Posts - PSP Association | HealthUnlocked

PSP Association

9,383 members • 11,414 posts

All posts for July 2016

12 years ago today

Feeling 😪 no card, present or celebration, not even any point in cooking a nice meal. 🍷in the garden alone as I can't cope with watching another repeat of...

Feeling 😪 no card, present or celebration, not even any point in cooking a nice...

•8 years ago

Psp

My name is Mary Whelan. My husband has recently been diagnosed with PSP. Devasting.

My name is Mary Whelan. My husband has recently been diagnosed with PSP. Dev...

•8 years ago

Spread the word about PSP!

I had to go into London today and my car broke down. Bad luck. But it broke down within 100 meters of my old garage - Good luck. I was of course blocking...

I had to go into London today and my car broke down. Bad luck. But it broke dow...

•8 years ago

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Electric riser bed

Advice again from those further down the awfull road than us! I know (hope) ultimately F will be provided with a hospital bed. But clearing my parents house...

Advice again from those further down the awfull road than us! I know (hope) ulti...

•8 years ago

Tony dixon

Hi my wife has had psp for 5 years falsdown 4 times a day last night put a 6 inch hole in the wall wat a cruel disease

Hi my wife has had psp for 5 years falsdown 4 times a day last night put a 6 inc...

•8 years ago

Whoopeedoo we've got it!

Well after a very strange few days of various people telling me Keith doesn't qualify for fast track CHC beapcause it was only for "end of life patients" we...

Well after a very strange few days of various people telling me Keith doesn't qu...

•8 years ago

A funding route for those refused Continuing Health Care and who are in a Residential Care Unit

Sorry another U.K. only post. I feel I am spamming the board these days... I should not be allowed near a mouse! But this might just be useful for someone....

Sorry another U.K. only post. I feel I am spamming the board these days... I sho...

•8 years ago

Dry Cough

I started coughing occasionally about a year ago. This last week it has got a lot worse with repeated coughs (six or seven at a time) Four or five times a...

I started coughing occasionally about a year ago. This last week it has got a l...

•8 years ago

Meds for CBD

Hello My Mother has been given Pregablin over the past few months as a pain killer/anxiety medication. Initially tolerated it well but now that there has been...

Hello My Mother has been given Pregablin over the past few months as a pain kill...

•8 years ago

Help with incontinence management please

Hi We are now at the stage where my lovely can no longer transfer from the bed to the,close by, commode at night without assistance. I used to get up in the...

Hi We are now at the stage where my lovely can no longer transfer from the bed t...

•8 years ago

confused ??

hello everyone, never really poates before but now feel i have to get some advice. my dad has vascular parkinsons, and when i came across this site i felt i...

hello everyone, never really poates before but now feel i have to get some advic...

•8 years ago

Ileen

I have been viewing this site for several years but recently my email address changed and as a result I have not been receiving emails from your organization....

I have been viewing this site for several years but recently my email address ch...

•8 years ago

Respite vacation-help or hinder?

Hi All! I'm back from a long needed vacation. Once the thought of having a break was a very wise decision and was suggested by many, (including all of ya'll),...

Hi All! I'm back from a long needed vacation. Once the thought of having a break...

•8 years ago

Co2 acidosis

Mother Inlaw was in hospital for 5 weeks with pneumonia and a buildup of co2 came home with a nippy machine, she went to her 6 week check at the respiratory...

Mother Inlaw was in hospital for 5 weeks with pneumonia and a buildup of co2 cam...

•8 years ago

BROKE HIS HIP

I should have known something would happen since things were going well. He fell Sunday evening and broke his hip. Surgery scheduled for Thursday since he is...

I should have known something would happen since things were going well. He fell...

•8 years ago

Smile for today

Liz cut her leg in the shower this morning whilst shaving for her weekly massage. The carer (a sensible woman in her 40's) started gabbling on about how she...

Liz cut her leg in the shower this morning whilst shaving for her weekly massage...

•8 years ago

Got to tell you this......

Our hospital, Southmead in Bristol has just opened a new clinic for PSP. Great! I have had to get my doctor to refer S. Did nobody think to just take the...

Our hospital, Southmead in Bristol has just opened a new clinic for PSP. Great! ...

•8 years ago

Two compounds found in cinnamon appear to inhibit the buildup of a protein called tau in the brain

http://www.diabetesaction.org/site/DocServer/Tau_J_Alzheimers_09.pdf?docID=781

http://www.diabetesaction.org/site/DocServer/Tau_J_Alzheimers_09.pdf?docID=781

•8 years ago

2nd opinion

Okay, so my dad got a 2nd opinion today, which turned out to be a good thing! I was not there (wish I would have been, cuz I would have asked a lot more...

Okay, so my dad got a 2nd opinion today, which turned out to be a good thing! I...

•8 years ago

Michael Fox Foundation expanding clinical trials to include PSP, CBD, MSA and LBD

https://foxtrialfinder.michaeljfox.org/?et_cid=623261&et_rid=61646394&et_lid=https%3a%2f%2ffoxtrialfinder.michaeljfox.org%2fem_cid=

https://foxtrialfinder.michaeljfox.org/?et_cid=623261&et_rid=61646394&et_lid=htt...

•8 years ago

Cellulitis - is it a problem?

Dad had a cut on his knee that was getting a bit swollen so the staff at his care home called the Gp, who put him on antibiotics. Today they rang to say that...

Dad had a cut on his knee that was getting a bit swollen so the staff at his car...

•8 years ago

Best laid plans

So I've been down with a vomiting and diarrhoea virus for two days... Pretty much knocked out. Not enough to trigger our contingency plan... You know the one...

So I've been down with a vomiting and diarrhoea virus for two days... Pretty muc...

•8 years ago

Not a good start to a Sunday morning.

I never had a carer rota sent to me this last week so phoned the agency to ask who was coming and when. The person due on Friday night didn't arrive so I had...

I never had a carer rota sent to me this last week so phoned the agency to ask w...

•8 years ago

Lundie Loops

Hi everyone, I haven,t posted for a while , hospital admission, work, etc, no excuses but just trying to find time to update you all.My husband Alex has PSP...

Hi everyone, I haven,t posted for a while , hospital admission, work, etc, no ex...

•8 years ago

Botox Injections Around the Eyes to help eyelids remain open and Amantidine

We saw a new neurologist Friday, and I hope I can get some opinions from my expert friends on HealthUnlocked. We live in Indianapolis in the USA. I'm very...

We saw a new neurologist Friday, and I hope I can get some opinions from my expe...

Greenkerrycounty

•8 years ago

Corticobasal degeneration and sleepiness

It seems my husband, whose cbd has been diagnosed several years ago, is suddenly sleeping much more during the daytime than only a week ago. Does anyone else...

It seems my husband, whose cbd has been diagnosed several years ago, is suddenly...

•8 years ago

Keep your fingers crossed!

Hi everyone, Well after a stressful two hour interview with the powers that be and being told Keith will probably be assessed at having moderate care needs...

Hi everyone, Well after a stressful two hour interview with the powers that be a...

•8 years ago

Superstition!

Hi, I am not really superstitious, but..... I do cross my fingers if walking under a ladder, never cut my nails on Friday or Sunday, that's about the extent...

Hi, I am not really superstitious, but..... I do cross my fingers if walking u...

•8 years ago

So proud of him.

Hi everyone. Everyday I get asked about what is wrong with F and everyday I go through the same script, hopefully spreading the word and encouraging more...

Hi everyone. Everyday I get asked about what is wrong with F and everyday I go t...

•8 years ago

Another Pass

Went to doc this a.m. Dizziness abated. Gave Charles coconut water last night because I thought he was dehydrated. Seemed to help a little. He's afraid to...

Went to doc this a.m. Dizziness abated. Gave Charles coconut water last night ...

•8 years ago

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