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PSP Association

9,235 members • 11,338 posts

All posts for May 2012

Morpeth Support Group

The next meeting will take place on Tuesday 12th June 2012 from 10.30 am to 12.30 pm at Stannington Village Hall, Main Street, Stannington, Morpeth,...

The next meeting will take place on Tuesday 12th June 2012 from 10.30 am to 12.3...

Partner•12 years ago

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Pocklington Support Group

The next meeting will take place on Saturday 9th June 2012 between 10.00 and 12.00 at Burnby Hall Room (next to Burnby Hall Gardens), The Balk, Pocklington,...

The next meeting will take place on Saturday 9th June 2012 between 10.00 and 12....

Partner•12 years ago

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Any ideas on how to get a wet-room converted to a bath room with financial help from the local council?

hi everyone i am new this blog. i having problem with wet-room turn back to bath i really need to have bath to help with relaxing

hi everyone i am new this blog. i having problem with wet-room turn back to bath...

•12 years ago

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Forgetting...

My poor mother in law seems to get worse on a daily basis. Falling many times a day and frequently weeping. Her new anti depressants have been increased...

My poor mother in law seems to get worse on a daily basis. Falling many times a...

•12 years ago

Cambridge Support Group

PLEASE NOTE: The next Cambridge Support Group Meeting will be on Saturday, 28th July from 2.30 pm to 5.00 pm at Trumpington Village Hall, High Street,...

PLEASE NOTE: The next Cambridge Support Group Meeting will be on Saturda...

Partner•12 years ago

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Difficulty breathing and cold sweats

My poor baby is in the end stage. He hangs on to nothing just for us. He is gasping for air and breaks out in cold sweats and holds onto my arm for dear...

My poor baby is in the end stage. He hangs on to nothing just for us. He is ga...

•12 years ago

It's been just over a week....

It's been just over a week since my husband Tom's struggle finally ended. He yearned to be released, but we, his family, did not want to let go. Prolonging...

It's been just over a week since my husband Tom's struggle finally ended. He ye...

•12 years ago

Something to make you smile?!? :-)

My Mum's oldest friend has an elderly Jack Russell who has been a bit under the weather recently. The vet said they should get a urine sample from the dog. I...

My Mum's oldest friend has an elderly Jack Russell who has been a bit under the ...

•12 years ago

Ten Years Later: A Father figure taken, but not gone.

When we reach the 3rd of August of this year (2012) it will be exactly ten years since my mum married Mervyn, my stepfather. I was 15 and their solo bridesmaid...

When we reach the 3rd of August of this year (2012) it will be exactly ten years...

•12 years ago

Exeter Support Group

The next Exeter Support Group meeting will take place on Wednesday 30th May 2012 from 11am to 1pm at Longdown Village Hall, Longdown, Exeter, EX6 7SN. The...

The next Exeter Support Group meeting will take place on Wednesday 30th May 2012...

Partner•12 years ago

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Liskeard Support Group

The next Liskeard Support Group meeting will take place on Monday 28th May 2012 from 11.30am to 1.30pm at Echo Centre, Barras Place, Liskeard, Cornwall, PL14...

The next Liskeard Support Group meeting will take place on Monday 28th May 2012 ...

Partner•12 years ago

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Northamptonshire Support Group

The next Northamptonshire Support Meeting will take place on Saturday 28th April 2012 between 2.30 pm and 4.30 pm at The Kairos Centre, Wilks Walk, Grange...

The next Northamptonshire Support Meeting will take place on Saturday 28th April...

Partner•12 years ago

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Cambridge Support Group

The next meeting is on Sat. 26th May in Trumpington Village Hall from 2.30 til 5.30 pm. All are very welcome!

The next meeting is on Sat. 26th May in Trumpington Village Hall from 2.30 til 5...

•12 years ago

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Brentwood Support Group

Brentwood Support Group meeting this Saturday 26 May at the Marrilac , 2.30 to 4.30. If you would like us to do a raffle on a regular basis please bring along...

Brentwood Support Group meeting this Saturday 26 May at the Marrilac , 2.30 to 4...

•12 years ago

Physiotherapy?

We are thinking about starting physiotherapy for my dad.So,we contacted a physiotherapist but we had a strange answer.He said that he is not available because...

We are thinking about starting physiotherapy for my dad.So,we contacted a physio...

•12 years ago

Dorothy-Thompson My husband, in common with other psp sufferers, is angry and completely intolerant most of the time.

I understand it is part of the condition. But please, could anyone tell me what I can do to help the situation, he will not take anti-depressants, are there...

I understand it is part of the condition. But please, could anyone tell me wha...

dorothy-thompson

•12 years ago

someone to chat to mum xx

hi, my mum has no internet and cant use a computer so i tell her all about people on here who are in the same situation, she is a fulltime carer for peter my...

hi, my mum has no internet and cant use a computer so i tell her all about peopl...

•12 years ago

Anyone had problems with swolen lips?

Mum seems to have started chewing at the inside of her bottom lip which now looks very swollen and tender. She has had a recurrent urinary infection over the...

Mum seems to have started chewing at the inside of her bottom lip which now look...

•12 years ago

Speech Therapy

Hi, My sister has been having visits from the Speech Therapist. They have been very helpful. When my sister's speech started to get a bit slurred she was...

Hi, My sister has been having visits from the Speech Therapist. They have be...

•12 years ago

Speech Therapy.

My mother was diagnosed with PSP this month, (although she received a Parkinson's diagnosis three years previously). She now speaks pretty much only when...

My mother was diagnosed with PSP this month, (although she received a Parkinson'...

•12 years ago

Does everyone with PSP have personality changes?

It is so difficult to know because of the communication difficulties. I have read about frontotemporal lobe dementia being part of PSP. When I read the...

It is so difficult to know because of the communication difficulties. I have rea...

•12 years ago

A difficult time

We have been going through a very tough time recently with my mum as my father, who is her primary carer had a fall and is unable to care for her. As I work,...

We have been going through a very tough time recently with my mum as my father, ...

•12 years ago

Coping with Groaning.

My mother has just been diagnosed with PSP. She groans, usually when tired, with each exhalation or sometimes with each inhalation AND exhalation. When she...

My mother has just been diagnosed with PSP. She groans, usually when tired, wit...

•12 years ago

Hand Contractures.

My mother has a hand contracture and I noticed another member of this board also mentioned that her husband has a contracture. I am not aware that...

My mother has a hand contracture and I noticed another member of this board also...

•12 years ago

womens 10 k in glasgow

hiya every one me and my niece are doing the womens 10 k in glasgow this sunday to raise money for the psp association my mum has psp and is getting worse she...

hiya every one me and my niece are doing the womens 10 k in glasgow this sunday ...

•12 years ago

How much pain are PSP patients in? My Dad's face always look like he's but he says he isn't.

•12 years ago

Is there any connection between Cellabella Ataxia & PSP ?

My husband was diagnoised with Cellabella Ataxia 4 years ago but his condition was moving too quickly. Then he had a DatScan which showed PSP. Some of the...

My husband was diagnoised with Cellabella Ataxia 4 years ago but his condition w...

•12 years ago

Neck Pain.

Does anyone have recommendations about reducing neck pains/spasms? I am not really clear if my mother's neck pain is skeletal or muscular. Have purchased a...

Does anyone have recommendations about reducing neck pains/spasms? I am not rea...

•12 years ago

First Aid for Choking.

My mother, who is 82, was recently diagnosed and now lives with me. She frequently coughes, wheezes and breathes heavily, especially at night. I am very...

My mother, who is 82, was recently diagnosed and now lives with me. She frequen...

•12 years ago

Comments on the Forum and HealthUnlocked Please!

Hi All, As part of our review process we are looking at the Forum and HealthUnlocked and how you use them. We think there is room to keep both services...

Hi All, As part of our review process we are looking at the Forum and Hea...

•12 years ago

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