop of cannibis oil on Barry's gums. Morning and night. H...

•7 years ago

Anyone in Georgia?

My husband diagnosed about 3 years ago with PSP but about 8 years down the road. We live south of Atlanta, any Georgians out here? Would love some company at...

My husband diagnosed about 3 years ago with PSP but about 8 years down the road....

•7 years ago

Is this the end for my dad?

My dad was taken in to hospital at the weekend, from the respite care home. He had kidney failure, fecal impaction, severe dehydration and urine retention and...

My dad was taken in to hospital at the weekend, from the respite care home. He h...

•7 years ago

I feel so bad

In more ways than one!! 1. I don't know why, but I don't keep in touch with you all anymore, and just realised my friends are all still here and I'm missing...

In more ways than one!! 1. I don't know why, but I don't keep in touch with you...

•7 years ago

The doorbell system ???

Someone on here mentioned they used doorbells to signal to each other - I'd like to know how that worked. We always have the cell phones but just pushing one...

Someone on here mentioned they used doorbells to signal to each other - I'd lik...

•7 years ago

Where do you all live

It probably has been done defore,but I notice someone on the west coast,mind you it in the US but close to me. My husband was diagnosed in 2013 but showed...

It probably has been done defore,but I notice someone on the west coast,mind you...

•7 years ago

Nanda

A previous poster mentioned taking lots of photos so I thought I'd share this one of W with his grandchildren taken last week. Joe in the green t-shirt and...

A previous poster mentioned taking lots of photos so I thought I'd share this on...

•7 years ago

Aggression with confusion...

My father has been recently diagnosed with PSP he is 80 and has always been active in thought. A very intelligent and successful electrical engineer. My mother...

My father has been recently diagnosed with PSP he is 80 and has always been acti...

•7 years ago

Mom

My mother was diagnosed with psp in March 2017. I'm based in the US but found this site to be very helpful.

My mother was diagnosed with psp in March 2017. I'm based in the US but found t...

•7 years ago

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