Posts - PSP Association | HealthUnlocked

PSP Association

9,245 members • 11,345 posts

All posts for December 2019

It's been two weeks. A new year starts tomorrow.

Hello Friends, New Year's Eve afternoon here. Sandy has been gone two weeks as of yesterday. I am planning a church service, followed by Celebration of Life,...

Hello Friends, New Year's Eve afternoon here. Sandy has been gone two weeks as o...

journeyofjoy

•4 years ago

42 Replies

Happy New Year

Since we are a community spread across the world some folks are in the New Year or getting close. Happy New Year to everyone! Fingers crossed that 2020 will...

Since we are a community spread across the world some folks are in the New Year ...

Dadshelper

•4 years ago

20 Replies

Balance

Has anyone found a treatment that works for lack of balance?

tasha1944

•4 years ago

20 Replies

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Cough

Thank you to everyone who replied to my question. Next question : My husband has a very persistent cough, also seems to have a lot of mucus at times. Is this...

Thank you to everyone who replied to my question. Next question : My husband has...

tasha1944

•4 years ago

9 Replies

PSP Treatment

We live in a small country town and my husband is only able to see a neurologist every six months. At the last visit he said he thought John had PSP and an...

We live in a small country town and my husband is only able to see a neurologist...

tasha1944

•4 years ago

9 Replies

Sedation in PSP

Hi ,my Kathy is in hospital level care in a rest home ,todays visit was distressing for me as she held me close as much possible with limited arm movement and...

Hi ,my Kathy is in hospital level care in a rest home ,todays visit was distress...

Birdman34265

•4 years ago

10 Replies

Chest Cold -- Weak Cough

I trust all have had a wonderful holiday season. We have been hit with some pretty bad sickness in our household, and my Momma is about a week and a half into...

I trust all have had a wonderful holiday season. We have been hit with some pre...

bazooka111

•4 years ago

8 Replies

The end of this journey had come

My husband Kurt, passed to God on Christmas night. It was peaceful. So I share to give you hope that this can be the end for your loved one. Just was diagnosed...

My husband Kurt, passed to God on Christmas night. It was peaceful. So I share t...

susantigner

•4 years ago

16 Replies

Nuovo gladiatore accettorisposte di LTC IN ANY LANGUAGE

I am not sure what exactly this disease is or how it evolves, but I am going to beat it with natural methods and not with traditional medicines Any...

I am not sure what exactly this disease is or how it evolves, but I am going to ...

1anton4

•4 years ago

7 Replies

Communication aids

Thanks for the replies.I have looked on line at various things but I will take advice from her speech therapist before spending out a lot of money.

Thanks for the replies.I have looked on line at various things but I will take a...

acorneater

•4 years ago

3 Replies

The PSP Chronicles Volume II - Paperback Now Available

My second book is now available in paperback through Amazon. It may take up to 2 weeks for its expanded retailers to upload the files. There's more content in...

My second book is now available in paperback through Amazon. It may take up to 2...

daddyt

•4 years ago

4 Replies

losing the power of speech

Hi all,as my wife's speech gradually gets worse I was wondering if there is an I pad type device on the market that just displays the alphabet letters that can...

Hi all,as my wife's speech gradually gets worse I was wondering if there is an I...

acorneater

•4 years ago

14 Replies

PSP noises screaming while sleep

Hi everyone, This is my first post my name is Kora and my father has PSP we are at the advance stage now. I hope someone can provide advice. My father keep...

Hi everyone, This is my first post my name is Kora and my father has PSP we are ...

Kora82

•4 years ago

24 Replies

Christmas Solo

This is the first Christmas I am spending alone in 30 years. It is my choice to do so. Hope everyone has a good day.

This is the first Christmas I am spending alone in 30 years. It is my choice to ...

Hidden

•4 years ago

23 Replies

Merry Christmas to you all

To each and every person on this site may I wish you a very Merry Christmas To all those (like us) missing a loved one for the first time this year. Please...

To each and every person on this site may I wish you a very Merry Christmas To a...

Cazash

•4 years ago

2 Replies

Dad is farming the fields of Heaven

Dad was finally freed of PSP on 11/17/2019 @ 10:45pm. I want to share the eulogy my sister wrote for his funeral. She titled it Thank You God: Thank you all...

Dad was finally freed of PSP on 11/17/2019 @ 10:45pm. I want to share the eulog...

bgentges

•4 years ago

7 Replies

Deja Vu

Yesterday my MIL was having a bad day, she had her last round of chemo on the 18th so I chalked it, at first, up to the "feel good" meds given with the chemo...

Yesterday my MIL was having a bad day, she had her last round of chemo on the 18...

Dadshelper

•4 years ago

3 Replies

The PSP Chronicles Volume II Excerpt...

Just in time for the Holidays. eBook edition is now available on Amazon. The paperback will be a little while longer after the print-ready files are processed....

Just in time for the Holidays. eBook edition is now available on Amazon. The pap...

daddyt

•4 years ago

3 Replies

Things are moving fast...

Mum came out of hospital after another bout of pneumonia on Friday. She left there chatting and still eating OK. In 48 hours she has changed so much. Not able...

Mum came out of hospital after another bout of pneumonia on Friday. She left the...

VivienandMe

•4 years ago

3 Replies

Mothers Battle

This is mom early on in the disease. I would say maybe 7 or 8 years ago. Not sure. Hopefully the picture and this get posted together. Im trying to figure it...

This is mom early on in the disease. I would say maybe 7 or 8 years ago. Not sur...

Cwolpe

•4 years ago

3 Replies

Mother's Battle

I'm sorry I didnt respond to all of you. I have a broken arm and it just isnt easy typing or texting. I appreciate and love you all so much. You have helped me...

I'm sorry I didnt respond to all of you. I have a broken arm and it just isnt ea...

Cwolpe

•4 years ago

2 Replies

My lovely husband Paul passed away last night at 9:35pm

It’s all happened so fast. This time last year we still thought Paul had suffered a stroke as only his dominant left hand was affected, and then the symptoms...

It’s all happened so fast. This time last year we still thought Paul had suffere...

CLP71

•4 years ago

28 Replies

Mothers battle

Hey everyone. Its been awhile since i have been on. But i wanted to get every second of time in with mom. Im sorry to say she lost her battle with psp August...

Hey everyone. Its been awhile since i have been on. But i wanted to get every se...

Cwolpe

•4 years ago

17 Replies

Sandy left us yesterday.

It feels odd to type those words. Others in our group write similar words but I really thought we were a couple of years away from losing him, at least a year....

It feels odd to type those words. Others in our group write similar words but I ...

journeyofjoy

•4 years ago

59 Replies

Boutska still struggling

I wrote several months ago about my husband David, who was diagnosed with PSP last April in 2019. He has become totally apathetic and the only person who...

I wrote several months ago about my husband David, who was diagnosed with PSP la...

Boutska

•4 years ago

5 Replies

New symptoms PSP?

My wife has been suffering from PSP-RS for 7.5 years. Two days ago, after having breakfast with the usual ingredients: Coffee with milk and whole-grain...

My wife has been suffering from PSP-RS for 7.5 years. Two days ago, after havin...

LuisRodicioRodicio

•4 years ago

53 Replies

Biogen PASSPORT study discontinued

At the end of last week pharmaceutical company Biogen announced they would be discontinuing their PASSPORT study, developing a drug treatment for PSP. During...

At the end of last week pharmaceutical company Biogen announced they would be di...

HelenPSPA

Administrator•4 years ago

7 Replies

Husband looking good considering!

This was Thanksgiving Day....Bob looks really good considering we believe he has had this horrible PSP for probably 6-7 years. He doesn’t carry on any...

This was Thanksgiving Day....Bob looks really good considering we believe he has...

JubileeRanch

•4 years ago

10 Replies

CBD Clinical Trial

Hello all, My husband is entering the UCSF Clinical Trial for CBD this week (in California). He's going to meet one of the doctors who's an expert in the...

Hello all, My husband is entering the UCSF Clinical Trial for CBD this week (in ...

LostinHeadSpace

•4 years ago

29 Replies

Two years om

I revisit the site occasionally, staggered how many new names and faces starting on this terrible journey this illness takes us on. Two years since Rog left...

I revisit the site occasionally, staggered how many new names and faces starting...

Julieandrog

•4 years ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for December 2019

It's been two weeks. A new year starts tomorrow.

Happy New Year

Balance

Cough

PSP Treatment

Sedation in PSP

Chest Cold -- Weak Cough

The end of this journey had come

Nuovo gladiatore accettorisposte di LTC IN ANY LANGUAGE

Communication aids

The PSP Chronicles Volume II - Paperback Now Available

losing the power of speech

PSP noises screaming while sleep

Christmas Solo

Merry Christmas to you all

Dad is farming the fields of Heaven

Deja Vu

The PSP Chronicles Volume II Excerpt...

Things are moving fast...

Mothers Battle

Mother's Battle

My lovely husband Paul passed away last night at 9:35pm

Mothers battle

Sandy left us yesterday.

Boutska still struggling

New symptoms PSP?

Biogen PASSPORT study discontinued

Husband looking good considering!

CBD Clinical Trial

Two years om

Search posts

Latest poll

What are your main concerns as a carer?

Topics

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