Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for September 2021

Diagnosed with Parkinsonism Suggestive of PSP – Any Relation with GBCA accumulation in brain or with Cervical Myelopathy / Radiculopathy?

• In November 2020, I was diagnosed with a Parkinsonism suggestive of PSP, with possible onset in 2018, being Freezing of Gait only on turns my complaint. • In...

• In November 2020, I was diagnosed with a Parkinsonism suggestive of PSP, with ...

•3 years ago

Emotional tsunami, still missing him everyday..

Hello all, I hope everyone is as well as they can be. I thought I’d come and send my prayers and thoughts with you all. So it’s 7AM in the morning and I’ve...

Hello all, I hope everyone is as well as they can be. I thought I’d come and se...

•3 years ago

Navigating Meals

Mornings are her favorite. As most of you already know — a picture does not offer a realistic view, however the stains on her covering tells the real story....

Mornings are her favorite. As most of you already know — a picture does not offe...

•3 years ago

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Novartis Research Trial

The Novartis research trial may offer hope to people with Progressive Supranuclear Palsy. The trial, which is currently involving three patients in...

The Novartis research trial may offer hope to people with Progressive Supranucle...

Administrator•3 years ago

Window to the soul

Facial expression can be greatly impacted with this disease. I believe that mental health can significantly impact overall health - Momma shares a bouquet of...

Facial expression can be greatly impacted with this disease. I believe that ment...

•3 years ago

Thickening drinks

Hi all, My Wife has recently been having to have food and drink modified to account for her loss of swallowing facility. Has anyone found the best way to...

Hi all, My Wife has recently been having to have food and drink modified to acco...

•3 years ago

For bazooker111 Kim and Momma

Blue sky flower and flutter bye

Blue sky flower and flutter bye

•3 years ago

The PSP Chronicles Trilogy

The PSP Chronicles Volume III - Putting Purpose To PSP. My latest, and possibly the last, book fundraiser. This is a longer read than the first two books that...

The PSP Chronicles Volume III - Putting Purpose To PSP. My latest, and possibly ...

•3 years ago

Standing frame thoughts

Hi everyone, My lovely mum is in a nursing home and this cruel disease has begun to take her voice, lots of words now I cannot understand and it is...

Hi everyone, My lovely mum is in a nursing home and this cruel disease has begun...

•3 years ago

My Sunday soul speaks

Watching my sweet Momma this Sunday morning, my soul reminisces of the past three and half years. I watch this horrible disease take up real estate deep in...

Watching my sweet Momma this Sunday morning, my soul reminisces of the past thre...

•3 years ago

Keep Going

Beloveds in pain, just keep going. Keep going. Put one little foot in front of the other and just keep going, even if you only move one inch. Grab the hands of...

Beloveds in pain, just keep going. Keep going. Put one little foot in front of t...

•3 years ago

Day 5

A very big thank you to everyone who has replied to me with such wonderful help for my husband who is having trouble eating and drinking unfortunately we are...

A very big thank you to everyone who has replied to me with such wonderful help ...

•3 years ago

How PSPA Support Grants can help you

"You have recently supported my mum with the cost of buying predictive software for her tablet. As a family we will always be eternally grateful as it’s mums...

"You have recently supported my mum with the cost of buying predictive software ...

Administrator•3 years ago

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A frightening episode (CBD)

Several weeks ago, my husband went to sleep at 9 in the evening, was still asleep at 10 am, 12 noon. Finally around 2pm someone suggested that I try to wake...

Several weeks ago, my husband went to sleep at 9 in the evening, was still aslee...

•3 years ago

The roller coaster of PSP

For the past four years my partner has been experiencing changes in vision, speech and balance. In late April of 2020, a neurologist diagnosed her with PSP...

For the past four years my partner has been experiencing changes in vision, spee...

•3 years ago

Catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in...

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplie...

•3 years ago

Dont think my mum has long left

I had to do an end of life plan for the care home my mum is in. Just wondering how long she may have. She is detiriating quickly she can not keep her head up...

I had to do an end of life plan for the care home my mum is in. Just wondering h...

•3 years ago

Alien Limb Condition

Has anyone experienced alien limb condition? My husband was diagnosed with PSP last year. His left arm moves on its own and his hand lands on face and neck ....

Has anyone experienced alien limb condition? My husband was diagnosed with PSP l...

•3 years ago

Unable to eat or drink

What is the best thing to do when he cannot eat or drink without gagging or choking because of the swallowing problems?

What is the best thing to do when he cannot eat or drink without gagging or chok...

•3 years ago

Falls

Oh my gosh! Just last Thursday evening (4 days ago) my darling lady was standing at the kitchen sink, turned around to wipe the refrigerator door handle and...

Oh my gosh! Just last Thursday evening (4 days ago) my darling lady was standing...

•3 years ago

Falls

Hi I have had several minor falls! Unfortunately on 6th August I fell backwards from the very top stair in the house! I have broken 4 ribs and cracked my T10...

Hi I have had several minor falls! Unfortunately on 6th August I fell backwards...

•3 years ago

Meet the Helpline Team - Debra Ruddock

“My career has always been in the health and social care industry from teaching children and adults with learning disabilities, to setting up new forms of...

“My career has always been in the health and social care industry from teaching ...

Administrator•3 years ago

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Can you see her smile under that mask?

Yes, thats my Momma --- After calling 911 last week, due to extreme phlegm - oh my goodness, it was so thick -- clear -- and she literally was choking on it....

Yes, thats my Momma --- After calling 911 last week, due to extreme phlegm - oh ...

•3 years ago

Saying Hello

Dropping into say hello to all of our friends on this forum! I am sorry it has been so long since I have posted. Life is full, and days turn into weeks, then...

Dropping into say hello to all of our friends on this forum! I am sorry it has ...

•3 years ago

PSP and Covid

Has anyone had an experience with this? I had a mild case of Covid last week. Although my husband tested negative when mine was positive, I believe he did...

Has anyone had an experience with this? I had a mild case of Covid last week. Al...

•3 years ago

They hear until the end.

Iam not trying to say “advice” or “you should” … but I saw from my ex that he was able to hear and comprehend what I was saying to the very end. So, when...

Iam not trying to say “advice” or “you should” … but I saw from my ex that he w...

•3 years ago

Prolonged muscle contraction episodes.

Good evening, Just wondering if anyone has experienced this with their loved ones. My sister has PSP and I’d say fairly advanced now. She has carers 4 times...

Good evening, Just wondering if anyone has experienced this with their loved on...

•3 years ago

The Humble Bumblebee

Bee on Dahlia flower

Bee on Dahlia flower

•3 years ago

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