The PSP Association is a national charity offering information, practical and emotional support to people affected by PSP and CBD today, while...Read more
My Mum's in hospital!!!!
Satt20152 days agoPOPULAR
Is PSP usually initially diagnosed as Parkinson's Disease?
JantheNana2 days ago
My husband was diagnosed with Parkinson's 8 yrs ago and with PSP 1 yr ago.My question is-was it PSP all along or did the Parkinsons evolve i...
Update on Mum
Satt201521 hours ago
Bad news, Mum has a bowel blockage and get this, a hernia...
11 Replies4 Likes
Husband Recently diagnosed with PSP aged 41!
Karibu3 days agoPOPULAR
Hi everyone. I came across the PSP Association online. I have never written on any kind of forum before so this is very new to me...
Sad News regarding a Great Friend
BindiLeech4 days agoPOPULAR
Hi there everyone but especially ec...
32 Replies2 Likes
To all sons & daughters of PSP sufferers
Katet68a day ago
As you will know from my Dad, Georgepa's post we have had an exceptionally horrible couple of weeks as my wonderful Mum V enters what appear...
6 Replies11 Likes
1RobKa day ago
Georgepa2 days agoPOPULAR
Well it's been a while since I last posted , V was in the hospice a couple of weeks ago and stayed a week . We had a very difficult weeken...
23 Replies4 Likes
Everything good at this end
Kevin_13 days agoPOPULAR
Just thought to write to say...
38 Replies17 Likes
Pjgil6 days agoPOPULAR
Hi. My dad is in the early stages of PSP and over recent months he has had breathing issues...
Looking after Dad
LookingafterDad2 days ago
Hi, I've just joined this forum, my Dad has recently been diagnosed with PSP. It's all new to me (us) & as his full-time carer I'm guessing ...
Mom's final journey has begun...
mamaw196510 days agoPOPULAR
I hate saying these words...my Mom is dying. Wednesday she was fine (her fine) hospice nurse had been here for regular visit and all was nor...
26 Replies1 Like
New to a PEG
Yanno5 days agoPOPULAR
I follow this community and am very impressed by the support you all give to each other. It inspired me to push for a community especially ...
28 Replies1 Like
I do seriously wonder who the people at chc think they are??!!
Satt20153 days ago
As some of you may know my Mum became unwell late yesterday afternoon and has been in bed since 5pm yesterday, she has been sick a lot and h...
15 Replies2 Likes
Rocksbeba day ago
Not posted for a while. Hubbys eyesight so bad cannot see to p in the toilet. Feel so guilty, gave him an ultimatum - sit down to p or get a...
Quick question who governs the CCG?
Satt2015a day ago
I'm about to go MAD
Sharing a moment!
Headya month agoPOPULAR
Hi, just thought you would all appreciate this little story...
51 Replies17 Likes
I am not mad - I've been Kafkared.
Kevin_115 days agoPOPULAR
Franz Kafka - come home you got it so right...
42 Replies8 Likes
Cuttercat15 days agoPOPULAR
It's progressing quickly. Charles can't breathe so we have started low dose morphine. I haven't stopped crying all day...
Tillyhugs17 days agoPOPULAR
39 Replies1 Like
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