Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for January 2013

medicals

just had yet another medical for goverment approval that i am not faking my psp never mind i have only payed into system for 42 years the questions they ask...

just had yet another medical for goverment approval that i am not faking my psp...

•12 years ago

Fluttering Eyelids...cripes.

In the big picture of PSP, this is a nuisance symptom, at least for me; trying to keep things in perspective. What has now evolved into a consistent...

In the big picture of PSP, this is a nuisance symptom, at least for me; trying t...

•12 years ago

Co Enzyme Q-10; starting it today.

I haven't read any postings about this yet but will do so over the next few days. I saw my Neurologist yesterday. He was quite enthusiastic when I...

I haven't read any postings about this yet but will do so over the next few days...

•12 years ago

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First time of posting

I've read this site for a some time now and have found it very helpful knowing there are many people going through similar things to us. My husband was...

I've read this site for a some time now and have found it very helpful knowing t...

•12 years ago

"What If's...?!"

Pretty sure most of you will know what I'm referring to here...I've been doing it all of my life; sometimes it's worked for me, mostly against me, at least in...

Pretty sure most of you will know what I'm referring to here...I've been doing i...

•12 years ago

Anatadine side effects

My mum recently started taking Anatadine 100mg a day but had to stop after 6 days due to the side effects, her eyes would not close and got really upset. Has...

My mum recently started taking Anatadine 100mg a day but had to stop after 6 day...

•12 years ago

I've been on a memory med, Namenda, for 1 month. Has anyone experienced side-affects from this med, specifically chest pain?

•12 years ago

My Aching Heart...

...more like my squeezing heart. Late last week, I had 4 random incidences of short (a minute or less), but very painful, squeezings of my heart muscle....

...more like my squeezing heart. Late last week, I had 4 random incidence...

•12 years ago

DOPAVITE

DOES ANYONE KNOW ABOUT THIS SUPPLEMENT PLEASE AND IF IT WILL HELP US ?

DOES ANYONE KNOW ABOUT THIS SUPPLEMENT PLEASE AND IF IT WILL HELP US ?

•12 years ago

Medicine and Me Conference

Monday 22 April 2013 – from 1pm to 6pm Make the most of this chance to learn from one another and leading experts, at this exciting conference where the...

Monday 22 April 2013 – from 1pm to 6pm Make the most of this chance to learn ...

Partner•12 years ago

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Some links to swallowing material

I was looking around the net and here are some good links to some reading material with regards to swallowing issues. They are not specifically to do with PSP,...

I was looking around the net and here are some good links to some reading materi...

•12 years ago

UTI

My mother was catheterized with an in dwelling catheter several years ago as she was not able to empty her bladder and she was constantly requesting to go to...

My mother was catheterized with an in dwelling catheter several years ago as she...

•12 years ago

Thenews is good!

Hi all I start radiotherapy on30 jan for e3 weeks Good news was that.is the minimum amt And I dam on tamoxifen ( no probs with that either at the moment)...

Hi all I start radiotherapy on30 jan for e3 weeks Good news was that.is the m...

•12 years ago

Empathy In Reverse...

I was diagnosed with PSP 7 months ago. Wow. Seems like 7 years ago. This picture is of my Dad and my oldest daugher, Katy, a week before he died fom cancer...

I was diagnosed with PSP 7 months ago. Wow. Seems like 7 years ago. This pictur...

•12 years ago

Next installment......

My training blog - part 2! http://kathywblog.wordpress.com/2013/01/17/so-far-so-good/ Many, many thanks to all who have sponsored us! :-) Here are our...

My training blog - part 2! http://kathywblog.wordpress.com/2013/01/17/so-far-...

•12 years ago

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frustratrion and anger

my husband was diagnosed in 2007 with psp and is now in a nursing home he still tries to keep his indendence and will get annoyed at the staff who want to help...

my husband was diagnosed in 2007 with psp and is now in a nursing home he still ...

•12 years ago

In Italy just started a new trial with mesenchymal cells on PSP patient!

http://www.parkinson.it/test_farmacologici/partito_lo_studio_pilota_per_testare_le_staminali_contro_una_grave_forma_di_parkinsonismo.html

http://www.parkinson.it/test_farmacologici/partito_lo_studio_pilota_per_testare_...

•12 years ago

Time to log off.

As I wrote the title for this blog it occurred to me that it is a great, if corny, euphamism for dying. Anyway, enough of the dramatics. I have been blogging...

As I wrote the title for this blog it occurred to me that it is a great, if corn...

•12 years ago

Still waiting for that phone call...

Thank you everyone for all of the encouragement. I've been waiting for THE phone call but it hasn't come yet. This morning hospice nurse said they didn't know...

Thank you everyone for all of the encouragement. I've been waiting for THE phone...

blessedcaregiverinLA

•12 years ago

Neck Problems

Just I thought I would mention the neck problem associated with PSP. Some have mentioned it on this forum and I believe it exacerbates the swallowing...

Just I thought I would mention the neck problem associated with PSP. Some have m...

•12 years ago

i have doubt wether my mom has parkinsonism or psp

hi my mom is facing problem of falling backward from last year i.e jan 2012. Within few months her problem started increasing nd her movements became...

hi my mom is facing problem of falling backward from last year i.e jan 2012. Wit...

•12 years ago

signs of dying after a stroke in old age

Can some one please help my mother has had a stroke she is 92 has a nose peg in and there is a white mucas foamy !! swollen tongue she looks and sounds like...

Can some one please help my mother has had a stroke she is 92 has a nose peg in ...

•12 years ago

I read comments about people with psp and some say they must have the slow psp. Is there such a thing as slow psp

•12 years ago

still learning about psp do you lose your vision completely from psp

•12 years ago

End stages? not sure, any advice

Hi, I have looked after my mum for 3 years since my dad died. mum was diagnosed about 5 years ago. I do have careers that help me now as I cannot do it by...

Hi, I have looked after my mum for 3 years since my dad died. mum was diagnosed...

•12 years ago

Training journal

I have started a blog to chart my progress as I train for the London to Brighton Cycle ride I am doing with my sister to raise funds for the PSP association....

I have started a blog to chart my progress as I train for the London to Brighton...

•12 years ago

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Does anyone else with PSP have a problem with tension?

I wake up at 2am after 4 hours of sleep and rarely go back to sleep. From then on I am tense.

I wake up at 2am after 4 hours of sleep and rarely go back to sleep. From then o...

•12 years ago

differences between Lewy Body Dementia and PSP

Has anyone on here been given an opinion based on MRI and DaT scan results that it might be Lewy Body Dementia even with no signs of dementia and even though...

Has anyone on here been given an opinion based on MRI and DaT scan results that...

•12 years ago

i want to share this program for read text

hello everyone, i want to share this progam that help people to read digital text ,so copy a website like newspapers, books, websites etc and past it in the...

hello everyone, i want to share this progam that help people to read digital tex...

•12 years ago

End stage of PSP

I'm sitting here with my Mom who is in her last days. She was first diagnosed with CBD 2 years ago then PSP 1 1/2 years ago. We first started seeing symptoms...

I'm sitting here with my Mom who is in her last days. She was first diagnosed wi...

blessedcaregiverinLA

•12 years ago

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