Posts - PSP Association | HealthUnlocked

PSP Association

9,177 members11,302 posts

All posts for August 2013

Walking aids for indoors

Hubby can now only shuffle from chair to toilet/bedroom, provided I hold on to h...
MaddyS profile image

She Ain't Heavy; She's my Mother

My oldest son, Patrick, came to visit last week - all the way from the East Coas...
CarlaL48 profile image

Does anyone use a Manga Elk?

Hi Everyone, I have been doing my evening scan of the blogs and tonight I notice...
Peter3 profile image
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First Post - My father has just been diagonsed with CBD

Hi everyone Just wanted to say hello and introduce myself and give a bit of bac...
MargeryDaw profile image

My Dad is 70 in Hospital, been Nil By Mouth for 5 Days has failed the S A L T test on all accounts.Next step is fed directly by Tube or PEG.

He has problems with His Kidneys and also had a Urinary Catheterisation permanen...
Honesty37 profile image

dear Dorothy Thompson I have psp, and my husband has to do everything I find it very ,very hard to talk and my husband does not

understand what I am trying to say it is very hard and verytiring,
MOMBCD1 profile image

Dorothy-thompson Has any one got any tips on how to communicate, my husband's speech is now so poor that understanding him is very difficul

I think some people use the alphabet to choose the letters to make the word? Or...

Hi everyone. Does anyone have any experience of the medication Clonazepam for rigidity problems?

While Ive been away on holiday my mum has been struggling to open her mouth wide...
JoJo-K profile image

Suction Machine for Secretions!

I cannot imagine why it took so long for me to remember how the suction machine ...

Anatomy of a Medicare Appeal

It looks like my husband and I are gearing up for a third bout with Medicare. D...
CarlaL48 profile image

Ekalaka Saturday Night

Note: We all ask ourselves from time to time, “How did we get here?” The answer...
CarlaL48 profile image

hi my name is chloe i feel like cying sometimes i don't know how to exprss my feelings to people and my dad

The above was written on this site by our daughter who is 10 years. Her father ...
SharonAB profile image

Dorothy Thompson Can anyone tell me how to get an assessment for NHS continuing funding care initiated? I know I have asked before on this

blog but I am so frustrated and coming to the end of the line. My social worke...

hi everyone,finally got my dad sorted out about peg feeding,the peg nursing team came out to see him we sat him down and he listened to,

everything she said ,he even managed to slur out some questions to her on his o...
mrsfarringdon profile image

Would you consider?

After helping my mother complete her journey with PSP I find myself thinking of ...
Sugardart profile image

Gosh what to ask? well my main question is about heat fluctuations and how they are supposed to cause rigidity?

well hubby is supposed to be in the last stage whatever that means? but i have f...
mummybear profile image

mother in law.

Hi everyone, I just need to talk to people who are going through what we are goi...
stitchandknit profile image

An online party.??

on sunday 18 August at 1400 BsT to accommodate our Aussiefriends O900 their tim...
jillannf6 profile image

An Irresistible Force Meets this Old House

When an irresistible force such as you Meets an old immovable object like me Y...
CarlaL48 profile image

I really find this site difficult to use

I agree with all of you on the difficulties of this new site, it was so easy bef...
daparose profile image

WHY DOES THIS STUPID SITE PUT THE RESONSES TO THE COMMENTS AT THE END AND NOT UNDRNEATH WHERE THEY USED TO GO /

WHY DOES THIS SITE DO THIS NOW WHEN IT DID NOT DO IT BEFORE - ALSO IT MAKES THE ...
shasha profile image

A Special Day!

Yesterday, my niece and Mum's only grand-daughter got married :-) It was a wonde...
Kathy profile image

re training the brain

hi everybody do you think its possible to re train the brain to send messages d...
peterjones profile image

Strangers in a Grocery Aisle

The other morning, I had to run to the grocery store for a few items. It was ea...
CarlaL48 profile image

Dorothy-Thompson Has anyone got any advise for controlling saliva, preferably complimentary or alternative medicines rather than eye drops?

FATIGUE AND COGNITIVE RESPONSES

I've found that if my wife has a stressful day (no two hour nap mid-day) when ev...

Moaning - Revisited

I intended to make a brief mention about my wife's noise making, but I've expand...
Hidden profile image

I understand that swallowing is a problem at the end of PSP. Does everyone experience this or do some people not?

LyndaEllis profile image

The Value in Being Needed

Many years ago, I read "What Every Woman Should Know about Men" by the late Dr. ...
CarlaL48 profile image

hello can i just say a big thank you to you all who replyed to my post yesterday. its so nice to know there are so many people

who understands this horrible condition and the patients needs.A social worker c...

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