Posts - PSP Association | HealthUnlocked

PSP Association

9,178 members11,302 posts

All posts for March 2022

Lack of sleep and PSP stage?

Hi everyone. This is a combo kind of post. I’m just trying to make some sense o...
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Hampshire Support Group update

The Hampshire Group meeting planned for Wednesday 30 March has been changed to a...
HelenPSPA profile image
Administrator

CBD and coughing

My husband Alan is bed bound and mainly immobile. He is sleeping around 18 hours...
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Distressing week -Covid & CBD

Hello, I have posted a couple of questions on here before, This is a bit differe...
bichonbear1 profile image

PSPA Podcast for carers

Did you know PSPA has a podcast? Nine episodes are available for you to listen t...
HelenPSPA profile image
Administrator

I'm "it" to!

My husband has had PSP for at least 6 years and I'm the only caretaker he has. ...
ladydog255 profile image

Weight loss

My husband has lost so much weight, he still eats lunch and dinner with a snack ...
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Grateful Heart in offering Independence

A wonderful good morning smile — Oh the independence she feels when she can feed...
bazooka111 profile image

Ignorance!!

My husband seems ignorant of the way his illness is going to go. He does not tal...
Wigwambob profile image

Eye not wanting to open

My.lpved one whomive been taking care of for 7 years yesterday couldn't open her...

Hemorrhoids and PSP

Hello. It’s been a while since my last post. With constipation comes hemorrhoid...
cayabrewer profile image

Urgency to open bowels

Hi, My dad has CBD & over the last couple of months or so he has the feeling he...
RW22 profile image

MUSIC THERAPY FOR ALIEN HAND

My husband who suffers from CBD is increasingly plagued by his hand clenching a...
Perrywrinkle profile image

Cherished moments

Human touch is so very important- and although Momma cannot verbalize, she sure ...
bazooka111 profile image

CHC Decision

Does anyone have experience of being told verbally that they were being recommen...
T-val profile image

Wheelchair renting

NHS couldn’t offer us a specialised wheelchair for my Dad so we contacted The Ca...
jmorrish profile image

Declining

Good morning, I was told yesterday by the hospice nurse that my husband may not ...
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PSP treats for patient

What kind of treats can I give to PSP patient
sad4me profile image

Not sleeping

My mum has PSP which is very hard in itself to take care with. Sleeping has beco...

shampoo alternatives

Not showering hubby every day, anyone have any experience with dry shampoo produ...

Always room for some fancy …

Sometimes it’s just takes a fancy glass that makes it feel special —- a new way ...
bazooka111 profile image

Steroid withdrawal syndrome

Also known as ‘red skin syndrome’. Does anyone know anything about it? It’s a te...

Any ideas with CBD

My dad was diagnosed with CBD in 2021. After many assessments and consultations ...
RW22 profile image

Any Sikh religion person speaking punjabi with PSP able to help?

My dad was diagnosed 3 years ago and my mum who can't speak English very well st...
Banta123 profile image

Q10 1200mg for PSP?

Hi everybody. It is my first time posting on this group. My mother in law was di...
DaniSS profile image

Looking for Carn Euny!

Carn Euny .... I was in contact with you recently about Bowen therapy options, b...

Tender Moments

My recent Facebook post, and I thought I would share this with all of you. I’m ...
bazooka111 profile image

PSP and blindness

My 74 year old husband has had PSP for several years and has suddenly lost his s...
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Bathroom Refit Advice

Hello. We are now at the stage with mum where we need to refit the bathroom to a...
bichonbear1 profile image

It’s the little things …

Tiptoe through the tulips with me! Happy girls are the prettiest! - Audrey Hepb...
bazooka111 profile image

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