Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for July 2018

When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

•6 years ago

When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

•6 years ago

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When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

When can I expect to see a positive effect of madapar ??

•6 years ago

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Hard times

Find it hard to post on these forums....my Dad has PSP at the last consultants meeting he was told less than 12 months. We now have appointments this week with...

Find it hard to post on these forums....my Dad has PSP at the last consultants m...

•6 years ago

Last days

With my sister, I am meeting the Hospital Consultant this morning regarding my brother in law Victor. We expect it will be recommended that medical...

With my sister, I am meeting the Hospital Consultant this morning regarding my b...

•6 years ago

something to cheer us up

a recent reworking of a painting based on a waterolour of venice

a recent reworking of a painting based on a waterolour of venice

•6 years ago

You are a blessing to me!

As my symptoms change/increase (I have PSP-cerebellar ataxia with dementia, or so I’ve been told by a neurologist and a neuro/psych specialist) I have started...

As my symptoms change/increase (I have PSP-cerebellar ataxia with dementia, or s...

•6 years ago

Dads walking has gone alot worse

Im very upset. Since he fell hiis walking has gone worse.since he fell he is on madapar again only since two days. He definately has extreme slowness in his...

Im very upset. Since he fell hiis walking has gone worse.since he fell he is on ...

•6 years ago

Need recommendations, please

Hi everyone, we’ll mike fell again today, so we think it’s time to get a walker. Any pros and cons for the U Step walker or the Life Glider? Also what about...

Hi everyone, we’ll mike fell again today, so we think it’s time to get a walker....

•6 years ago

Another little giggle

We went to store the other day and it started raining as we were walking, very slowly . Jokingly I said your better run or you're going to get wet. He replied...

We went to store the other day and it started raining as we were walking, very s...

•6 years ago

Dentist and PSP

Hi all, we are still having constant battles with all things PSP. The latest hurdle we have is finding a Dentist that cater for PSP patients. We are based in...

Hi all, we are still having constant battles with all things PSP. The latest hur...

•6 years ago

Hello Jillann!!

Celebrity sighting! Jillannf6 liked one of my posts:-) Jillann, we've been wondering how you are and mention you often - so good to see you are still reading...

Celebrity sighting! Jillannf6 liked one of my posts:-) Jillann, we've been wonde...

•6 years ago

Beat me up with a very big stick? No thanks, I'll do it myself.

I've just had a read online about carer's guilt. Is it just the pages I have found? Or are they all so smooth and lacking any gut reality tone with regard to...

I've just had a read online about carer's guilt. Is it just the pages I have fou...

•6 years ago

Eyes always closed

My mom has been diagnosed with PSP and lives in assisted living. I've noticed her changing so much in the past few months. She was such an active person and...

My mom has been diagnosed with PSP and lives in assisted living. I've noticed h...

•6 years ago

What time is it?

Larry has started to lose track of time. He doesn’t believe the clock next to his bed or me when I tell him what time it is. The last two mornings he woke me...

Larry has started to lose track of time. He doesn’t believe the clock next to hi...

•6 years ago

Hi everybody, mum with PSP is having trouble useing rotunda due to her stiff arms , any medication ideas? Thankyou

Hi mum with PSP is having trouble with very stiff arms that won’t allow her to stretch out and use rotunda some days, any ideas???? Many thanks

Hi mum with PSP is having trouble with very stiff arms that won’t allow her to s...

•6 years ago

Psp versus parkinson..confused

Yesterday my dad fell on his back in the the bathroom. The nuroligist had said my dad is most probably psp. Does the fact that my dad fell on his head imply my...

Yesterday my dad fell on his back in the the bathroom. The nuroligist had said m...

•6 years ago

Dad fell on his head..is this normal? Im scared

I woke up im the middle of the night and saw my dad lying on his back in the bathroom. I immediately helped him back ti his bed. Apparantly he fell slipped in...

I woke up im the middle of the night and saw my dad lying on his back in the bat...

•6 years ago

The journey of life

Hello I'm not very good at writing down what it is I want to say so this may be a jumble. So Mum has been in the hospice just over four weeks now and is...

Hello I'm not very good at writing down what it is I want to say so this may be...

•6 years ago

Alarming change

My husband went to the hospital 3 days ago after he woke up and found His legs wouldn't bend. I tried to help him bend them but it was extremely difficult. He...

My husband went to the hospital 3 days ago after he woke up and found His legs w...

•6 years ago

Wretched disease

Hi folks This weather is really playing havoc with my cbd/ Parkinsonism. Saw the consultant on Tuesday as things have been getting worse quite quickly. He...

Hi folks This weather is really playing havoc with my cbd/ Parkinsonism. Saw the...

•6 years ago

Why professional reluctant to diagnose PSP?

Hi. New to this site. Husband eventually diagnosed with Alzheimers two years ago (NHS said was depression, but after privately funded PET scan and privately...

Hi. New to this site. Husband eventually diagnosed with Alzheimers two years a...

•6 years ago

A light in the night and coping with heat.

I do like this heatwave. It's made me eat less. I work less hard during the day. And it is too hot to sleep so I sit in the garden listening to the water...

I do like this heatwave. It's made me eat less. I work less hard during the day....

•6 years ago

A light in the night and coping with heat.

I do like this heatwave. I eat less. I work less hard during the day. And it's too hot to sleep so I sit in the garden listening to the water feature and the...

I do like this heatwave. I eat less. I work less hard during the day. And it's t...

•6 years ago

A light in the night and coping with heat.

I do like this heatwave. It's made me eat less. I work less hard during the day. And it's too hot to sleep. I sit in the garden listening to the water feature...

I do like this heatwave. It's made me eat less. I work less hard during the day....

•6 years ago

Explaining to the kids about CBD. . . after one overheard

A really unfortunate thing happened today . . .we're traveling (which is how I saw Anne!) and while my husband was having a private conversation with a family...

A really unfortunate thing happened today . . .we're traveling (which is how I s...

LostinHeadSpace

•6 years ago

Sister visits

Some of you may remember I wrote some time ago about my sister visiting and her rather peculiar habits . If you remember when cooking she would slice a lemon...

Some of you may remember I wrote some time ago about my sister visiting and her ...

•6 years ago

Study says Liver problems associated with causing Alzheimers. Could this also pertain to PSP?

hope this is correct this time https://newatlas.com/alzheimers-disease-liver-lipids

hope this is correct this time https://newatlas.com/alzheimers-disease-liver-lip...

•6 years ago

Food Supplements and 'other treatments' assessed.

Hi folks There is an organisation called Cochraine whose sole purpose is to publish proper scientific research on things like food supplements and medical...

Hi folks There is an organisation called Cochraine whose sole purpose is to publ...

•6 years ago

Im scared of the red marks on body :(

I took my dad to the seaside by car on a 10 hour trip by car.it was a long ride but we did have stops for snacks in between. Right that night when we arrived...

I took my dad to the seaside by car on a 10 hour trip by car.it was a long ride ...

•6 years ago

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