Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for July 2023

Update

Its been over a week, since my father has been coughing. the care home doctor presecribed some cough mixture and it has reduced but is still there along with...

Its been over a week, since my father has been coughing. the care home doctor p...

OllieFisher1

•9 months ago

6 Replies

Please Help - London Marathon 24

Good evening all. I know some of you will remember me, and other will be going “Who is this?” Let me reintroduce myself. My name is Derek, and my partner...

Good evening all. I know some of you will remember me, and other will be going ...

Ratcliffe

•9 months ago

10 Replies

equipment

I have an Apollo 5 plus pressure relief mattress and a De Vilbis vacu aid 7314p that are no longer required. If you can use these you can take them for a good...

I have an Apollo 5 plus pressure relief mattress and a De Vilbis vacu aid 7314p ...

Javan

•9 months ago

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What does it look like?

Hello all, My dad has CBD and is in the very late stages of this cruel illness. I am just wondering if anyone that has lost a loved one to this illness can...

Hello all, My dad has CBD and is in the very late stages of this cruel illness...

Stormtrooper4

•9 months ago

15 Replies

ahem ahem ahem

Ahem, ahem, ahem....is what my father is doing. He is still the same otherwise, but its like he has a frog in his throat. He doesnt have a cold or cough...

Ahem, ahem, ahem....is what my father is doing. He is still the same otherwise,...

OllieFisher1

•9 months ago

12 Replies

Sertralin

My husband was prescribed this before his diagnosis as they thought he was depressed! when they found out he had a very rare form of CPD he didn't take this...

My husband was prescribed this before his diagnosis as they thought he was depre...

Hastings2021

•9 months ago

4 Replies

Incontinence pads: advice please

I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. Due to increasing mobility problems, he’s had a couple of accidents when he...

I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. D...

Hidden

•9 months ago

7 Replies

Fenasteride 5mg

Hi. My Dad is still mobile and still sharing a bed with my Mum but he's getting up 3 times in the night to go for a wee, disturbing her, who is is his main...

Hi. My Dad is still mobile and still sharing a bed with my Mum but he's getting ...

Koalagal

•9 months ago

1 Reply

Sertraline Advice

Hi Friends, My husband is taking 100mg Sertraline daily. He is very withdrawn and won't speak about his PSP condition or in fact speak much at all. Recently...

Hi Friends, My husband is taking 100mg Sertraline daily. He is very withdrawn an...

Millidog

•9 months ago

9 Replies

Life Changing

Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was...

Hi, this is my first time posting although I have been reading everyone's posts ...

Old_Hall

•9 months ago

21 Replies

I stop eating and drinking tomorrow

Im sorry I haven’t posted in a while. Things have been difficult physically. The body is a long way from the condition it’ll be in if I let this go on, but I’m...

Im sorry I haven’t posted in a while. Things have been difficult physically. The...

Kayelless

•10 months ago

57 Replies

Accusations and Constant Mistrust

My husband has PSP, diagnosed with it early 2022, before that he was diagnosed with MSA in 2021. Three weeks ago he went into a residential home as I couldn’t...

My husband has PSP, diagnosed with it early 2022, before that he was diagnosed w...

Redjune1

•10 months ago

23 Replies

Catheters

Hi everyone, Have heard mention of the use of catheters. Hadn’t really got that in my thoughts yet along with the PEG question. At what point is the catheter...

Hi everyone, Have heard mention of the use of catheters. Hadn’t really got that...

Araucana

•10 months ago

8 Replies

CBD and Dementia

Hi everyone, My mum with CBD has been living with us since April, she was forgetting things a bit before but has got a lot worse whilst with us. She will...

Hi everyone, My mum with CBD has been living with us since April, she was forge...

Araucana

•10 months ago

5 Replies

corticobasal syndrome (CBS)

Just diagnosed with atypical Parkinson’s disease. Not sure what to expect. Dr said it’s corticobasal syndrome. Am I in the right place? Vic

Just diagnosed with atypical Parkinson’s disease. Not sure what to expect. Dr s...

0neyellowbird

•10 months ago

9 Replies

A new Car for Mum?

My Mother was diagnosed with PSP earlier this year after a scan. She is in the early stages of the condition and her symptoms are mild, although she has fallen...

My Mother was diagnosed with PSP earlier this year after a scan. She is in the e...

bgduggan

•10 months ago

19 Replies

Physiotherapist assistance?

Hi everyone, has any fellow sufferer used a physiotherapist to help them walk, and improve movement ? I'm interested to know if it was helpful for them. I live...

Hi everyone, has any fellow sufferer used a physiotherapist to help them walk, a...

Sparkie44

•10 months ago

7 Replies

PSP & Meanness

My 72 year old husband was diagnosed in early 2019. Symptoms began in 2016. Lately he has been acting more paranoid than usual. He found and read my journal...

My 72 year old husband was diagnosed in early 2019. Symptoms began in 2016. Lat...

ladydog255

•10 months ago

2 Replies

Did anyone else have this?

I have had walking difficulties for about a year. At first, my legs lost strength after walking. This got progressively worse until my legs now both have no...

I have had walking difficulties for about a year. At first, my legs lost streng...

BrianTheElder

•10 months ago

12 Replies

Progression

It is 2:00 am and I am sitting here wide awake . My sleep cycle is all messed up, some nights I don't sleep at all but most nights I can get sleep around 4:00...

It is 2:00 am and I am sitting here wide awake . My sleep cycle is all messed up...

horseandwolf

•10 months ago

4 Replies

Emotions and PSP

Just wondering if anyone else has experienced this - my mum was diagnosed with PSP a good few years ago and has just moved to a minced and mashed diet and 2...

Just wondering if anyone else has experienced this - my mum was diagnosed with P...

Walking18

•10 months ago

11 Replies

choking device

Anyone had any experience of these https://femvity.com/products/choking-emergency-device-for-adult-and-children Mum is choking more and more but cannot see...

Anyone had any experience of these https://femvity.com/products/choking-emerge...

Araucana

•10 months ago

5 Replies

Power of Attorney and applying for PIP

Hi, I’m based in the U.K. The PSP association kindly referred my husband to DWP to see if we qualify for PIP which is the only non means tested benefit we can...

Hi, I’m based in the U.K. The PSP association kindly referred my husband to DWP...

Sun-flowerwearer

•10 months ago

14 Replies

Thank you! Merci!

My dad (68) passed away peacefully in his sleep last month. He was diagnosed with PSP last summer, and my mom and I only joined this community a few months...

My dad (68) passed away peacefully in his sleep last month. He was diagnosed wit...

MoonCrane

•10 months ago

7 Replies

PSP and pain//jaw lock

Hi all I have a very close relative in a nursing home right now and I’m really concerned about her being in pain. She is unable to speak, can’t really move...

Hi all I have a very close relative in a nursing home right now and I’m really ...

ilovedogs7

•10 months ago

10 Replies

Unaware of own self

My pop, in a resthome, now seems very unaware of his own self. Biggest indicator is when he is put on the toilet seat by resthome staff which is a big event...

My pop, in a resthome, now seems very unaware of his own self. Biggest indicato...

OllieFisher1

•10 months ago

5 Replies

need some guidance

my husband diagnosed in February with psp after thinking Parkinsons since 2016, He excessively sleeps not getting up until at least mid day, sweats...

my husband diagnosed in February with psp after thinking Parkinsons since 2016,...

Epace

•10 months ago

8 Replies

Last Stages

Sadly I lost my husband Richard to PSP two weeks ago. I'll miss him dreadfully, but the man he was, not the man he'd become , as he could no longer talk, was...

Sadly I lost my husband Richard to PSP two weeks ago. I'll miss him dreadfully, ...

SharonandRichard

•10 months ago

27 Replies

husband diagnosed with PSP

My husband had a bleed to the brain 5 years ago and fell causing a traumatic brain injury, over the years his mobility has got worse, his memory isn’t good and...

My husband had a bleed to the brain 5 years ago and fell causing a traumatic bra...

Bella9999

•10 months ago

4 Replies

Our CBD Journey With Dad

I would like to start this off with a brief insight to our CBD journey. I know we all have had to go through very similar caring procedures! But, I need to...

I would like to start this off with a brief insight to our CBD journey. I know w...

lilot

•10 months ago

2 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2023

Update

Please Help - London Marathon 24

equipment

What does it look like?

ahem ahem ahem

Sertralin

Incontinence pads: advice please

Fenasteride 5mg

Sertraline Advice

Life Changing

I stop eating and drinking tomorrow

Accusations and Constant Mistrust

Catheters

CBD and Dementia

corticobasal syndrome (CBS)

A new Car for Mum?

Physiotherapist assistance?

PSP & Meanness

Did anyone else have this?

Progression

Emotions and PSP

choking device

Power of Attorney and applying for PIP

Thank you! Merci!

PSP and pain//jaw lock

Unaware of own self

need some guidance

Last Stages

husband diagnosed with PSP

Our CBD Journey With Dad

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive