Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for October 2014

A good day

Took my wife for a push along the Goatwalk at Topsham on the Exe estuary this afternoon- sat in the warm sun and dozed with the faint smell of salt in the air...

Took my wife for a push along the Goatwalk at Topsham on the Exe estuary this af...

•10 years ago

Dealing with denial

Morning everyone. Sorry it's a bit early to be ranting but SO need to let off steam but also genuinely would appreciate your honest opinions. So last night my...

Morning everyone. Sorry it's a bit early to be ranting but SO need to let off st...

•10 years ago

Are we sure of the date today

4am I was asked is it time to get up yet my reply was a polite not yet hun. 4:30 I've slept a bit longer any chance of giving me a hand now. The reply was...

4am I was asked is it time to get up yet my reply was a polite not yet hun. 4:30...

•10 years ago

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New here Dad just dx with PSP :(

Hi I'm new here. Dad just dx with PCP a couple weeks ago, but he's shown symptoms for years. His family doctor thought it was Parkinson's, sent him to a...

Hi I'm new here. Dad just dx with PCP a couple weeks ago, but he's shown symptom...

•10 years ago

Trouble understanding

For those of you that are having trouble hearing what your loved ones are saying I got a type and talk for my aunt she types the sentance out for me to read it...

For those of you that are having trouble hearing what your loved ones are saying...

•10 years ago

psp - at home eye test

please ask your psp person to look up and the down ten times. have them look as hiigh up as possible and as low down as possible all ten times in about one...

please ask your psp person to look up and the down ten times. have them look as...

•10 years ago

Questions to ask

Please email me any question you have that I can put infront of the Docs to give them something to look at when we go down to UCSF, for example my aunts eyes...

Please email me any question you have that I can put infront of the Docs to give...

•10 years ago

Thanks

Thank you everyone for such a warm welcome to this site - I am sure it is going to help- my wife goes to bed every night at 9 so the rest of the evening is...

Thank you everyone for such a warm welcome to this site - I am sure it is goin...

•10 years ago

St. Louis MO USA

MsMariposa here, My sister, already severely crippled from RA was diagnosed two years ago with "dementia" and only this summer with PSP. Her family is in...

MsMariposa here, My sister, already severely crippled from RA was diagnosed two...

•10 years ago

Are we Salient / Mute Spectators

I have contracted cureppsp.org . what I gather no known treatment for PSP. I cannot explain in words how hard it is to see someone dying . I only wonder what...

I have contracted cureppsp.org . what I gather no known treatment for PSP. I ca...

•10 years ago

Hi there new to all this

My daughter has urged /told /ordered me to come on here and get to know people - so here I am . My wife was recently diagnosed withPSP but I think it has...

My daughter has urged /told /ordered me to come on here and get to know people ...

•10 years ago

How many Jills? And what can that mean?

How many Jills are here? Maybe it is the Jill destiny? Or the outcome of the Jack and Jill incident? Or the true meaning of "Jill" in Greek or Latin? Or a...

How many Jills are here? Maybe it is the Jill destiny? Or the outcome of the Jac...

•10 years ago

Amazing Carers

I've just spent 5 days with my Dad helping him care for my Mum recently diagnosed with PSP. I have witnessed first hand the definition of true love and I am...

I've just spent 5 days with my Dad helping him care for my Mum recently diagnose...

•10 years ago

Friction abrasion sore

My sister 81 year old with PSP not able to talk much feed herself very ridgid has woken up (in nursing home) with a abrasion size of a two pence price on her...

My sister 81 year old with PSP not able to talk much feed herself very ridgid h...

•10 years ago

Be the first to reply

RESEARCH

DAN LUONG IS THE CORDINATOR I TALKED TO DOWN AT UCSF HIS # IS 415-476-7578 ADDRESS IS UCSF MEMORY AND AGING CENTER 975 NELSON RISING SAN FRANSICO, CA 94158...

DAN LUONG IS THE CORDINATOR I TALKED TO DOWN AT UCSF HIS # IS 415-476-7578 ADDRE...

•10 years ago

Homeopathy Parkinson treatment

http://treatment.hpathy.com/homeo-medicine/homeopathy-parkinsons-disease/

http://treatment.hpathy.com/homeo-medicine/homeopathy-parkinsons-disease/

•10 years ago

Homeopathy : Does it has a cure for Parkinson ?

Check the link http://www.thehomeopathiccollege.org/tautopathy/a-case-of-parkinsons-disease-apparently-cured-with-homeopathy/

Check the link http://www.thehomeopathiccollege.org/tautopathy/a-case-of-parkin...

•10 years ago

Depressed.....

Dad was fitted with a peg in August end but his condition seems to have deteriorated very quickly. He seems to be making sounds all day through and gets spasms...

Dad was fitted with a peg in August end but his condition seems to have deterior...

•10 years ago

Care times

We have just been offered some care from a company called care UK. And the times they have said they can do is 10am for getting up and then 8pm for going to...

We have just been offered some care from a company called care UK. And the times...

•10 years ago

Acupuncture therapy

To all you can try acupuncture therapy it's a chinease treatment very small and thin needles will insert in certain point in your body for 20 to 30 min...

To all you can try acupuncture therapy it's a chinease treatment very small an...

•10 years ago

Research on PSP Parkinson

A lot of research is going on PSP Parkinson. Anyone is participating ? My mother has developed PSP and her condition is deteriorating rapidly and I feel I am...

A lot of research is going on PSP Parkinson. Anyone is participating ? My mother...

•10 years ago

Whoops!

Hubby asleep so at last I had time to go to the toilet. Glanced in the mirror and realised I hadn't brushed my hair this morning and it's now 10.45. There...

Hubby asleep so at last I had time to go to the toilet. Glanced in the mirror a...

•10 years ago

Trial

Kryste, You will be my first response...I wish you and your aunt safe trip and positive response to the trial. My husband was diagnosed with CBD in 2012. He...

Kryste, You will be my first response...I wish you and your aunt safe trip and p...

•10 years ago

PSP THE NEXT STEPS

HI ALL I HAVE BEEN WONDERING WHY THERE ARE NO NEW TRIALS FOR PSP POSSIBLE CURES HAVEE I MISSED SOMETHING ALONG THE WAY? I ONLY SEE MY NEURO ABOUT EVERY 12...

HI ALL I HAVE BEEN WONDERING WHY THERE ARE NO NEW TRIALS FOR PSP POSSIBLE CURES ...

•10 years ago

Doctor refused to visit.

I am so annoyed Jim not too good so got the paramedics out and he phoned the out of hours doctor who then refused to come out and just said send him to...

I am so annoyed Jim not too good so got the paramedics out and he phoned the out...

•10 years ago

Eyes closed - Botox?

Hi, Could anyone tell me a little more about Botox treatment? Mom has her eyes closed now for most of the time even when trying to find a cup of tea on the...

Hi, Could anyone tell me a little more about Botox treatment? Mom has her eyes ...

•10 years ago

Taste

Has anyone had trouble with how food taste? My husband says that most of the food he eats tastes like cardboard, hardly had any taste at all. Eating is one of...

Has anyone had trouble with how food taste? My husband says that most of the foo...

•10 years ago

Another chest infection

Brian has been out of hospital ten days after being admitted with a chest infection and he has got another one so he is back on antibiotics. I feel so cross...

Brian has been out of hospital ten days after being admitted with a chest infect...

•10 years ago

Eye problems

I haven't heard much about eye problems. My eyes are always sore and the lids close. I know about Botox for the lids closing, but I haven't heard much about...

I haven't heard much about eye problems. My eyes are always sore and the lids cl...

•10 years ago

Benefit

Can anyone tell me the benefit for having as DS1500 form? My mum was really ill recently and the medical staff said it was time for this form to be completed....

Can anyone tell me the benefit for having as DS1500 form? My mum was really ill ...

•10 years ago

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