PSP Association | HealthUnlocked

Can anyone give me advice please? I have been diagnosed PSP, and been prescribed Sinemet but it doesn't agree with me. The side effects are not good. I am...

mum seems to be deteriorating daily over the last month. Her left arm is rigid and stays by her side, her posture is slumped over and tilted to the right, her...

Has anyone bought a japanese toilet for their bathroom to be used by someone with PSP? I am thinking of buying one for my husband to make things easier for...

… how can I help him not only accept what’s happening but get him to engage with others who are going through the same thing? Mum is his carer (married 55...

Hi all, It's so hard to write, but I just want to let you know that my dear FIL passed away on Friday 20th December 2024. Christmas and the start of 2025...

My husband has recently been diagnosed with CBD, He was struggling with certain things ie, buttons zips, holding things in his left hand. Our GP referred him...

Dear all, I’ve never posted before. My husband was diagnosed with Parkinson’s in 2013 and with PSP (finally) in 2017. He is a bit of a miracle - but that’s...

thank you all for replying to my post 3 days ago. I have a question about respite. My current concern about putting my husband into a care home or hospice...

My spouse was initially diagnosed as having Parkinson's Syndrome. In February a different Neurologist suspected that it might rather be CBD and this has just...

hi All, our mum has really gone downhill recently after taking antibiotics for a suspected chest infection. We stopped them as she was becoming unresponsive,...

No it isn't my husband who has it, it is ME and he basically doesn't accept it This site seems to have only good people who care are for someone I have...

I was thinking about you all today so decided to send you a Christmas wish. I know that for some of you you are still in the middle of the PSP/CBD chapter of...

hi my mum has been diagnosed with PSP, it’s taken me some time to reach out, so thought this group would be a massive help for me to deal with this.

Why do we hear so much about Rob Burrows......?.What about the same level ve support ..care and finance for PSP sufferers?...My only brother has this condition...

V best friend in Seville, Spain..with PSP end stage...there is NO palliative care avail..i am senior pall care nurse from UK.Recent DRUG CHANGES..VIA PEG TUBE...

Hi All, Has anyone experienced a massive sudden change (overnight)in their loved one with PSP and may be able to offer any ideas and advice. My husband went to...

My Mum is in a care home as a resident but was finally diagnosed with FTD (Frontal Temporal Dementia) plus PSP. She falls regularly - is covered in bruises -...

PSP-CBD, MSA and DLB awareness. Faces and Voices Campaign - Share your story and make a difference towards raising awareness, understanding and support for...

This forum really helps me to process - the advice and wisdom has been invaluable yet I still cannot make sense of it all. I try to box it but it overflows …...

Martin, my husband, was diagnosed in September 2023 but had symptoms since 2017. I’ve posted before about this but it’s especially painful at this time of...

I have been diagnosed with PSP. The problem is, you remove to much of their independence from them and you will do it forever. My wife, granddaughter and...

My wife of 55 years was diagnosed with Parkinson’s disease in 2012 in 2019. She was diagnosed as having M multiple systems apathy. In September 2024, she was...

Good reads;...

Hi everyone It's been quite a year for my poor mum 😞 Falls,speech rapidly detoriating and to top it off ripping some bone from her hip .so unfortunately they...

Be the change. https://www.facebook.com/share/p/1B5XceZy7g/ Tim

When I posted the photo of my Nativity Scene I realise that I actually forgot to add the story that I wrote to go with it so I have just alterred it slightly...

hi! do you know if Keller can improve RLS ? Thank you

Your attention is drawn to the following:https://www.pspassociation.org.uk/christmas/ If you have found the Association helpful, please give what you can....