Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for December 2017

Wishing you a peaceful 2018

As 2018 approaches in the UK I wish you all a peaceful new year and the strength to face whatever it may bring you and those you love. Be kind to yourselves....

As 2018 approaches in the UK I wish you all a peaceful new year and the strength...

•6 years ago

King-j20@sky.com

My husband has PSP he is in a nursing home and cannot do anything for himself, he has to be fully hoisted from bed to a special chair. His teeth are starting...

My husband has PSP he is in a nursing home and cannot do anything for himself, h...

•6 years ago

Sudden Changes

In the past two days Dan can barely stand on his feet. We generally use two people to walk him to bed and up one stair to a chair that carries him to the...

In the past two days Dan can barely stand on his feet. We generally use two peop...

•6 years ago

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Chip is now in peace.

My husband lost his battle with CBD Dec. 28th 2017. Hospice started Dec 26th and he passed away the 28th. The last two weeks was really hard. The funeral will...

My husband lost his battle with CBD Dec. 28th 2017. Hospice started Dec 26th and...

•6 years ago

A few helpful thoughts

This was posted by Vicki Deem on the Yahoo group cbdg_support. I found it a good review for me and possibly helpful for the newbies. BTW Vicki's husband was...

This was posted by Vicki Deem on the Yahoo group cbdg_support. I found it a good...

•6 years ago

John

My darling husband died this afternoon. He was in the hospice and although I desperately wanted him home he was in the best place as he had constant attention...

My darling husband died this afternoon. He was in the hospice and although I des...

•6 years ago

Stable but Silent

Charles is stable right now. We are taking trazadone at night for sleep and it works quite well but the residual effect the next day is awful. He is so tired...

Charles is stable right now. We are taking trazadone at night for sleep and it ...

•6 years ago

COMFORTABLE NIGHTS

My husband wears Tena pants at night but finds them uncomfortable and turning over is difficult - has anybody any suggestions of how best to deal with this...

My husband wears Tena pants at night but finds them uncomfortable and turning ov...

•6 years ago

Balance and Falling Problems

Hello all my 16 yr old daughter woke up one day in July "17" and had balance problems on whole left side. This was where she was unsteady and kept falling...

Hello all my 16 yr old daughter woke up one day in July "17" and had balance pro...

•6 years ago

What to do?

After being in hospital,- Palliative Care for weeks, B is now in a wonderful nursing home. Twice, he has struggled to keep going, once, my son and I stayed...

After being in hospital,- Palliative Care for weeks, B is now in a wonderful nur...

•6 years ago

Itching/crawling sensation

My husband had been having a crawling/itching feeling on his all over his body. He says it feels like a million bugs are crawling all over him and itches like...

My husband had been having a crawling/itching feeling on his all over his body. ...

•6 years ago

When do we call for Hospice?

My question today is: When do we as a family, call in for Hospice for our PSP patient already in the nursing home and on a PEG tube feeding? Someone suggested...

My question today is: When do we as a family, call in for Hospice for our PSP pa...

•6 years ago

Another hospital trip

Well its been a hell of a couple of weeks my guy bowels are not cooperating at all,after another emergency Visit, only 9 hours this one . Dr gave him IV fluid...

Well its been a hell of a couple of weeks my guy bowels are not cooperating at a...

•6 years ago

Protective Helmets

More and more falls. Can anyone recommend a protective helmet to at least limit the damage. Thanks everyone x

More and more falls. Can anyone recommend a protective helmet to at least limit ...

•6 years ago

Chc review

Hi all, hoping you have had a peaceful christmas. I've just had a call from chc to say my Dad is to have an assessment as he's coming up to the end of a 12...

Hi all, hoping you have had a peaceful christmas. I've just had a call from chc ...

•6 years ago

Thank you so very much...

For welcoming me to this very friendly and knowledgeable forum. So many of you have responded to my posts with compassion and understanding. I am so very...

For welcoming me to this very friendly and knowledgeable forum. So many of yo...

•6 years ago

Understanding what psp is?

I though I had psp but my GP didn't understand or know anything on the subject but did say I had alhsimas so I did not take it in until I read about it in a...

I though I had psp but my GP didn't understand or know anything on the subject b...

•6 years ago

Newbie

I'm new here my father in law was Diagnosed with PSP in about 2010. My husbands Mom recently passed and was his Dad's caregiver so he has moved in with us. its...

I'm new here my father in law was Diagnosed with PSP in about 2010. My husbands ...

•6 years ago

Mouth discomfort

Like most people my wife has been told she has PSP having originally being told it was PD. My wife gets a lot of discomfort in her mouth, dry mouth pins and...

Like most people my wife has been told she has PSP having originally being told ...

•6 years ago

Treatment not helping

Dan has received an initial three day infusion treatment of high dose steroids. Mayo discovered he had a high amount of protein and immunoglobins in his brain....

Dan has received an initial three day infusion treatment of high dose steroids. ...

•6 years ago

Xmas greetings

Hi all Just would like to send love and wishes to you all and hope that you all get a good as possible xmas MERRY CHRISTMAS 🎄 to each and everyone of you...

Hi all Just would like to send love and wishes to you all and hope that you all ...

•6 years ago

Goodbye

Today is going to be very hard, celebrating Christmas without my mum around the table. Family was everything to Mum and she would want us to be together and...

Today is going to be very hard, celebrating Christmas without my mum around the ...

•6 years ago

Christmas Greetings

Thinking of you all and wishing you all a peaceful Christmas. X

Thinking of you all and wishing you all a peaceful Christmas. X

•6 years ago

PSP Information

What a great forum. It is so good to read other peoples experiences with PSP. My 82 year old dad was diagnosed with PSP two years ago. Mum who is currently...

What a great forum. It is so good to read other peoples experiences with PSP. ...

•6 years ago

Given Up

I've been away from the forum for a while now as we're going through a really rough patch with Mum. I think we've given up and lost the fight. Mum had a peg...

I've been away from the forum for a while now as we're going through a really ro...

•6 years ago

Memories are made of this

I have been going through a strange spell recently, I've suddenly started bursting into tears randomly over the silliest of things when they remind me of...

I have been going through a strange spell recently, I've suddenly started bursti...

•6 years ago

Uodate

John has rallied a little bit and is now having small spoonfuls of soup. Hospice says it is because he is young 69 and has always been fit. He might be able to...

John has rallied a little bit and is now having small spoonfuls of soup. Hospice...

•6 years ago

Christmas 2017

This year has seen many of us lose our loved ones to the relentlessness of PSP and so I wish you strength and good health to carry you all into the New Year....

This year has seen many of us lose our loved ones to the relentlessness of PSP a...

•6 years ago

Tomorrow, one year

Tomorrow, Christmas Eve, will mark a year since my husband left this earth. I miss him every day and will love him for the rest of my life. Psp is a cruel...

Tomorrow, Christmas Eve, will mark a year since my husband left this earth. I mi...

•6 years ago

Wishing all my precious friends

A peaceful Christmas and all the best for 2018. It is with a heavy heart, that I write. We have all had a difficult year caring for, or having lost our loved...

A peaceful Christmas and all the best for 2018. It is with a heavy heart, that I...

•6 years ago

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