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PSP Association

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Husband progressing quickly

Hi! My husband is 68 years old. He was officially diagnosed with PSP IN 2020 , b...

Newly diagnosed: my husband was diagnosed 2 months ago with PSP and we cannot get into see the Chapel Hill Specialists. How can we get in?

My husband is declining quickly with PSP and local neurologist does not know any...

RIP Richard T Fuller

My husband passed away yesterday morning. He will forever be missed. Take care m...

Praying for peace without understanding.

Hello, I have followed along on this forum for a couple of years now. You have b...

Late stage

Good morning, Rick is probably on his way to see his family on the other side. H...

Any ideas to prompt chewing?

My wife has been finding it increasingly difficult to chew her food; her tongue ...

Anticipatory Grief is REAL

I find myself having days that are incredibly hard —- today is one of those days...

Continuing Healthcare Funding

Hi there, I’m new to the group my Step-Dad was diagnosed with PSP a couple of ye...

Constant runny nose

My husband has PSP and has started having a constant runny nose. Has anyone els...

Cravings for sugar in late stage PSP

Hello all. My husband has been wanting extra sugar for a few months. More syrup ...

The PSP-CBD Ice Cream Challenge 2022 Day 13

Day 13 - The Chocoholic... for the chocolate lover in you. Starts with Smucker'...

Gentle Hands

This is by far the most favorite activity I have done with my sweet Momma! Casti...

PSP best advice = Please Stay Positive

PLEASE STAY POSITIVE = PSP best advice IMPROVING PSP SYMPTOMS – MY PERSONAL JOUR...

The PSP-CBD Ice Cream Challenge Day 6

The PSP-CBD Ice Cream Challenge 2022 Day 6 - Sugar Shack - BANG BANG BABY Base -...

Eyes not responding

I am a full time carer for a lady with psp who was first diagnosed 2019 I have b...

The PSP-CBD Ice Cream Challenge

Day 19 - I'm Nuts About You Waffle Bowl, Vanilla bean ice cream, whipped cream,...

Sudden loss of ability to move?

Hello all, I haven't been posting much. But I'd appreciate your advice. On Fri...

Reality Check

It’s Monday … I choose JOY. I wanted to share something - Someone sent me a p...

The PSP-CBD Ice Cream Challenge 2022 Day 14

Day 14 - Bountiful Bowl of Goodness A scoop of vanilla bean ice cream paired wit...

The PSP-CBD Ice Cream Challenge 2022 Day 8

Oak Island -The Smith's Cove Excavation Seems appropriate for the finale of se...

Blue feet late stage

Hi, I'm new to this and I'm glad I found this site, it has so much information a...

The PSP-CBD Ice Cream Challenge 2022 Day 7

Day 7 - Tummy Teaser Small waffle bowl of vanilla bean ice cream, caramel syrup,...

Ed's Lace returning this PSP & CBD Awareness Week

This PSP & CBD Awareness Week, 23 to 29 May, we are pleased to be relaunching Ed...

The PSP-CBD Ice Cream Challenge 2022 - Day 15

Day 15 - The Ultimate Ice Cream Sandwich Between two halves of a Klondike bar. ...

The PSP-CBD Ice Cream Challenge 2022

Day 11 - The Big Tim Deluxe Ice Cream Burger A quarter pound of vanilla bean ic...

Easter JOY … a true gift

By far, my most favorite Easter morning in a very long time! The joy she expres...

The PSP-CBD Ice Cream Challenge 2022

Tee minus 4 days and counting until the PSP-CBD Ice Cream Challenge for the mont...

The PSP-CBD Ice Cream Challenge 2022 - Day 3

The Maltese Falcon Vanilla Bean ice cream Maltesers - malted candy center covere...

The PSP-CBD Ice Cream Challenge 2022 Day 2

Mount Maple Creme Mountain Base - softened Maple Crunch ice cream and walnut pie...

The PSP-CBD Ice Cream Challenge 2022

The PSP-CBD Ice Cream Challenge 2022 is on. Day 1 The Breakfast of Champions. Oa...
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