Posts - PSP Association | HealthUnlocked

PSP Association

9,231 members • 11,333 posts

All posts for February 2022

Are there helpful hints to combat "freezing"?

My husband is in his 5th year with CBD. He sometimes experiences "freezing" when trying to sit down. He will get as far as a crouch and then his body won't...

My husband is in his 5th year with CBD. He sometimes experiences "freezing" whe...

Perrywrinkle

•2 years ago

16 Replies

Leaning forward

My brother has begun leaning over when walking and even when he is sitting. He says he doesn’t know why he can straighten up. It makes him sometimes speed...

My brother has begun leaning over when walking and even when he is sitting. He ...

Sistergail

•2 years ago

3 Replies

tremors shaking jerking

Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking...

Hello psp family so my dad has psp, now is peg fed, and has urethral catheter....

Mustafa128h

•2 years ago

7 Replies

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Saying Hello & Gratitude Moment

Stopping in to say hello to my dear friends! Mom and I sharing a selfie moment yesterday, after my return home from a four day business trip. Doesn’t she look...

Stopping in to say hello to my dear friends! Mom and I sharing a selfie moment y...

bazooka111

•2 years ago

18 Replies

Help with seeing.

My dad has PSP and can’t see very well in front of him while eating. We bought “Lazy readers read at 90 degree angle”. He was able to see what he was eating...

My dad has PSP and can’t see very well in front of him while eating. We bought “...

Grape1

•2 years ago

4 Replies

Former Football Coach on caring for his wife with PSP

Thought I would share this story about Tom Coughlin, former coach of the New York Giants on being his wife's caregiver, who has PSP....

Thought I would share this story about Tom Coughlin, former coach of the New Yor...

choclab511

•2 years ago

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🚩What do you wish others understood about PSP & CBD?🚩

During Brain Awareness Week, 14 to 20 March, The Neurological Alliance of Scotland is launching a new campaign to highlight what it is like to live with a...

During Brain Awareness Week, 14 to 20 March, The Neurological Alliance of Scotla...

HelenPSPA

Administrator•2 years ago

14 Replies

Legal provisions for later stages of PSP

Hi everyone we're looking into setting up legal provisions for when Bob(husband), condition may make them necessary to ensure his wishes are known and complied...

Hi everyone we're looking into setting up legal provisions for when Bob(husband)...

Plantnut

•2 years ago

12 Replies

Support Group for PSP Caregivers

Is anyone in a Zoom based support group for PSP Caregivers? I'm in one for LBD caregivers (second diagnosis) but am finding the symptomology different enough...

Is anyone in a Zoom based support group for PSP Caregivers? I'm in one for LBD c...

DB201

•2 years ago

1 Reply

Just wanted to share the progression of my mother’s condition

Hello, Since November it was hectic for my mother and for us her family. She was admitted in November due to severe dehydration and UTI infection then they...

Hello, Since November it was hectic for my mother and for us her family. She wa...

Blueclouds07

•2 years ago

7 Replies

PSPA Youth Support Group Meetings

Our Youth Support Group meet regularly via Zoom and they also chat using WhatsApp, in between meetings. If you are aged between 18 and 30 years old and you...

Our Youth Support Group meet regularly via Zoom and they also chat using WhatsAp...

HelenPSPA

Administrator•2 years ago

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Daily “zaps” and feeling I’ll

Can anyone shed any light on this problem? My husband was diagnosed with non motor PD 8 years ago He is usually ok during the mornings but at about 1500...

Can anyone shed any light on this problem? My husband was diagnosed with no...

KenbrookLondon

•2 years ago

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Parodies for PSP-CBD

February 28th is Worldwide Rare Disease Day....

daddyt

•2 years ago

12 Replies

My mom is deeply depressed. Recommendations ?

Mom, who has PSP, has been strong enough to make it to 89. She is still able to eat a regular diet but can no longer speak, her vision is greatly impaired, and...

Mom, who has PSP, has been strong enough to make it to 89. She is still able to ...

anniesfirst

•2 years ago

5 Replies

As The Sun goes down

Wishing you all Strength and love 💕 on your Journey’s

fishponds

•2 years ago

21 Replies

Trying my best

Hi, I have just joined. I'm not sure of the point of this post, but here goes... My mum was diagnosed with PSP in July 2020, after having symptoms for about 4...

Hi, I have just joined. I'm not sure of the point of this post, but here goes......

DaughterCare

•2 years ago

22 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2022

Are there helpful hints to combat "freezing"?

Leaning forward

tremors shaking jerking

Saying Hello & Gratitude Moment

Help with seeing.

Former Football Coach on caring for his wife with PSP

🚩What do you wish others understood about PSP & CBD?🚩

Legal provisions for later stages of PSP

Support Group for PSP Caregivers

Just wanted to share the progression of my mother’s condition

PSPA Youth Support Group Meetings

Daily “zaps” and feeling I’ll

Parodies for PSP-CBD

My mom is deeply depressed. Recommendations ?

As The Sun goes down

Trying my best

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive