PSP Association | HealthUnlocked

After a month long fight in hospital my wife could not fight any longer. Yesterday afternoon I removed her oxygen mask and lay with her as she drifted away....

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

My wife first went to hospital in early 2020 with a soft voice and her face looked as if she had had a stroke, in March 2022 she wrote an email to me which I...

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

Is anyone watching This Morning with the Salt Path couple?!

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

My mom, who had PsP, is now a star in the sky. The last stage was brutal. her husband and kids were there with her for this journey and we try and console...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

Not only has mum got psp ,been to the hospital today only be told by the heart specialist that she has severe heart failure as well .I know she is 86 years of...

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

As posted previously about my mum's eye sight ,but a new one appeared today .She has flashing lights in her eyes ,is this a common complaint with psp ??

my husband is 72 and was finally diagnosed with PSP in September 2023 after a steady decline for sometime in his mobility. His speech is slurred and difficult...

my mum is now having to be given fluids using a syringe 😭 drinking from a cup she can’t keep the fluid in her mouth it just runs out like she has no control....

Hi, This is my first post. My mum was diagnosed in March 2021 with PSP. I just wanted to share this link to see if anyone else had read this....

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

A friend of mine was diagnosed with CBD last year, but started with symptoms about 4 years ago. It started in her left hand, she lost control and dropped...

my father was diagnosed Psp.

Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to...