Posts - PSP Association | HealthUnlocked

PSP Association

9,250 members • 11,347 posts

All posts for January 2017

Hello all

I haven't wrote for a while, life pretty hectic which I don't have to explain to you all caring for someone with psp does that. Mums weight is now 6 stone...

I haven't wrote for a while, life pretty hectic which I don't have to explain to...

•7 years ago

How do you get into clinical trials?

What are the steps to take to get someone with PSP into a clinical trial? I have seen several clinical trials since a news release came out from CurePSP a...

What are the steps to take to get someone with PSP into a clinical trial? I have...

•7 years ago

Not sure I can cope anymore

Does anyone else's loved one with PSP verbally abuse and try to get physically abusive to you the carer ? I'm not sure how much more I can take from my mum !...

Does anyone else's loved one with PSP verbally abuse and try to get physically a...

•7 years ago

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Spreading?

This weekend the right leg started to do the same jerking movement as the left has been doing for a year. His cough sounds awful, but he still doesn't want to...

This weekend the right leg started to do the same jerking movement as the left h...

•7 years ago

Eye movement problem

I am very new to this site, but I've read most of the stories, and they left me feeling so much in awe for what all of you are going through. I'm Anne and I...

I am very new to this site, but I've read most of the stories, and they left me ...

•7 years ago

National Institute for Health and Social Care Excellence (NICE)

NICE are looking for lay members to join the supporting adult carers guideline committee. They are looking for: People with a personal experience of caring...

NICE are looking for lay members to join the supporting adult carers guideline ...

PSPA•7 years ago

Keith 19-11-45 to 29-01-2017

Today my darling husband Keith lost his fight with PSP, I feel so sad, numb and utterly lost, it is our 46th wedding anniversary tomorrow and I'll have to...

Today my darling husband Keith lost his fight with PSP, I feel so sad, numb and ...

•7 years ago

Help

I feel like I am going mad, it has been such a horrible week, feel like throwing the towel in and sending George to a care home, he has been so agitated, I...

I feel like I am going mad, it has been such a horrible week, feel like throwing...

Yvonneandgeorge

•7 years ago

Waiting for the other Shoe to drop.

Went to the cancer clinic on Wed. My cancer has progressed from my T6 vertabrae to my C2 . Must go back every 3 months or call if pain gets worse or I loose...

Went to the cancer clinic on Wed. My cancer has progressed from my T6 vertabrae ...

•7 years ago

PSP Care

Hi everyone, Do you know the steps for PSP illness? Times and symptoms? I think that there are many process but i don´t know them. Thanks in advance,

Hi everyone, Do you know the steps for PSP illness? Times and symptoms? I think ...

•7 years ago

Drug reduces Tau

This just posted by CurePSP "In addition to developing new compounds, Brannelly said the group is open to other approaches. Among the four treatments being...

This just posted by CurePSP "In addition to developing new compounds, Brannelly...

•7 years ago

swallowing problem and continues coughing

My mother is suffering from PSP from last 4-5 yr.now she is completely on bed and swallowing and coughing is big problem make her restless.abnormal sound in...

My mother is suffering from PSP from last 4-5 yr.now she is completely on bed an...

•7 years ago

A helpful gadget I just happened to find...

This is a neat, inexpensive product that isn't easily found when you're looking for adult aids because it's designed for handicapped or disabled children, not...

This is a neat, inexpensive product that isn't easily found when you're looking ...

•7 years ago

Tau breakthrough?

http://m.jpost.com/Business-and-Innovation/Health-and-Science/TAU-breakthrough-in-familial-dysautonomia-476087#article=10392OERCNDQ3RDJFMzY3MENDMDc3QjE5RjhBN0Y1

http://m.jpost.com/Business-and-Innovation/Health-and-Science/TAU-breakthrough-i...

•7 years ago

Mixed Day

Hi, today been absolutely great, but spent half of it crying. My box on wheels has gone! Good riddance to it and everything it stood for. It was cold, noisy...

Hi, today been absolutely great, but spent half of it crying. My box on wheels h...

•7 years ago

Being dead and dying before you're dead

I may sound very horrible today because I am just so sad and mad. My sister would rather talk to a Stephen minister than to me. My sister has nothing to say to...

I may sound very horrible today because I am just so sad and mad. My sister woul...

•7 years ago

Dad in process of being diagnosed

Hi there, I am new on here. Recently my Dad was diagnosed with suspected Parkinsons, however it looks more like PSP. We have an appointment with the...

Hi there, I am new on here. Recently my Dad was diagnosed with suspected Parkin...

•7 years ago

Corticobasal

Hi, I'm new here and to being a care partner..... We have been told they THINK my husband (he is 62) has CBD. We have been going to doctors for a year and had...

Hi, I'm new here and to being a care partner..... We have been told they THINK m...

•7 years ago

Widows and Orphans

As if it couldn't get worse! I've not lost my job. Heartless people. No health insurance, no salary, no pension and a husband who is terminally ill. What is...

As if it couldn't get worse! I've not lost my job. Heartless people. No health...

•7 years ago

Let's Talk

Today is Mental Health Awareness Day in Canada, dubbed 'Lets Talk', there is a stigma around mental health inthe world today. I suffered from post pardum...

Today is Mental Health Awareness Day in Canada, dubbed 'Lets Talk', there is a s...

•7 years ago

Now I have another thing to scream about.

Went to pick up our meds and and something did not add up. I had questioned before why I had to pay so much every time I picked up. I had previously been...

Went to pick up our meds and and something did not add up. I had questioned befo...

•7 years ago

No diagnosis yet. Possible PSP

Hi. My mum is showing signs of possible PSP but the doctors are not sure if it is. MRI and CAT scans clear. Symptoms are : slow speech and trouble finding...

Hi. My mum is showing signs of possible PSP but the doctors are not sure if it i...

•7 years ago

Canal Walk

Lovely day Sunday , bright light ,sharp air and a walk pushing V along the canal and couldn't resist this shot .

Lovely day Sunday , bright light ,sharp air and a walk pushing V along the ...

•7 years ago

Are we in the final days?

Hi, my dad's deteriorated particularly rapidly in the last few weeks and in the last few days has gone on a rollercoaster ride suddenly downhill. He can no...

Hi, my dad's deteriorated particularly rapidly in the last few weeks and in the ...

•7 years ago

Mum Passed away this morning 23 Jan 2017

Been a whole week juggling work hospital visits and home trying to sleep. runing backwards and forwards to the hospital to see mum for few hours after...

Been a whole week juggling work hospital visits and home trying to sleep. ru...

•7 years ago

Teeth Cleaning & Update

Greetings All Has anyone got any suggestions on how I can clean G's teeth, she can no longer brush them, just clamps he teeth shut on the toothbrush. She...

Greetings All Has anyone got any suggestions on how I can clean G's teeth, she c...

•7 years ago

The end has come

My brother Keith is walking on streets of gold, no pain just joy and happiness. Keith passed on Jan. 16. A big Thank-You All for your compassion and...

My brother Keith is walking on streets of gold, no pain just joy and happiness. ...

•7 years ago

CHC first checklist assessment

Hi all We have our first CHC checklist assessment in 2 weeks for Mum. The neuro nurse is carrying it out. I have tried reading up a bit on it but can anyone...

Hi all We have our first CHC checklist assessment in 2 weeks for Mum. The neuro...

•7 years ago

My father is now at peace from PSP

My father was diagnosed in August 2016 with PSP, having initially been diagnosed with Parkinsons in May 2015. Since August he deteriorated so fast, initially...

My father was diagnosed in August 2016 with PSP, having initially been diagnosed...

•7 years ago

First day alone

I have been so overwhelmed with company, I should consider myself lucky that my small family and even smaller 'circle friends' are so thoughtful. This has...

I have been so overwhelmed with company, I should consider myself lucky that my ...

•7 years ago

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