Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for July 2015

Harvest time

Beware if you are driving in our narrow leafy lanes in Devon - around any corner you can be confronted by an enormous machine which would look more at...

Beware if you are driving in our narrow leafy lanes in Devon - around any corne...

•9 years ago

Meeting at last

Really pleased and nervous to hear we now have a best interest meeting arranged for Monday Aug 10th for my Mum in nursing home. I am hoping to bring both Mum...

Really pleased and nervous to hear we now have a best interest meeting arranged ...

•9 years ago

OBSESSION

Does anyone find that the person they are caring for with psp, obsess on one particular thing and can't seem to stop?

Does anyone find that the person they are caring for with psp, obsess on one par...

•9 years ago

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So the truth comes out

After a week of Brian sitting here with a face like a slapped backside very low in spirits so much so that i wanted to scream eventually i have cracked and had...

After a week of Brian sitting here with a face like a slapped backside very low ...

•9 years ago

Happy days brought on by buying a powerpack for husband's wheelchair!

Just wanted to tell everyone about the joy I have experienced with purchasing a power pack for my husband's wheelchair! Actually, my darling son bought the...

Just wanted to tell everyone about the joy I have experienced with purchasing a ...

•9 years ago

Apathy

I have noticed in this last week Brian has slept more and is just so quiet. I know he is normally quite and withdrawn but it seems so much more this week....

I have noticed in this last week Brian has slept more and is just so quiet. I kn...

•9 years ago

Exasperation

Does anyone else have any experience of the following. Ever since diagnosis 18 months ago my husband has been in denial, so we have frequent outbreaks of...

Does anyone else have any experience of the following. Ever since diagnosis 18 m...

•9 years ago

it is jill and i am back!

hi everyone ia m back iwht a vengeance now as my keyboard and compute rhav been playing up again since b4 we went away to yrokshrie for another break 4 weeks...

hi everyone ia m back iwht a vengeance now as my keyboard and compute rhav been ...

•9 years ago

New

Hi I am new to this. My father has recently been diagnosed with PSP and I was looking for others with experience and knowledge to chat to. He is not in the...

Hi I am new to this. My father has recently been diagnosed with PSP and I was lo...

•9 years ago

When is it time?

When is it time to place your loved one in a facility? I am thinking he would get better care somewhere else as I am no longer able to gently help him into bed...

When is it time to place your loved one in a facility? I am thinking he would ge...

•9 years ago

Alarm

Well just going to go to bed, and George fell over, I could not get him up, late to ring the children, I thought well let's use the alarm, pressed the button,...

Well just going to go to bed, and George fell over, I could not get him up, lat...

Yvonneandgeorge

•9 years ago

Summer ?

Well it looks like summer - (you can't see the wind ! ) Our 48th wedding anniversary tomorrow (29th July ) Bitter sweet under the circumstances - not quite...

Well it looks like summer - (you can't see the wind ! ) Our 48th wedding anniv...

•9 years ago

I'm in trouble!

Just got the new 4 wheel walker out of the camper and put both brakes on for J. Well one brake; the other snapped into 4 bits. (My heavy hand or Chinese...

Just got the new 4 wheel walker out of the camper and put both brakes on for J. ...

•9 years ago

A drug update for PSP

This is from Dr. Golbe's blog (psp-blog.org) . I concur with what he says, I am hoping for sunnier PSP clinic days soon as well.. ...I’m happy to report the...

This is from Dr. Golbe's blog (psp-blog.org) . I concur with what he says, I ...

•9 years ago

visit to optician

I visited an optician last week & he has raised doubts of my diagnosis not being PSP nor parkinson's - maybe some other neuro degenerative disease but which...

I visited an optician last week & he has raised doubts of my diagnosis not being...

•9 years ago

Hello

Hi my first blog in what I think will be many as I try to keep my sanity by putting fingers to keyboard and trying to let off a bit of steam. My dear Mum and...

Hi my first blog in what I think will be many as I try to keep my sanity by putt...

•9 years ago

An evening visitor.

Some people love them, some hate them. I just think this one is cute. It's the first time I've seen this little one. Adults visit regularly even though I...

Some people love them, some hate them. I just think this one is cute. It's the ...

•9 years ago

PSP Peg

Has anyone else had experience of having a PEG fitted yet and if so, how are you getting on with it, is it beneficial? the consultant has said mum needs it...

Has anyone else had experience of having a PEG fitted yet and if so, how are you...

•9 years ago

Disabled clothing

I have just had this company recommend to me for getting some trousers that are ideal for people that need hoisting etc. The company www.adaptawear.com hope...

I have just had this company recommend to me for getting some trousers that are ...

•9 years ago

Travel tickets

Just picked up our travel tickets to cyprus, feels good, I think George is also excited about going. Went down to north London to Pick them up, I had a few...

Just picked up our travel tickets to cyprus, feels good, I think George is also ...

Yvonneandgeorge

•9 years ago

What a difference a week makes!

Last week, this would have been the END!!! One of us would have had to move! Today, I laughed, well the air was blue, in front of my dear very "sweet" little...

Last week, this would have been the END!!! One of us would have had to move! T...

•9 years ago

Upsetting day

Not sure how to handle this problem. It was my day to attend the hospice today. Sitter was due and arrived half an hour after i left (she is his favourite...

Not sure how to handle this problem. It was my day to attend the hospice today. ...

•9 years ago

PSP and Blindness

Has anyone heard of PSP causing blindness.

Has anyone heard of PSP causing blindness.

•9 years ago

Good Day

Today I had to get my car an emissions test in order to renew my license plates. I drove the 40 km to where our son works as he is the parts manager and all...

Today I had to get my car an emissions test in order to renew my license plates....

•9 years ago

Stress the destroyer.

I first of all want to thank everyone for there tips posts. Really useful, thank you. Secondly, sorry it took so long. I have just managed to sell the...

I first of all want to thank everyone for there tips posts. Really useful, thank...

•9 years ago

Summer House

Summer house is finished at last somewhere quite to sit, hopefully I can have some quite time, and even get George up there. Hope you are all ok, Heady hope...

Summer house is finished at last somewhere quite to sit, hopefully I can have so...

Yvonneandgeorge

•9 years ago

Recently Diagnosed

Hello, i am looking for some advice for my nan as she has recently been diagnosed with PSP. My nan suddenly went down hill a 2 years ago, she had loads of...

Hello, i am looking for some advice for my nan as she has recently been diagnose...

•9 years ago

Where is everyone from

I was just wondering where abouts everybody lives i am in Surbiton Surrey UK

I was just wondering where abouts everybody lives i am in Surbiton Surrey UK

•9 years ago

NO EMAIL

Just to make everything perfect my email program is corrupt. Centurylink swears it is not on there end and so I just have to check everything on there web...

Just to make everything perfect my email program is corrupt. Centurylink swears ...

•9 years ago

Photo for Gypsywoman

Lynton and Lynmouth from Countisbury Hill

Lynton and Lynmouth from Countisbury Hill

•9 years ago

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