Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for January 2021

Advice on Health & Welfare LPAs?

I'm currently filling out lasting Power of Attorney forms for my mother, who suffers from Progressive Supranuclear Palsy (PSP). Her disease is degenerative but...

I'm currently filling out lasting Power of Attorney forms for my mother, who suf...

superquest30

•4 years ago

9 Replies

A Dreadful Diagnosis

Good morning, everyone! My name is Sandi and I live in Indiana with my beloved husband, Bruce. About four years ago we started to notice he had a slight...

Good morning, everyone! My name is Sandi and I live in Indiana with my beloved h...

Indiana-Girl

•4 years ago

11 Replies

My Husband Lost his battle with PSP

Bob lost the battle with this hideous disease Monday Jan. 25th. I had put him in a nursing home just a week before because it was no longer possible to care...

Bob lost the battle with this hideous disease Monday Jan. 25th. I had put him i...

JubileeRanch

•4 years ago

80 Replies

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"The Helpline's compassion, experience, and understanding of PSP were very comforting and extremely helpful."

"I signed up as a Helpline Volunteer as the Helpline made a big difference for the better when our family was going through the PSP journey. My wonderful...

"I signed up as a Helpline Volunteer as the Helpline made a big difference for t...

HelenPSPA

Administrator•4 years ago

1 Reply

CBD and eyes

Hello all my husband has CBD he does not appear to be able to see. I can be sat in the same room and he will shout for me. His eyes look dark when he has his...

Hello all my husband has CBD he does not appear to be able to see. I can be sat ...

Northstar1

•4 years ago

4 Replies

I’m new on here !

I was diagnosed with CBD 5 years ago and have never spoke to anyone who has heard about it ! I felt so isolated and then I came across PSPA and saw that is was...

I was diagnosed with CBD 5 years ago and have never spoke to anyone who has hear...

Mariawatters

•4 years ago

24 Replies

My wife was recently diagnosed with PSP & we’re wondering if cbd could help with speech balance & swallowing. Or are there other remedies?

My wife was recently diagnosed with PSP & we’re wondering if cbd could help with...

cdecker735

•4 years ago

7 Replies

A Tasty Treat

Click on the link, it will direct you to the page....

daddyt

•4 years ago

7 Replies

Explaining PSP

Has anyone had trouble explaining the disease to the patient? I have tried to explain it but my dad isn’t grasping what I’m saying. He knows things are not...

Has anyone had trouble explaining the disease to the patient? I have tried to e...

Grape1

•4 years ago

8 Replies

Incontinence Products Donation

My Dad has now passed on after being diagnosed In October 2018 and while trying to sort things out have found a load of pull up pants and pads that I don’t...

My Dad has now passed on after being diagnosed In October 2018 and while trying ...

Scoobydoo70

•4 years ago

3 Replies

Organisations that help with CHC applications.

Morning all Can anyone remember the name of the organisation that has loads of info about CHC applications and people who can help appeal etc? I used it a...

Morning all Can anyone remember the name of the organisation that has loads of ...

Spiralsparkle

•4 years ago

4 Replies

Sending Smiles to everyone

I trust you are all doing ok. We are doing the best we can. With coaching, Momma continues to smile, but we fight every single day as all of you. She...

I trust you are all doing ok. We are doing the best we can. With coaching, Mom...

bazooka111

•4 years ago

23 Replies

Stop her dribbling

Hi Mum has PSP, struggling eating and drinking, won't be peg fed or have her food blended. But she is very upset about her constantly dribbling. She has been...

Hi Mum has PSP, struggling eating and drinking, won't be peg fed or have her fo...

Snaggy

•4 years ago

18 Replies

Interesting external urinary catheter for women

My friend told me about a product used with her mother in hospital. It’s called PureWick, a wicking suction device that functions as an external urinary...

My friend told me about a product used with her mother in hospital. It’s called ...

Martina_MP

•4 years ago

1 Reply

Much to my surprise. Bungalow buying

Morning all, a good morning today. I got up to find my, otherwise non-walking wife, from her bedroom almost to the toilet in the bathroom. She furniture...

Morning all, a good morning today. I got up to find my, otherwise non-walking wi...

Scottoppy

•4 years ago

6 Replies

Leaning

Hi just wanted to know if it is normal for my husband to lean to the left and he won’t stand up straight? Thanks for your help.

Hi just wanted to know if it is normal for my husband to lean to the left and he...

Hidden

•4 years ago

14 Replies

Medical Input

Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since the diagnosis. As dad is now bed bound and can do nothing for himself we have...

Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since...

Scoobydoo70

•4 years ago

6 Replies

PSPA Evening Helpline available five-days a week

“PSPA is extremely supportive. The website is a wealth of information, and when I rang the Helpline I was given support and a shoulder to lean on. It was...

“PSPA is extremely supportive. The website is a wealth of information, and when ...

HelenPSPA

Administrator•4 years ago

Be the first to reply

Tip for eating..

I am new to the group here. My father in law was diagnosed with PSP. His eyes are always bothering him. He has a hard time using utensils at dinner. What has...

I am new to the group here. My father in law was diagnosed with PSP. His eyes ar...

Grape1

•4 years ago

14 Replies

Teach at every opportunity that comes along.

So, yea, I'm home now, resting after a little R&R at Grand River Hospital. Bad Thing - had a mild stroke last Wednesday - no permanent damage. Right side is a...

So, yea, I'm home now, resting after a little R&R at Grand River Hospital. Bad T...

daddyt

•4 years ago

27 Replies

Alien limb or primitive hand to mouth reflex?

My mother who has PSP/CBD is affected on her right side which does not move much. Today her right hand slowly floated up and she put her index fingertip in her...

My mother who has PSP/CBD is affected on her right side which does not move much...

Martina_MP

•4 years ago

4 Replies

Clinched jaw

Hello again, my husband is clinching his jaw and I am wondering is this because his jaw is getting hard to open? He still can talk a little but now all he does...

Hello again, my husband is clinching his jaw and I am wondering is this because ...

Hidden

•4 years ago

9 Replies

Deep Brain Stimulation for PSP ??

https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb

https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-d...

Adamxd

•4 years ago

Be the first to reply

CHC

CHC Unfortunately, here in Sheffield, we did not get it, because , to use their words, I was fulfilling all his needs and so they didn’t need to. The fact...

CHC Unfortunately, here in Sheffield, we did not get it, because , to use their...

Robbo1

•4 years ago

2 Replies

Fall

Well I ordered groceries on line and while the person is coming to the door. Rick decided to push his wheelchair back while it was locked and fell back hand...

Well I ordered groceries on line and while the person is coming to the door. Ric...

Hidden

•4 years ago

6 Replies

Patients with PSP do they have uncontrolled apatite?

My mother has been diagnosed with PSP since November 2019, she is in an advanced stage now but we have noticed that the she eats she does not get enough its...

My mother has been diagnosed with PSP since November 2019, she is in an advanced...

Blueclouds07

•4 years ago

16 Replies

Depressed lost alone all too real

Hi everyone Sorry to be on a dark pathway. But lately I've come to realise what I have got. I was diagnosed with CBD by my neurologist nearly a year ago....

Hi everyone Sorry to be on a dark pathway. But lately I've come to realise what...

Upturned

•4 years ago

7 Replies

PSPA selected as Talbot Underwriting's Charity of the Year

We're extremely excited to confirm PSPA has been selected to be Talbot Underwriting's Charity of the Year for 2021 and 2022. Talbot Underwriting employee,...

We're extremely excited to confirm PSPA has been selected to be Talbot Underwrit...

HelenPSPA

Administrator•4 years ago

1 Reply

I Finished the Race

Friends, I wrote a month ago that I will be running the Houston Half Marathon in honor of my wife in support of the Alzheimer’s Association. Their goal is to...

Friends, I wrote a month ago that I will be running the Houston Half Marathon in...

Beads0122

•4 years ago

6 Replies

CHC how to find information

Hi all, We have an assessment meeting that has suddenly been arranged for Saturday. I am trying to find the information about CHC funding which I know I've...

Hi all, We have an assessment meeting that has suddenly been arranged for Satur...

Freddie-dog

•4 years ago

7 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2021

Advice on Health & Welfare LPAs?

A Dreadful Diagnosis

My Husband Lost his battle with PSP

"The Helpline's compassion, experience, and understanding of PSP were very comforting and extremely helpful."

CBD and eyes

I’m new on here !

My wife was recently diagnosed with PSP & we’re wondering if cbd could help with speech balance & swallowing. Or are there other remedies?

A Tasty Treat

Explaining PSP

Incontinence Products Donation

Organisations that help with CHC applications.

Sending Smiles to everyone

Stop her dribbling

Interesting external urinary catheter for women

Much to my surprise. Bungalow buying

Leaning

Medical Input

PSPA Evening Helpline available five-days a week

Tip for eating..

Teach at every opportunity that comes along.

Alien limb or primitive hand to mouth reflex?

Clinched jaw

Deep Brain Stimulation for PSP ??

CHC

Fall

Patients with PSP do they have uncontrolled apatite?

Depressed lost alone all too real

PSPA selected as Talbot Underwriting's Charity of the Year

I Finished the Race

CHC how to find information

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive