Posts - PSP Association | HealthUnlocked

PSP Association

9,245 members • 11,345 posts

All posts for June 2011

Dad's Been Picked!

I've just found out that my dads been picked for the PSP trials! Excited!

I've just found out that my dads been picked for the PSP trials! Excited!

•13 years ago

seems unable to close eyes

Husband now even sleeps with his eyes partially open, they are so glazed and fixed, is this just another box to be ticked in the long list of symptoms?

Husband now even sleeps with his eyes partially open, they are so glazed and fix...

•13 years ago

CoenzymeQ10

Can someone tell me what, if any, are the positive benefits of CoenzymeQ10 for PSP? My hubby is willing to give it a try. Should we contact our GP or the...

Can someone tell me what, if any, are the positive benefits of CoenzymeQ10 for P...

•13 years ago

Want to take advantage of all our features? Just log in!

or

Dad, Mum, Brother, Me and PSP.....

Hi Everyone My dad Tommy suffers from PSP and was diagnosed with the condition around 10 years ago now. At first it was thought he had Parkinsons as the two...

Hi Everyone My dad Tommy suffers from PSP and was diagnosed with the condition ...

•13 years ago

Frontal Temporal Dementia and p.s.p.

Marion was diagnosed with frontal temporal dementia late 2008, Mid 2009 was diagnosed with p.s.p. is there anybody else in the same situation? Marion is 60...

Marion was diagnosed with frontal temporal dementia late 2008, Mid 2009 was diag...

•13 years ago

An odd comfort

This site has been strangely comforting for me - I say that because its awful to think that others have gone through what we did with dad but also makes you...

This site has been strangely comforting for me - I say that because its awful to...

Louise-Alabaster

•13 years ago

Technical Issues

If you are having any technical issues with HealthUnlocked, for example signing in, joining, etc. please could I encourage you to send these type of questions...

If you are having any technical issues with HealthUnlocked, for example signing ...

Partner•13 years ago

Numb hands

Hi all I was just wondering if any body with psp or cbd has the same problem as me, Every morning when i wake up i have no feelings in both hands and for arms...

Hi all I was just wondering if any body with psp or cbd has the same problem as...

ray-wiffen-1958

•13 years ago

Republic of Ireland Members

Hi there, My name is Meabh, and I am a carer for my Dad Arthur who has PSP. We live in Dublin, and I am also a nurse. Just wanted to say if anyone from...

Hi there, My name is Meabh, and I am a carer for my Dad Arthur who has PSP. We ...

•13 years ago

All My Blogs

Many members have been asking for a way to find past blogs more easily. Now you can access any members' blogs through their profile by clicking on the "All my...

Many members have been asking for a way to find past blogs more easily. Now you ...

Partner•13 years ago

Be the first to reply

coenzyme q10

hi i am trying coenzyme q10( small dose) asit has been suggested to help iwth Psp today my new carerstarts ! jilllx

hi i am trying coenzyme q10( small dose) asit has been suggested to help iwth ...

•13 years ago

access to parkinsons uk information and support worker

hi all Any body that hasnt got access to a parkingsons information and support worker then they need to get it, if there is one thing i would not be able to...

hi all Any body that hasnt got access to a parkingsons information and support ...

ray-wiffen-1958

•13 years ago

hubby - speech - fluid retention

not much of a title but major heart break at the moment. His voice is weaker and weaker and he tries so hard to convey message to me. Can the fluid retention...

not much of a title but major heart break at the moment. His voice is weaker an...

•13 years ago

dizziness

My husband has PSP and suffers all the time with a dreadful dizziness when he tells the doctors they seem surprised does any one else suffer in this way and...

My husband has PSP and suffers all the time with a dreadful dizziness when he te...

•13 years ago

My Amazing Dad

My amazing lovely brilliant dad was diagnosed with PSP IN October 2005 after he kept falling backwards. Sadly he lost his incredibly brave fight on 8th...

My amazing lovely brilliant dad was diagnosed with PSP IN October 2005 after he ...

Louise-Alabaster

•13 years ago

Half & Half

Are you a glass half full or a glass half empty type of person? I tend to be the glass half full type for the most part, although there are times when the...

Are you a glass half full or a glass half empty type of person? I tend to be t...

•13 years ago

Fun in the sun

Yesterday was a good day. We took Mum out for the afternoon to a local event to celebrate Armed Forces Day. There were marching bands and parachutes, a...

Yesterday was a good day. We took Mum out for the afternoon to a local event to ...

•13 years ago

last on the waiting list

Hi every one Idont know if its just me but since i have been diagnosed with cbd and told that there is no cure the doctors and the hospitals seem to push you...

Hi every one Idont know if its just me but since i have been diagnosed with cbd...

ray-wiffen-1958

•13 years ago

a crisis this week

My mum was rushed to hospital this week, and panicked us all. She's doing ok though- apart from the PSP she's as strong as an ox, and this is her first chest...

My mum was rushed to hospital this week, and panicked us all. She's doing ok tho...

•13 years ago

brain and psp

i have been wondering why the brain cannot adapt as it does when someone has a stroke and let the unaffected parts deal with the problems of...

i have been wondering why the brain cannot adapt as it does when someone has a s...

•13 years ago

holidays and psp

hI I have been on holiday (1st time in 12 months to Southern Scotland and after arriving and falling in the bedroom of the small hotel did not have another...

hI I have been on holiday (1st time in 12 months to Southern Scotland and after ...

•13 years ago

The Diary of a Daughter and Carer #2 (written in Feb 2011)

Sometimes things happen to you during the average day that make you realise how lucky you are. I was taking the dog for a walk today, she’s an old girl now so...

Sometimes things happen to you during the average day that make you realise how ...

•13 years ago

Writing a book

A little while ago Mum said something that made me laugh and I thought it sounded like the title of a book... so I started writing it! It's a memoir come...

A little while ago Mum said something that made me laugh and I thought it sounde...

•13 years ago

PSP Trials

I found out a couple of days ago that my dad's local hospital is running PSP trials and they are looking for participants. I've emailed the hospital and they...

I found out a couple of days ago that my dad's local hospital is running PSP tri...

•13 years ago

PSP

six weeks ago Psp seemed a minor annoyance for my hubby and me. He had been diagnosed about three years ago age 85, bit unsteady, bit of stuttering, but got...

six weeks ago Psp seemed a minor annoyance for my hubby and me. He had been dia...

•13 years ago

Emotional freedom Technique

had eft again yesterday which i have for about 4 hours on a tuesday each week, The results keep getting better and better every time we tap on a new problem we...

had eft again yesterday which i have for about 4 hours on a tuesday each week, T...

ray-wiffen-1958

•13 years ago

Emotional Freedom Techique (eft)

Hi every body just like to share this with you, having cbd makes most days a bit of a struggle but i have found that holistic therapy is a great way to cope...

Hi every body just like to share this with you, having cbd makes most days a bit...

ray-wiffen-1958

•13 years ago

New to blogging!

Have just signed up and new to blogging so not sure how it works really. I help my Dad care for my Mum, who has PSP. She was diagnosed in Jan 2009 and has...

Have just signed up and new to blogging so not sure how it works really. I help ...

•13 years ago

My Dad and PSP

My dad was diagnosed in March 2009 with PSP at the age of 70. Prior to this, he had experienced a number of falls and had a number of car accidents through...

My dad was diagnosed in March 2009 with PSP at the age of 70. Prior to this, he ...

•13 years ago

Spam and HealthUnlocked

There have been some concerns raised about the security on HealthUnlocked and if spam postings would be able to get through. Many forums on the internet...

There have been some concerns raised about the security on HealthUnlocked and if...

Partner•13 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec