Posts - PSP Association | HealthUnlocked

PSP Association

9,252 members • 11,348 posts

All posts for May 2019

Giving Praise this morning ...

Took a morning walk in a place called, Garden of the Gods in Colorado Springs, Colorado. Absolutely beautiful — a perfect time to express my praise and...

Took a morning walk in a place called, Garden of the Gods in Colorado Springs, C...

•5 years ago

FaceTime is the best!!

The most brilliant invention! FaceTime offers such true insight as to how my Mom is doing; something a simple phone just doesn’t achieve for me - I need to...

The most brilliant invention! FaceTime offers such true insight as to how my Mo...

•5 years ago

Learning from Loss

My husband, 55 years old, was just diagnosed with corticobasal syndrome this spring. He was a hospice chaplain and writer before he began to decline. He has...

My husband, 55 years old, was just diagnosed with corticobasal syndrome this spr...

•5 years ago

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Excessive Salvia

Hi has anyone had experience of using 1% atropine eye drops for excessive saliva? Doc is suggesting Hyocine patches but I think the side effects maybe worse...

Hi has anyone had experience of using 1% atropine eye drops for excessive saliva...

•5 years ago

Breathe ...

So, I had a speaking engagement tonight in Denver, Colorado ... After 25 years, I can do this in my sleep .... a complete stranger comes up to me and says,...

So, I had a speaking engagement tonight in Denver, Colorado ... After 25 years, ...

•5 years ago

Hoyer lift experience?

I am looking ahead and if/when my husband isn't able to transfer from one chair to another, I need a solution. I have a feeling this is coming soon. He quit...

I am looking ahead and if/when my husband isn't able to transfer from one chair ...

•5 years ago

Feet and leg edema

I'm new to this site and have so many questions so I'm keeping them coming. My husband has swelling in his feet, ankles and all the way to his knees. The skin...

I'm new to this site and have so many questions so I'm keeping them coming. My h...

•5 years ago

Lumbar spinal stenosis with PSP?

My husband also was diagnosed with severe lumbar spinal stenosis and it was recommended he have spinal fusion. We are not going to do that at this point. Can't...

My husband also was diagnosed with severe lumbar spinal stenosis and it was reco...

•5 years ago

Eye partially closed (sometimes)

A few times recently I've noticed my husband's left eye (everything on his left side is affected more than the right) is partially closed. He wakes up this way...

A few times recently I've noticed my husband's left eye (everything on his left ...

•5 years ago

Himalayan salt pipes

I came upon this group by accident but noticed some of the carers having problems with phelgm. I had tried everything including some of the advise given here....

I came upon this group by accident but noticed some of the carers having problem...

•5 years ago

Traumatized by psp!!!!

Hello, to everyone! It has been 8 monthes since I lost my beautiful mother to psp. A lot has changed in my world without her to say the least. The real...

Hello, to everyone! It has been 8 monthes since I lost my beautiful mother to ps...

•5 years ago

Thank you for your kindness

This past week has been a reality check for me. I appreciate all of you so very much. Your willingness to share in this forum, is a God send.

This past week has been a reality check for me. I appreciate all of you so very...

•5 years ago

The Ultimate Ice Cream Challenge

Hello out there in Forum Land. I meant to post this last week, but I've been a little cognitively challenged as of late. So, in this moment of clarity I'll...

Hello out there in Forum Land. I meant to post this last week, but I've been a l...

•5 years ago

A real shitty day, literally.

When I got up today I was planning on cleaning Larry’s bathroom. At 6:30 he announced he wanted to get cleaned up. He had been sitting in his chair since 11...

When I got up today I was planning on cleaning Larry’s bathroom. At 6:30 he anno...

•5 years ago

A rough few weeks

My mom has PSP. She is probably in about year 6. The past few months have been tough and the last few weeks have been miserable for her. She can’t sleep well....

My mom has PSP. She is probably in about year 6. The past few months have been t...

•5 years ago

A little late support for awareness week

I have been thinking what I could do for PSP Awareness week and decided to at last bite the bullet and update my Linked In profile (or as my husband calls it,...

I have been thinking what I could do for PSP Awareness week and decided to at la...

•5 years ago

Tough Day

Things have seemed to change overnight ... Moms legs are just freezing up, and moving from one room to another has become difficult. I am trembling, and trying...

Things have seemed to change overnight ... Moms legs are just freezing up, and m...

•5 years ago

Motion Disorder Specialist

Has anyone here met with a Motion Disorder Specialist? Was it beneficial?

Has anyone here met with a Motion Disorder Specialist? Was it beneficial?

•5 years ago

Party time...............

Yesterday was my granddaughters 4th birthday............. Happy to be there. Patrick. XXX

Yesterday was my granddaughters 4th birthday............. Happy to be there. Pat...

•5 years ago

1year on

Hi all Not been on as often as I should have but I hope that you all are staying strong which know is hard and most important the carers get some rest at some...

Hi all Not been on as often as I should have but I hope that you all are staying...

•5 years ago

Throwback moment ...

I thought I would share a picture of my parents about 3 years ago. My dad lost his battle with colon cancer two years ago, and my Mom took care of him all the...

I thought I would share a picture of my parents about 3 years ago. My dad lost h...

•5 years ago

The perfect idea ...

What a difference a bent fork can’t make! The things we discover when it becomes necessary ... I love these new utensils!!! Now, if I can just get Momma to...

What a difference a bent fork can’t make! The things we discover when it become...

•5 years ago

New to PSP or CBD ?

If you are new to PSP/CBD or are awaiting a diagnosis, can I remind you to perhaps investigate the possibility of NPH ? Normal Pressure Hydrocephalus (NPH) can...

If you are new to PSP/CBD or are awaiting a diagnosis, can I remind you to perha...

•5 years ago

Diary

Just wrote my diary for yesterday. All day at home caring. Afternoon catheter problems, sediment in the tube and then blocked. Called District Nurses who...

Just wrote my diary for yesterday. All day at home caring. Afternoon catheter pr...

•5 years ago

Not CBD after all

My husband was diagnosed initially with CBD but now the doctors are leaning more towards Lewy-body dementia. Person’s with CBD do not usually respond to...

My husband was diagnosed initially with CBD but now the doctors are leaning more...

•5 years ago

The perfect medicine ...

Baby kisses, messy, drooly, sweet perfection! Mom has had the toughest week thus far, realizing her legs are failing her. But, nothing pushes the blues away...

Baby kisses, messy, drooly, sweet perfection! Mom has had the toughest week th...

•5 years ago

New to this.. mum has CBD

Hi everyone.. my mum was finally diagnosed with CBD approx 2 years ago when she was 64. Symptoms started with a shaking right hand now it is useless. She...

Hi everyone.. my mum was finally diagnosed with CBD approx 2 years ago when she ...

•5 years ago

Peaceful afternoon on the porch

Today has been a beautiful day in Ohio! Spending the day on the porch with Mom & Sam ... I’m catching up on work, Mom is listening to an audiobook, and well...

Today has been a beautiful day in Ohio! Spending the day on the porch with Mom &...

•5 years ago

PSP Caregiver

Hi all, I'm a PSP Caregiver. I have taken care of two PSP patient 67 lady and 63 gentleman years of age respectively. The 67 year old lady passed away last...

Hi all, I'm a PSP Caregiver. I have taken care of two PSP patient 67 lady and 63...

•5 years ago

Holiday in Devon

My husband and I are having a lovely holiday in Devon. It will be the second year in the same beautiful bungalow with wonderful views out to sea. I was lucky...

My husband and I are having a lovely holiday in Devon. It will be the second yea...

•5 years ago

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