Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,336 posts

All posts for August 2022

Prolonged Muscle Contractions

Hello all, my partner who has CBD, quite late stage is experiencing quite prolonged muscle contractions mostly at night lasting anything up to 1 hour. During...

Hello all, my partner who has CBD, quite late stage is experiencing quite prol...

Atomic55

•2 years ago

6 Replies

Video calling

My mom is now unable to answer her phone and I was looking into devices which are simple and easy to use ie ..video chatting without my mom having to answer...

My mom is now unable to answer her phone and I was looking into devices which ar...

Hummingbird47

•2 years ago

4 Replies

To the person asking about wheelchairs., Our daughter who has PSP is 52. We got her a "Rock N Go" its great. works fine for her. Linda

Talking about PSP is hard. Our daughter was misdiagnosed with PD for 13 years. The meds were awful on her body. Finally after 4 neurologist said she had PD...

Talking about PSP is hard. Our daughter was misdiagnosed with PD for 13 years. ...

dengraphix

•2 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Considering Nursing home for husband with PSP.

I have been looking after my husbsnd since 2019 with PSP although the symptoms were apparent much earlier. I've seen a dramatic deterioration over the last...

I have been looking after my husbsnd since 2019 with PSP although the symptoms...

Joze121

•2 years ago

34 Replies

Five Years ago today, I lost my David

Time sort of flies. It was five years ago today that my David lost his fight against the evil PSP. I know I don’t come on here all the time any more, but I...

Time sort of flies. It was five years ago today that my David lost his fight ag...

Ratcliffe

•2 years ago

19 Replies

Ayurvera treatment for PSP

Does anyone have experience with Ayurvera treatment for PSP. My father in law found some places in India that are offering Ayurvera treatment for PSP. He is...

Does anyone have experience with Ayurvera treatment for PSP. My father in law f...

DaniSS

•2 years ago

13 Replies

wheelchair advice

hoping someone maybe able to offer some advice regarding wheelchairs. My mum currently has a standard lightweight collapsible chair but it’s no longer ideal,...

hoping someone maybe able to offer some advice regarding wheelchairs. My mum cu...

Walking18

•2 years ago

13 Replies

hiccups,coughing,sneezing

hello,my dad is having difficulty drinking now,he has had episodes of hiccups when he used to eat but ,now he is not eating at all just on fluids but the...

hello,my dad is having difficulty drinking now,he has had episodes of hiccups w...

GAngels

•2 years ago

1 Reply

Help finding Botox post please...

Hi, I read a post on here where a person described how their Botox injections to help with opening eyes only worked if they had the eyelids or eyebrows...

Hi, I read a post on here where a person described how their Botox injections t...

Zerachiel

•2 years ago

2 Replies

Introducing Miss August PSP Monthly....

Ruth (62) enjoys camping and art……. In truth she is clothed and there was no one around in the campsite and it has been VERY HOT in England…. We can just...

Ruth (62) enjoys camping and art……. In truth she is clothed and there was no on...

Richard33

•2 years ago

29 Replies

shortness of breath.

my husband is experiencing shortness of breath. They X-ray his lungs. And did blood work. They couldn’t find anything. Has anyone else experienced this for no...

my husband is experiencing shortness of breath. They X-ray his lungs. And did bl...

Hidden

•2 years ago

7 Replies

Making the Effort

Each day brings on a new normal. This image captures a beautiful moment —- Mom is the grandmother of 11, and soon to be great-grandmother of her third baby —...

Each day brings on a new normal. This image captures a beautiful moment —- Mom i...

bazooka111

•2 years ago

19 Replies

New here - Finding a nursing home

Hi all We have just started the process of finding a nursing home for my lovely mother in law, and are finding the process somewhat bewildering. I suppose I...

Hi all We have just started the process of finding a nursing home for my lovely...

Sox12

•2 years ago

8 Replies

Research Information Day 2023 - feedback wanted!

We’re planning another Research Information Day in February 2023 and we need your input. We already have a number of fantastic clinicians and researchers...

We’re planning another Research Information Day in February 2023 and we need you...

HelenPSPA

Administrator•2 years ago

7 Replies

excessive Eye Watering

Good morning, Everyone! My husband has been diagnosed with CBD he is now in about the 6th year of his battle just recently he has been complaining of his...

Good morning, Everyone! My husband has been diagnosed with CBD he is now in ab...

Indiana-Girl

•2 years ago

8 Replies

CBD and Seizure?

Hi, after lunch yesterday my mum fell asleep and has slept pretty much continuously since. Mum did not realise her friend paid a visit yesterday afternoon and...

Hi, after lunch yesterday my mum fell asleep and has slept pretty much continuou...

bichonbear1

•2 years ago

11 Replies

Suction devices

My wife is having increasingly frequent choking episodes even with thickened drinks etc., Are there any devices out there that can be used to suck out ant...

My wife is having increasingly frequent choking episodes even with thickened dri...

Scottoppy

•2 years ago

5 Replies

possible PSP for my mama

hi guys. I'm new here. My mom is 69. The last 3 years she has been falling and falling. Probably every 3rd day she would fall and always backwards on...

hi guys. I'm new here. My mom is 69. The last 3 years she has been falling ...

Sept9

•2 years ago

6 Replies

do we know if there is a test to explore early onset of PSP?

Dear all, I have lost my Mum of PSP last year. After years of anticipatory grief, which most of you all here are going through, I am left very disoriented...

Dear all, I have lost my Mum of PSP last year. After years of anticipatory gr...

Zibo

•2 years ago

2 Replies

Checking In Friends

I hope everyone is hanging in there. This is us - COVID CRUSHERS! We survived. Update… Swallowing is the chief concern now, and I have started to introduce...

I hope everyone is hanging in there. This is us - COVID CRUSHERS! We survived. ...

bazooka111

•2 years ago

19 Replies

why don't people understand a carer can be tired?

Hi friends just had another dreaded day. Not because of my mum who has PSP.My mother is everything to me it is hard looking after her on my own 24/7 I will...

Hi friends just had another dreaded day. Not because of my mum who has PSP.My m...

Cinderella80

•2 years ago

20 Replies

Pressie ideas?!

Hi all... I need to pick your collective brain again! Has anyone got any ideas for a birthday present for my dad??! He's in end stage PSP and can't move...

Hi all... I need to pick your collective brain again! Has anyone got any idea...

DoingwhatIcan

•2 years ago

9 Replies

Jaw problem sorted

Hi friends thanks very much to all friends who suggested and supported me during last 12 days when my husband had jaw problem. Yesterday he had an...

Hi friends thanks very much to all friends who suggested and supported me duri...

Jibjh

•2 years ago

3 Replies

throat noises

My husband has PSP and for some time now makes strange and sometimes very annoying throat sounds. Sometimes when he is eating, brushing teeth, or just watching...

My husband has PSP and for some time now makes strange and sometimes very annoyi...

ncgardener799

•2 years ago

6 Replies

Latest on PSP

Does anyone know of anything new with PSP treatments that are valid and working? My mom has been suffering from this for years, and it went misdiagnosed as...

Does anyone know of anything new with PSP treatments that are valid and working?...

lasquacks

•2 years ago

6 Replies

Hello, can you tell me what is PSP and CBD?

I have Bronchiectasis and wondering what is PSP and CBD

Lizzie34

•2 years ago

1 Reply

CHC success!

I wanted to share our success at getting CHC funding for mum! I’m so happy, in the end she had 1 ‘severe’ - (for mobility), 4 ‘high’ and 3 ‘moderate’ from...

I wanted to share our success at getting CHC funding for mum! I’m so happy, in t...

Hdee

•2 years ago

12 Replies

Stepping Back

After the last PSP&CBD Ice Cream Challenge at the beginning of this month until July 17th, which was International Ice Cream Day (yes, there were two) I...

After the last PSP&CBD Ice Cream Challenge at the beginning of this month until ...

daddyt

•2 years ago

58 Replies

Ativan helpful

Has anyone else found that Ativan helpful with freezing gait and other symptomsimmediately . My exhusband who has been on this journey for 4 years was...

Has anyone else found that Ativan helpful with freezing gait and other symptoms...

Sadinvermont

•2 years ago

1 Reply

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(133)

All things PSP Association(133)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2022

Prolonged Muscle Contractions

Video calling

To the person asking about wheelchairs., Our daughter who has PSP is 52. We got her a "Rock N Go" its great. works fine for her. Linda

﻿Considering Nursing home for husband with PSP.

Five Years ago today, I lost my David

Ayurvera treatment for PSP

wheelchair advice

﻿hiccups,coughing,sneezing

﻿Help finding Botox post please...

Introducing Miss August PSP Monthly....

shortness of breath.

Making the Effort

New here - Finding a nursing home

Research Information Day 2023 - feedback wanted!

excessive Eye Watering

CBD and Seizure?

Suction devices

﻿possible PSP for my mama

do we know if there is a test to explore early onset of PSP?

Checking In Friends

﻿why don't people understand a carer can be tired?

Pressie ideas?!

Jaw problem sorted

throat noises

Latest on PSP

Hello, can you tell me what is PSP and CBD?

CHC success!

Stepping Back

﻿Ativan helpful

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive

Considering Nursing home for husband with PSP.

hiccups,coughing,sneezing

Help finding Botox post please...

possible PSP for my mama

why don't people understand a carer can be tired?

Ativan helpful