PSP Association | HealthUnlocked

On Tuesday October 29th my mother passed away and PSP journey has ended. The journey of watching someone you love struggle with health issues can bring a mix...

Hi, I’m just wondering if anyone with PSP suffers from no smell and the lack of tasting food. This has been going on for a couple of months now. Has anyone...

Sadly my father-in-law's heath has rapidly declined in the last 3-4 weeks. His speech is mostly non-coherant (its a guessing game to try and understand him...

Hi all, I am just putting this out there to see what people’s opinions are of a recent request I made for a GP to visit. My husband is end stage CBD and...

I don't have any more questions for this forum. It has been so supportive over the last few years. My husband is, I hope, entering the last phase of this...

Dear all Just to say thank you to this forum regarding all help and advice. My dad passed Sunday 3rd November. I am grateful it was quick as we believed he...

A couple of weeks ago my father passed, putting an end to a 5 year journey that impacted him mostly but the family too. He is resting now and his final moments...

Hi I just need to have a rant and I'm sure you will understand.mum has been diagnosed with psp 2 years ago Mum is in a residential home ,but unfortunately her...

My mum died in 2022, having been diagnosed with PSP in 2020. She had originally been diagnosed with Parkinsons, I think around 2017. My grandmother, who died...

my wife with PSP hasn’t slept well for awhile, but recently she is going to bed at midnight (later than she did before) and getting up by 3am. Anyone else have...

I understand that PSP symptoms are random but I’ve just witnessed my husband pooing pellets on the floor. We’re struggling with his bladder already and he’s...

This is for all caregivers—past and present, patients, family, friends, and other loved ones. Many of you know I have been banging the PSP-CBD awareness...

Hi. My mum has PSP and has just moved into residential care. She is starting to get problems with swallowing. She has had the classic diagnosis journey -...

My lovely husband passed away recently after battling the insidious disease that is PSP for at least six years. Although heartbroken, I do take comfort in...

Hi all, My Mum is 73 with PSP and in a nursing home. Her latest weight was 37.2Kg😳 She has lost 3.7Kg in a month. She is on a puréed diet and thickened...

my poor mum has reached the stage where conversation is nigh on impossible….. yet she knows exactly what she wants to say!!! I’ve had phone calls from her...

Morning all it is now 6 months since my darling husband and soulmate passed away . Life without him is awful but I have to remember he’s at peace now. I want...

Hello all. My dad has only officially been diagnosed with Corticobasal Syndrome from Feb. I had my suspicions since May 2023 due to his Parkinsons rapidly...

I just watched a video of a young Dr talking about the uses of nicotine He recommended that if u use a 3mg patch it can reverse Parkinson’s nd it can cure...

Anyone else had experience with one parent resisting care for the other parent? Trying to manage everything themselves and failing? My mum diagnosed with PSP...

My husband has PSP and suddenly his heating has deteriorated. I have GP coming later to see if it is wax but am worried it might be a worsening of his PSP....

Hi , my husband was diagnosed with CBD in 2021 . Symptoms were maybe 2020. His left side off his body was effected ,he has been suffering for cramps in his...

Hi. My dad is in the advanced stage of PSP. He has been having more and more difficulty lately moving and swallowing and doing most things. We rushed him to...

My wife was diagnosed about a year ago but has had symptoms such as voice problems for several years. Her social anxiety is extreme; she can barely tolerate...

3 days of complete remission of PSP symptoms Hi, everybody! I’m still trying to find out how and why this happened to me. If someone of you went through a...

Further to my original post, I have included links to provide you with two examples of videos created for the Faces and Voices Campaign. Your submissions can...

My husband has badd edema his legs and feet are very swollen he also has pomphloxy which are bad blisters on his feet and hands. Does anyone else have this?

FYI: Found in the web: “ methazolamide (MTZ) - acetazolamide (ATZ) - Carbonic anhydrase inhibitors protect against tau protein build-up Scientists at the UK...

FYI: Found in the web: “ methazolamide (MTZ) - acetazolamide (ATZ) - Carbonic anhydrase inhibitors protect against tau protein build-up Scientists at the UK...

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