PSP Association | HealthUnlocked

PSP Association

9,152 members11,289 posts

Urine Retention in PSP

Hi, My husband drinks plenty of fluids and is hydrated but has inconsistent but ...
Millidog profile image

Recipe book/meal recommendations please

My husband (diagnosed with PSP July 2021) loves his food but lately eating has b...

Onset of severe tremor

My wife was diagnosed with PSP late 2021.She broke her hip in early February whi...
Wombatz profile image

farewell Sam

My husband is now free. He was diagnosed in 2016 and was spared of covid but P...
Mamalou59 profile image

CBD decline

Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit...
Araucana profile image

Pain - Clenched Fist

Hi Following on from a previous post and comments regarding a clenched fist, m...
Milocorn1 profile image

Rapid Onset of Symptoms

Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PS...
IPinkie profile image

Goodbye

This forum has been a great support for me,I didn't post very often as I seemed ...
Wigwambob profile image

Husband with PSP

I am a Carer for my husband who has been diagnosed with this condition in Novemb...
MontyLucy profile image

Connecting my Dad with others with PSP or similar in South East Wales, UK

My Dad (72 years old) was diagnosed with PSP around 2 years ago. He has express...

Yes No

In the big picture it is not a big thing, but there is one feature of PSP I'm st...
Bergenser profile image

Little tablets 🎶

Going through the medicine routine this morning I found myself making up a song ...
Bergenser profile image

Medication to comfort?

Today, my father learned he has PSP. We had known for some time and were tryin...
priest78 profile image

Struggling with Walking

Hi. My Mum was diagnosed with vascular Corticobasal Syndrome a couple of years ...
Milocorn1 profile image

Enablers

Hi all This is my first time posting. My husband was initially thought to have...
Blueberry95 profile image

free from psp

My husband is free from this horrible disease. He passed away 1/24/24 at 68. I ...
Kathylou62 profile image

Restless sleep

My husband was diagnosed with PSP in 2020. His sleep has become more restless la...

Physio therapist

My mum has adnavce physio therapist the community 'physiotherapist' just handed...
Xaiwal profile image

Eyelids

Hi, has anyone any tips for drooping eyelids, my husband has to throw his head b...

Respite recommendations - North Hampshire, UK

Hi everyone, can anyone recommend a hospice or care home that can offer respite ...

clenched fist

do others with PSP have problems with painful clenched fist an.dm if. So what do...
Tabytak profile image

Support groups

Hi everyone. My grandfather is about 2 years (from diagnosis) into his PSP but...
JusNeville profile image

Clinical Trial

I stumbled across this recent article about a new clinical trial - will be askin...
Bergenser profile image

wheelchairs for sale

I’ve just posted details of two wheelchairs on Gumtree. One is a wheeled armchai...
messier profile image

Neck Supports

Hi I am working with a gent with PSP , 3 years in, I wondered if anyone has any...
SimoOT profile image

Feeling lost

For last 4 days I've been trying to look after mum even took two days of work. B...
Xaiwal profile image

Other Support Groups?

Hi are there any other support groups/information groups for people with Progres...
SimoOT profile image

overdose

I was diagnosed Feb 1 2024. Is it possible to overdose on Co-Beneldopa 200 MG. ...
disilusioned profile image

Voice amplification

Good morning All. My husband’s voice has become so quiet that I’m struggling to ...
Joanne19 profile image

Dropped head syndrome

I'm looking for advice on how to deal with dropped head syndrome. This has now b...
Helper2 profile image
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About us

PSPA is a national charity offering information, practical and emotional support to people affected by Progres...

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