Posts - PSP Association | HealthUnlocked

PSP Association

9,254 members • 11,349 posts

All posts for January 2023

8 weeks — Keep Going RIP a momma

It’s been 8 weeks since you left this earth my sweet Momma, and my heart and soul misses you like nothing I have ever experienced in my lifetime. I...

It’s been 8 weeks since you left this earth my sweet Momma, and my heart and sou...

bazooka111

•1 year ago

30 Replies

Thick saliva

How do you deal with it

Jpinckney2usmc

•1 year ago

7 Replies

Incapable to brush teeth

Hello, My father has the last couple month been unable to not bit down on the toothbrush, making it almost impossible to brush his teeth. He also cant just...

Hello, My father has the last couple month been unable to not bit down on the t...

darfon

•1 year ago

10 Replies

Want to take advantage of all our features? Just log in!

Bl--dy Wheelchair advice needed

Hi All, just had wheelchair delivered nhs standard variety with brake which is good for husband. Whilst the need isn't urgent I can see decline and need just...

Hi All, just had wheelchair delivered nhs standard variety with brake which is g...

Millidog

•1 year ago

23 Replies

Journeys end

Well after 6months in hospital, dad, last Friday, finally moved to his forever care home. It was top of our list so couldn’t believe he got a room (it did take...

Well after 6months in hospital, dad, last Friday, finally moved to his forever c...

Catski78

•1 year ago

34 Replies

In home care organisations and other support services in West Dorset

Thanks to everyone for your continued advise and helpful insights. I wondered if anyone is based in West Dorset a bit of an outpost for many organisations and...

Thanks to everyone for your continued advise and helpful insights. I wondered if...

Millidog

•1 year ago

5 Replies

How are we still here ?

Bloody hell, still here, digging in ,being strong waiting for whatever is next. Thankyou to everyone who opens their hearts and shares their experiences of...

Bloody hell, still here, digging in ,being strong waiting for whatever is next. ...

MRSYafffle

•1 year ago

17 Replies

Advice please - CBD

Hi all Just wondering if anyone can offer any words of advice. My dad has CBD and has recently been in hospital for 6 weeks. He has now been released home...

Hi all Just wondering if anyone can offer any words of advice. My dad has CBD ...

Stormtrooper4

•1 year ago

13 Replies

Muscle cramping/pain w/ PSP

My sis in law has PSP. What success has anyone had (what helped) with muscle cramps in the legs? She is taking Baclofen & now the dr has added Norco for the...

My sis in law has PSP. What success has anyone had (what helped) with muscle cra...

PSPfight22

•1 year ago

9 Replies

Use of a hoist

the resthome has started using a hoist to move my Dad. Only twice so far. I was just wanting to guage from others how long the use of the hoist was in place...

the resthome has started using a hoist to move my Dad. Only twice so far. I wa...

OllieFisher1

•1 year ago

9 Replies

Gastrostomy

My mother is suffering from PSP for last 6 years. She has already lost most of her abilities due to disease. Last October, her doctor prescribed to instal...

My mother is suffering from PSP for last 6 years. She has already lost most of ...

Dend88

•1 year ago

5 Replies

Early days

II can’t type anymore I can’t type anymore considering I was a shorthand typist in the early days. know what’s happened to me.The microphone thing on the...

II can’t type anymore I can’t type anymore considering I was a shorthand typist ...

Grannyeliza

•1 year ago

4 Replies

Preparing for end of life care - what to discuss and where to get help

Hi, As my Mum approaches the end of journey with PSP she wants to prepare her end of life care while she can just about communicate. What did you discuss...

Hi, As my Mum approaches the end of journey with PSP she wants to prepare her e...

Jkc1

•1 year ago

22 Replies

Some days it's too overwhelming

Hi friends hope you are all keeping strong. I'm writing this as my mum is sleeping. She will only be asleep for an hour then she and I will be awake all night...

Hi friends hope you are all keeping strong. I'm writing this as my mum is sleepi...

Cinderella80

•1 year ago

13 Replies

Mum’s CBD progressing

Haven’t been on here much but know this forum is going to be a mental lifeline at some point - thank you all in advance. Mum diagnosed CBD in Dec 2020 but...

Haven’t been on here much but know this forum is going to be a mental lifeline a...

Araucana

•1 year ago

8 Replies

GIVING AWAY FOR FREE

Hello everybody I’m new here. I spoke to a lovely lady from the PSPA yesterday who told me of this amazing community. Basically I lost my Nan on Friday to PSP...

Hello everybody I’m new here. I spoke to a lovely lady from the PSPA yesterday w...

Lauren61288

•1 year ago

3 Replies

Electric wheelchair advice

Does anyone have any recommendations for an electric wheelchair? My stepdad (who has PSP) has been given a wheelchair through the NHS. My mum can push my...

Does anyone have any recommendations for an electric wheelchair? My stepdad (who...

Naturegeekjess

•1 year ago

16 Replies

Medicinal marijuana

Hi everyone, my stepdad has PSP and we have heard that there is evidence that THC can help with symptoms. He is already taking CBD, but it doesn't seem to do...

Hi everyone, my stepdad has PSP and we have heard that there is evidence that TH...

Naturegeekjess

•1 year ago

2 Replies

No Help

Between Christmas and New Year my husband had 7 falls, three within half an hour. I ended up phoning for an ambulance which turned up 12 hours later. They...

Between Christmas and New Year my husband had 7 falls, three within half an hour...

Redjune1

•1 year ago

7 Replies

Coping with a decline in mobility

My wife was diagnosed with PSP 18mths ago. Like many others her balance has deteriorated rapidly. We have been advised to prepare for single floor living. I...

My wife was diagnosed with PSP 18mths ago. Like many others her balance has dete...

Wombatz

•1 year ago

13 Replies

Just tired?

Mum has been bed bound since Christmas Day but has managed to eat a little better than earlier in Dec when her swallowing just stopped... then it returned....

Mum has been bed bound since Christmas Day but has managed to eat a little bette...

T-val

•1 year ago

9 Replies

Desperate for sleep advice

Hi friends I would be so grateful if anyone has any advice on getting their loved ones who have PSP to sleep through the night. As much as I love my mum it's...

Hi friends I would be so grateful if anyone has any advice on getting their love...

Cinderella80

•1 year ago

24 Replies

I dont know what do do

Hi Im new to posting on here but have gleaned a lot of advice from all of you in the last few months. Now im lost. I used to live with my son but gave up work...

Hi Im new to posting on here but have gleaned a lot of advice from all of you in...

Dorajinx16

•1 year ago

31 Replies

Fly high Mum - CBD 12 days no swallow

Sadly, my mum, aged 73 passed away peacefully on Thursday, 12 days without food and fluids. I was by her side everyday and I hope that being there gave her...

Sadly, my mum, aged 73 passed away peacefully on Thursday, 12 days without food ...

broadie79

•1 year ago

15 Replies

transfers

hello, does anyone have any experience in using a floor transfer turntable? My husband is over 15 stone and is finding if difficult instructing his legs and...

hello, does anyone have any experience in using a floor transfer turntable? My h...

Rose1sunflower

•1 year ago

19 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for January 2023

8 weeks — Keep Going RIP a momma

Thick saliva

Incapable to brush teeth

Bl--dy Wheelchair advice needed

Journeys end

In home care organisations and other support services in West Dorset

How are we still here ?

Advice please - CBD

Muscle cramping/pain w/ PSP

Use of a hoist

Gastrostomy

Early days

Preparing for end of life care - what to discuss and where to get help

Some days it's too overwhelming

Mum’s CBD progressing

GIVING AWAY FOR FREE

Electric wheelchair advice

Medicinal marijuana

No Help

Coping with a decline in mobility

Just tired?

Desperate for sleep advice

I dont know what do do

Fly high Mum - CBD 12 days no swallow

transfers

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive