Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for July 2020

Emergency Alert Cards

Our Emergency Alert Cards are useful resources to keep on your person. The cards are wallet and purse sized and contain information about your symptoms, have...

Our Emergency Alert Cards are useful resources to keep on your person. The cards...

Administrator•4 years ago

Why I support PSPA's Summer Raffle

"My journey started more than six years ago when my husband began to show problems with balance, unsteadiness, eyesight and behaviour. "Doctors, GP's and...

"My journey started more than six years ago when my husband began to show proble...

Administrator•4 years ago

Gradually going blind

A neurologist recently told us that gradual loss of sight is not commonly associated with late-stage PSP. We're interested in the experiences of others in a...

A neurologist recently told us that gradual loss of sight is not commonly associ...

•4 years ago

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Muzzy Feeling

Hello fellow members. I havent posted very much at all on here as I am quite new to the group, but I have learnt an awful lot from your comments. My husband...

Hello fellow members. I havent posted very much at all on here as I am quite new...

•4 years ago

Play back our 'Ask the Experts' Q&A session

If you were unable to attend our Q&A session with Neurology Consultant, Dr Boyd Ghosh, and APS Specialist and Specialist Physio, Jade Donnelly, you can now...

If you were unable to attend our Q&A session with Neurology Consultant, Dr Boyd ...

Administrator•4 years ago

Expecting the Worst.

I am coming up to 75years of age and a single father of two grown sons,in their late 20,s,still at home. I have had a balance issue for about 10 years,and...

I am coming up to 75years of age and a single father of two grown sons,in their ...

•4 years ago

The Humble Bumble

Just a Bee in the Garden for you all to see , Have the best day you can everyone .So much wonder in nature from Maggie xxx

Just a Bee in the Garden for you all to see , Have the best day you can everyone...

•4 years ago

Masked Impromptu Reunion

If you could see my Mommas face in this picture ... She is really missing her family, so on the way home from the lake house (which is exhausting in itself,...

If you could see my Mommas face in this picture ... She is really missing her ...

•4 years ago

Life with my loved one.

It’s so hard sometimes because I think he is still in there and knows what’s going on just can’t express it. Like he knows he has psp and FTD and that is why...

It’s so hard sometimes because I think he is still in there and knows what’s goi...

•4 years ago

Closure of the eyelids in PSP

Hello I'm a new member. My wife has been living with a genetic form of Frontotemporal Dementia for around 10 years. Late last year she was given a diagnosis of...

Hello I'm a new member. My wife has been living with a genetic form of Frontotem...

•4 years ago

Medications for cbd

What meds do you take for CBD..my mum takes sinemet 4 times a day ..betmega in the morning and stilnocht sleeping tablet at night...mirap at night and lexepro...

What meds do you take for CBD..my mum takes sinemet 4 times a day ..betmega in t...

•4 years ago

Anyone from Ireland on here

Can i ask..if there anyone from Ireland on this forum...my mum has CBD misdiagnosed 5 years ago with parkinsons for 2 years...i feel so isolated as the doctors...

Can i ask..if there anyone from Ireland on this forum...my mum has CBD misdiagno...

•4 years ago

Sensory activity using water beads

This is a great relaxer for my Momma - thought I would share! We have discovered "water beads" ... She absolutely loves them, and I am talking mesmerizing, as...

This is a great relaxer for my Momma - thought I would share! We have discovere...

•4 years ago

Update on lockdown

I can’t believe it’s been almost 5 months since I last saw mom in person. I remember trying to talk myself into patience of waiting just 3 weeks until...

I can’t believe it’s been almost 5 months since I last saw mom in person. I reme...

•4 years ago

PSPA Online Summer Raffle now open!

Today we are launching our first online raffle! You can be with the chance of winning one of three cash prizes this summer, by purchasing your online raffle...

Today we are launching our first online raffle! You can be with the chance of wi...

Administrator•4 years ago

Dawn's experience of PSP

An important part of raising #awareness of PSP & CBD is sharing #personalexperiences. Here, Dawn Heywood shares her experience of when her dad, Noel was...

An important part of raising #awareness of PSP & CBD is sharing #personalexperie...

Administrator•4 years ago

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Stomach issues

Recently, my beloved has been having increasing stomach problems, mainly excessive painful bloating. I don't feel it is the normal kind as he seems so swollen...

Recently, my beloved has been having increasing stomach problems, mainly excessi...

•4 years ago

How can I help my husband (advanced stage) take in fluids?

He is so bent forward and cannot tip his head back or move it, so feeding cup is now impossible. Up to now he has managed with a straw in a safe-sip cup but...

He is so bent forward and cannot tip his head back or move it, so feeding cup is...

susanbennett100

•4 years ago

PSP & CBD Awareness week

Our PSP & CBD awareness week online activities continue today. With the help of supporter Georgie Irwin, we are taking over Rare Revolution Magazine's social...

Our PSP & CBD awareness week online activities continue today. With the help of ...

Administrator•4 years ago

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Busy bee

Just a busy bee on hollyhock flower

Just a busy bee on hollyhock flower

•4 years ago

Fidgeting and Anxiety

My husband is in a care center. I haven’t been able to see him since March. I speak to him every day on FaceTime. He has a hard time communicating. His carers...

My husband is in a care center. I haven’t been able to see him since March. I sp...

•4 years ago

Persistent cough while lying down after choking episode, is this expected even after a day of the choking episode?

My mother is worried sick about my fathers cough that started after having a bad choking episode yesterday while taking a multivitamin tablet. My father is...

My mother is worried sick about my fathers cough that started after having a bad...

•4 years ago

That 70’s Girl

I stopped working on this project to make masks for the pandemic but now this gal has come to life. I hope you enjoy a little cheer!

I stopped working on this project to make masks for the pandemic but now this ga...

•4 years ago

No choking food/drink

Hi all, My Mum seems to have dropped down a level and has been choking on most things. She had a PEG fitted earlier this year and my dad is so concerned that...

Hi all, My Mum seems to have dropped down a level and has been choking on most t...

•4 years ago

Halucinations and confusion

Hi guys Wondering is any of your LOs have had the same as Colin is going through at the moment. He seems very confused all the time now, talks about some...

Hi guys Wondering is any of your LOs have had the same as Colin is going through...

•4 years ago

PSPA Update Newsletter

To help keep you up to date with the latest PSPA news, we’ve created a short newsletter. You can download the newsletter to read more about how Local Groups...

To help keep you up to date with the latest PSPA news, we’ve created a short new...

Administrator•4 years ago

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Easy way to raise some funds for PSPA

The BPrewards scheme allows you to donate your points to PSPA through "Charities For Good Causes". It's very easy - you get a BP loyalty card to present...

The BPrewards scheme allows you to donate your points to PSPA through "Charities...

•4 years ago

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Breathing Problems

Hi Everyone - Although I read the posts to the sight, particularly the diagnostic ones, I am not a social animal and do not join in myself. However I really...

Hi Everyone - Although I read the posts to the sight, particularly the diagnosti...

•4 years ago

Kathleen's funeral

The time between her death and her funeral was a little difficult and it went like this.There was a delay in getting her death certificate because of the...

The time between her death and her funeral was a little difficult and it went li...

•4 years ago

Recycling prism glasses

Currently we are low on stock for both up and down looking prism glasses. If you have any unwanted prism glasses, please consider returning them to PSPA for...

Currently we are low on stock for both up and down looking prism glasses. If you...

Administrator•4 years ago

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