Frightened

[Julieandrog]

Have had to make the decision today that Rog is too ill to attend our niece's wedding on the 27th dec.

His deterioration has been quite rapid this week, no speech, just mouthfuls of food moved around his mouth, mobility poor, eyes stuck upwards , only able to be up for a couple of hours then looks like a corpse and weight dropping off him.

I have care arranged so i am able to go but with a very heavy heart.

IV antibiotics at home tomorrow prior to catheter change, girls are lovely , but no one understands.

Hate this for him.

Julie

[Heady]

Oh Julie, that's such a shame. Hope the antibiotics kick in quickly and Rog starts to improve a little.

Sending big hug and much love

Lots of love

Anne

[Yvonneandgeorge]

Oh Julie so sorry to hear this, hopefully things will change and he can make it for a short time, PSP is so hateful, maybe it is the start of a urine infection? No one really understands do they, if they haven’t been there, people just don’t now about PSP, even doctors. Sending you a big hug, I feel you need that and more. Yvonne xxxxx

[doglington]

What a disappointment, Julie. You were hoping it would be all right. Its a difficult stage, I know. So distressing for you both.

Big hug and hope he improves.

love from Jean xx

[Kevin_1]

Julie - Of course he can't go with all of those needs.

This illness is not at all nice. (Understatement). I've just come back from visiting Liz... She cannot get why she needs to be in a nursing home. She loves me to bits, but I am the horrid person who put her there. She asked to be moved to another home... Hey, this home was awarded 'best in the County' this year.

I hate this for her. However I am learning tough love... and it does not come easily to me with Liz.

OK - I've said nothing you didn't know. Just read it that I really understand the pain of holding the line.

Warmly

Kevin

[Satt2015]

I hate this for you both too!! I’m sorry Julie, I’m reading too many heartbreaking posts right now on here 😥 Agree no one understands apart from the dear folk on here...huge hugs sweetie pie x

[Careenh]

Heartbreaking💔 there are no words to describe what this horrible disease does to our loved ones. God bless you both. Xx

[Hidden]

I am so sorry Julie and really feeling for you right now. Sending you a massive bear hug and holding you tight, love M xx

[Marie_14]

Dear Julie I am so sorry to hear this. Nothing I can say or do to make it better. I can only hope that the antibiotics will help him. However I don't think he is in any condition to go to the wedding. So sad for you both. What a cruel cruel thing it is? Nobody deserves to die like this.

Hugs to you and take care if yourself as much as you can.

Love to you.

Marie x

[Katiebow]

This disease is so Sh-----y dear Julie, everything about it gets you some way. I'm so sorry you aren't able to go to the wedding together but as others have said it isn't worth putting him through the trauma of travelling and coping with a wedding, so sad. Try to enjoy yourself knowing you have someone caring for him.

Sending a great big hug, think you need one

Love kate xxx

[Greggles]

Oh Julie, so sorry. Look after yourself too. Love & hugs. xx

[abirke]

I'm sorry Julie. But don't let PSP steal the joy of the wedding for you. Go and enjoy and celebrate...maybe even cathch the bouquet and get jiggy with it...hahahah

[Spiralsparkle]

Massive hugs to you both.

Xx

[easterncedar]

Dear Julie - You and Roger have been a part of my life for so long, I really wish I could be there for you now. I know how this is. I know. Sending all the comfort there can be, and a warm hug. Love and peace, Sarah

[DoreenC]

This time last year we were in the same dilemma. Should we get mam out of the nursing home for Xmas. At the time it was so difficult to make the decision. She was so frail and poorly but she always loved the family Xmass we spent together. Now I know it was the right decision to leave her where she was warm and comfortable. She passed away 9 weeks later.I think once you make the decision it is easier to cope. Knowing when to give in is important fior you both lots of love to you both xxxxxx

[Hidden]

Julie

Do hope Roger improves and that maybe your able to enjoy the wedding.if nothing else make sure you kick up your heals even if it's brief.

Dee

[Richanne]

Glad you have arrangements in place so you can go, albeit alone.

And Roger - well he may improve dramatically on antibiotics. I've seen it happen. He sounds much like Jon who now sits doing nothing and gazing upwards, choking and coughing a lot now. But I'm so grateful he can still talk. It must make such a difference when you can't converse. Are you able to tell if Rog is upset being unfit to go to the wedding? (I know in that situation Jon would probably be glad of an excuse to cry off!)

I know how you feel though. It's another marker isn't it?

The wedding will do you good. You know that.

Rosemary xx

[41273416a]

Oh, all my heart hurts for you and Rog.

Love,Mary B.

[Cuttercat]

Dear Julie,

PSP Is so unpredictable, it never ends. Hopefully things will even out.

Cuttercat