PSP Association | HealthUnlocked

Hi my mum is due to go to respite shortly with a view to being a permanent resident. it’s a very hard decision but it’s become a 24 care situation (she...

My Mums speech is getting worse, struggling to understand when she does and a lot of the time she can’t. She looks so upset but can anyone explain what it’s...

My husband has been genetic tested and the results take about 9 months to come back I am worried sick as we have a daughter. I haven't discussed it really...

Well, I've been reading posts here for the last few years and, although informative, I didn't think I'd want / need to post myself ... How things change! My...

Where do I start……. I cannot believe this network exists and how I wasn’t provided this information. Diagnosed in July 2021 and like most battled with the...

Hello everybody. My father, who has a PSP, still maintains some independence. He undergoes physiotherapy twice a week and is taking levodopa. Lately he has...

Myself and my daughter look after my 56 year old exhusband. His diagnosis was very complex as he has several conditions which started about two and a half...

Hi My husband is chronically constipated due to PSP. It’s been a major issue for about 2 years but it’s getting worse… he was averaging once every 5 to 8...

My husband was recently diagnosed with PSP, which comes on the tail of a stage 4 cancer diagnosis (he's in remission as of now). We're both already deep into...

My husband is suffering with chronic constipation. I am sure this is contributing to his mood, not sleeping and restlessness. He seems more confused not...

My mum Stella is 82 and has CBD I think she is in the later stages of the disease. But I’m not really sure what late stages are! She was finally diagnosed...

I had a call with Compass CHC this morning regarding possible assistance in applying for NHS funding for my husband. I have to admit I was shocked when the...

Hi everyone, I’m new to this forum so just wondered whether anyone could offer any words of wisdom. My dad was diagnosed with PSP at the beginning of the...

Hope to see a few of you there ‐------‐---------------------------------- We are pleased to invite you to our next face-to-face meeting on Saturday, 6 July...

My dad has sp and is I'm hospital with pneumonia which they are treating. He has to be on level 4 for food yet the hospital offerhom food he can't eat ,...

Quite a while ago someone posted about a documentary on Linda who is suffering from PSP can anyone help me find it on you tube please

Hello, My mum who is 79yo and in advanced stages of CBD and has been in nursing home for last 7 months needs a new wheelchair. It's been advised that she...

This flavor is one of my favorites - Salteeser. Sea salt caramel, light malted chocolate brimming with Malteesers - malted candy, covered in milk chocolate....

I posted a while ago re whether we convert my parents’ house into having a downstairs bedroom and shower room for my mum, who has CBD. Thank you so much for...

Hi , just wanted to tell you my husband who has PSP, has just been awarded fully funded CHC funding .I’m not going to say the process isn’t difficult or...

my husband is having a PEG fitted tomorrow. The nurse has given us two options for feeding - either a pump that runs all day or bolus (?) feeds 4 or 5 times a...

My mom is living in residential care, and have been for just over a year as her health has deteriorated rapidly, to the point she is now wheelchair bound and...

My husband has psp. I’m trying to figure out if he is dreaming or hallucinating. When he is asleep, sometimes he does hand movements, calls out the strangest...

I was recently diagnosed with PSP which explains the many falls I have been having. I have had problems with imbalance/falls for around 2/3 years, and have...

Great article....

Yeah, so I've been a little busy the last little while with The PSP-CBD Ice Cream Challenge, getting the manuscript ready for publication earlier this week and...

Has anyone any experience with Speakunique, please? My wife has just banked her voice and is waiting for the PSPA funding. On the Speakunique website it...

I found out today that the fourth installment of the PSP Chronicles is available on Amazon so I've ordered my copy Beyond... The PSP Chronicles...

I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle...

Good morning, I read about a case report of a patient diagnosed with PSP who had considerable improvement after using cannabidiol, is anyone using...