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PSP Association

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All posts for February 2013

COPING WITH EXCESS SALIVA (FATHER HAS PSP)

Hi, my father has PSP sadly and at times has excess saliva for which he is always worrying about and constantly wiping his mouth. I came across a company...

Hi, my father has PSP sadly and at times has excess saliva for which he is alway...

galagirl

•11 years ago

28 Replies

Hi my Mum is diagnosed with CBD. My elderly father is the main carer.. he has health issues himself. what home help can we get in the UK?

I will do what I can although I live some distance away...I am worried about how we will cope with the progresss of this terrible disease and want to start the...

I will do what I can although I live some distance away...I am worried about how...

Hidden

•11 years ago

9 Replies

WHY ARE URINARY INFECTIONS SO PROMENENT IN PSP PATIENTS?

My dear PSP wife has not had a urinary infection but I note on this and other blogs that it seems to be something associated with PSP. Anyone know why this...

My dear PSP wife has not had a urinary infection but I note on this and other bl...

jimandsharynp

•11 years ago

13 Replies

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My Story

Mom started exhibiting the symptoms of PSP probably 5 years ago, frequent unexplained falls, poor eyesight, swallowing problems. She was finally diagnosed...

Mom started exhibiting the symptoms of PSP probably 5 years ago, frequent unexpl...

t1cee

•11 years ago

10 Replies

PSP Fact Cards

We are getting a lot of queries about the PSP Fact Cards. If anyone is interested in getting some, please send me an email at...

We are getting a lot of queries about the PSP Fact Cards. If anyone is interest...

PSPA_DebbieB

Partner•11 years ago

34 Replies

Another star has joined the sky

Mum lost her courageous battle today. She completely stopped eating, drinking and swallowing 2 days ago and every thing started to stiffen up. Today her...

Mum lost her courageous battle today. She completely stopped eating, drinking an...

Hidden

•11 years ago

32 Replies

WE ALL NEED SOME OF THE PSP CARDS

HI WE ALL NEED SOME /MORE OF THE PSP CARDS TO GIVE OUT TO FRIENDS CARERS ORDINARY PEOPLE AND THE MEDICAL PROFESSION BUR I CANNTO SEE WHERE TO GET THEM FROM...

HI WE ALL NEED SOME /MORE OF THE PSP CARDS TO GIVE OUT TO FRIENDS CARERS ORDINA...

jillannf6

•11 years ago

4 Replies

I think my Mom has PSP

My Mom as AF and started falling backward in 2010 and was taken into hospital begining of January that year with a bad chest infection, but her falling...

My Mom as AF and started falling backward in 2010 and was taken into hospital be...

rainbow33

•11 years ago

15 Replies

PSP Story With A Touch Of Humor #2

I started feeling icky late last week. I looked in the mirror Fri. morning & knew it was time to go to Urgent Care. The nurse came in to take my history....

I started feeling icky late last week. I looked in the mirror Fri. morning & kne...

JudyJ

•11 years ago

20 Replies

What keeps me going

Here is the next installment of my blog. When the weather is cold and I don't feel like training I call to mind all the names of people on this site and it...

Here is the next installment of my blog. When the weather is cold and I don't fe...

Kathy

•11 years ago

8 Replies

another name - another date

I am adding to the ever growing number of losses to PSP, it came racing in and ravaged him for the final four days, with no fight left, my lovely Frank left...

I am adding to the ever growing number of losses to PSP, it came racing in and r...

kay1

•11 years ago

21 Replies

In memory of David Clifton

It is with great sadness that I have to tell you my Dad passed away on Saturday 9th February after a 12 year battle with PSP. What a fighter. I wanted to share...

It is with great sadness that I have to tell you my Dad passed away on Saturday ...

AmyT

•11 years ago

22 Replies

choosing a nursing home

Hi Dorothy, Choosing a nursing home - this is a difficult one. Depending on what homes are available in your area and what their reputation is like. I did...

Hi Dorothy, Choosing a nursing home - this is a difficult one. Depending on wh...

maeve

•11 years ago

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Suction machine

Hello to everyone.We bought a suction machine for my dad recently.The problem is we don't know how to use it!How often should we use it?How many seconds should...

Hello to everyone.We bought a suction machine for my dad recently.The problem is...

john_z

•11 years ago

5 Replies

Dorothy-Thompson

How do you know which sort of nursing home to choose - one that cares for parkinsons patients or dementia or physical disabilities? what sorts of decisions...

How do you know which sort of nursing home to choose - one that cares for parkin...

dorothy-thompson

•11 years ago

6 Replies

dentures

Hello. My hubby (74 years old) has lost two upper molars. The dentist suggested we should look at dentures. Having read many blogs about teeth cleaning...

Hello. My hubby (74 years old) has lost two upper molars. The dentist suggeste...

MaddyS

•11 years ago

7 Replies

I'm 6 mos. into PSP tho symptoms started 2010. Just starting to have trouble w/aspiration. 3 events over 2 weeks; only liquids. Any advice?

JudyJ

•11 years ago

27 Replies

Experience of PEG feeding.

Hi Everyone My husband has been attending our local day hospice for 4 weeks and today they talked to him about advanced planning. For sometime he has...

Hi Everyone My husband has been attending our local day hospice for 4 weeks an...

Peter3

•11 years ago

31 Replies

I have been recently diagnosed with PSP and would like to kn ow why my left hand is not working properly issy x

I also would like to know what the outcome will be if I get a Total Knee Replacement issy x

I also would like to know what the outcome will be if I get a Total Knee Replace...

ifenwick

•11 years ago

11 Replies

ANOTHER STATISTIC

My lovely partner Derek passed away at home late on Saturday afternoon. He was only formally diagnosed with possible PSP in April of last year, having...

My lovely partner Derek passed away at home late on Saturday afternoon. He was ...

Jay29

•11 years ago

30 Replies

FREEZING GAIT - DO YOU HAVE IT?

My wife has just started (last two days) a freezing gait symptom. Twice today she wanted to move but the feet were like they were glued to the floor. She did...

My wife has just started (last two days) a freezing gait symptom. Twice today s...

jimandsharynp

•11 years ago

15 Replies

Spreading the word

Last Wednesday we had to take Mum to A+E. We called the ambulance and had a 2 hour wait as it was considered to be a "non-life-threatening" event. When the...

Last Wednesday we had to take Mum to A+E. We called the ambulance and had a 2 ho...

Kathy

•11 years ago

12 Replies

Thanks

A huge thank you to you all who have sent messages to me. It is such a comfort to me and the family at this time. Our struggle is over but there are so many...

A huge thank you to you all who have sent messages to me. It is such a comfort ...

maeve

•11 years ago

2 Replies

My question is: does PSP speed up in later stages?

My husband was told five years ago that he had PSP and he is now in a hospital grade home. He no longer talks except for a hard to hear whisper. He can still...

My husband was told five years ago that he had PSP and he is now in a hospital g...

KatherineParr

•11 years ago

20 Replies

Message for Ray Wiffen

Hi Ray How are you? We have our next support group meeting at the end of this month and we all miss you. If you are able to get along to the meeting we...

Hi Ray How are you? We have our next support group meeting at the end of thi...

jennifer-nind

•11 years ago

3 Replies

Just want to tell you

My sister passed away very peacefully yesterday morning unfortunately I was not at her side but I had seen her the day before. I never did win that battle for...

My sister passed away very peacefully yesterday morning unfortunately I was not ...

maeve

•11 years ago

17 Replies

Corticobasal degeneration - A personal story

I am new to this website, but thought I would share my story. My mum has recently been diagnosed with Corticobasal Degeneration at the age of 49. For...

I am new to this website, but thought I would share my story. My mum has rece...

pamela2103

•11 years ago

28 Replies

PSPA REGIONAL OPEN DAYS KICK OFF IN WARRINGTON ON 26th FEBRUARY, 12.30 - 4.00PM

The first of our Regional Open Days takes place at the Peace Centre in Warrington on 26th February, 12.30 to 4.00pm. The Open Days have been designed for...

The first of our Regional Open Days takes place at the Peace Centre in Warringto...

PSPA_CameronW

•11 years ago

3 Replies

I'm in the early stages of PSP. I've learned much about what to expect at or close to end-stage. But what is the middle stage like?

JudyJ

•11 years ago

21 Replies

We said goodbye to Mom

At the beginning of Jan we were told that Mom had 72 hours. About Jan 21 she became totally non responsive. On Feb 2 I was by her side when she took her last...

At the beginning of Jan we were told that Mom had 72 hours. About Jan 21 she bec...

blessedcaregiverinLA

•11 years ago

14 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2013

COPING WITH EXCESS SALIVA (FATHER HAS PSP)

Hi my Mum is diagnosed with CBD. My elderly father is the main carer.. he has health issues himself. what home help can we get in the UK?

WHY ARE URINARY INFECTIONS SO PROMENENT IN PSP PATIENTS?

My Story

PSP Fact Cards

Another star has joined the sky

WE ALL NEED SOME OF THE PSP CARDS

I think my Mom has PSP

PSP Story With A Touch Of Humor #2

What keeps me going

another name - another date

In memory of David Clifton

choosing a nursing home

Suction machine

Dorothy-Thompson

dentures

I'm 6 mos. into PSP tho symptoms started 2010. Just starting to have trouble w/aspiration. 3 events over 2 weeks; only liquids. Any advice?

Experience of PEG feeding.

I have been recently diagnosed with PSP and would like to kn ow why my left hand is not working properly issy x

ANOTHER STATISTIC

FREEZING GAIT - DO YOU HAVE IT?

Spreading the word

Thanks

My question is: does PSP speed up in later stages?

Message for Ray Wiffen

Just want to tell you

Corticobasal degeneration - A personal story

PSPA REGIONAL OPEN DAYS KICK OFF IN WARRINGTON ON 26th FEBRUARY, 12.30 - 4.00PM

I'm in the early stages of PSP. I've learned much about what to expect at or close to end-stage. But what is the middle stage like?

We said goodbye to Mom

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive