Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,335 posts

All posts for November 2018

My lovely book

Here is a picture of the cover

jmoffat

•5 years ago

16 Replies

reconnecting and still publishing

hi all i lost contact when i changed my google account but im back now best wishes to all of you just published a new book on amazon kindle paperbacks---does...

hi all i lost contact when i changed my google account but im back now best wi...

jamesmoffat

•5 years ago

1 Reply

Mum with PSP.

After weeks of eating just a few teaspoons here and there mums swollow has now stopped working. All food and fluids have been withdrawn and a syringe driver...

After weeks of eating just a few teaspoons here and there mums swollow has now s...

Kaylewis

•5 years ago

14 Replies

Want to take advantage of all our features? Just log in!

1 year today

Hi everyone. It is now 1 year today since Les lost his battle with PSP. I struggle so much and still have emotional meltdowns. It's not getting easier even...

Hi everyone. It is now 1 year today since Les lost his battle with PSP. I strugg...

Baileyboo

•5 years ago

31 Replies

Some advice please

My husband was diagnosed last year with PSP. It took a long time to get diagnosed but from what I read on here that seems normal. His balance and walking is...

My husband was diagnosed last year with PSP. It took a long time to get diagnose...

Hidden

•5 years ago

8 Replies

Still has a sense of humor

Getting my guy up from the recliner because it his bedtime,into the bathroom we go,I can see that he is Wet and I'm pretty use of that,get him sat down only...

Getting my guy up from the recliner because it his bedtime,into the bathroom we ...

Hidden

•5 years ago

15 Replies

It's been a year

Its been a year now. A year since we called 911 and had my husband transported to the hospital in a catatonic state. In some ways we are better off. Better...

Its been a year now. A year since we called 911 and had my husband transported t...

Gingerw3

•5 years ago

4 Replies

Constantly freezing cold

My mum diagnosed 12 months ago with CBD..she is constantly freezing cold..heating on full blast in the house and an electric fire beside her...her right...

My mum diagnosed 12 months ago with CBD..she is constantly freezing cold..heatin...

Cianodude

•5 years ago

9 Replies

Coughing

Those with CBD experience ... does coughing seem to increase gradually ? Mom has been coughing so much the last few days.

Those with CBD experience ... does coughing seem to increase gradually ? Mom ha...

bazooka111

•5 years ago

15 Replies

Thickening agents

Has anybody experienced sickness with using thickening agents ? My mum has only been using them for just over 2 weeks as she was choking on her food and...

Has anybody experienced sickness with using thickening agents ? My mum has only...

Jeas72

•5 years ago

8 Replies

Sad

Hubbys hip surgery went well but he has a touch of pneumonia he’s not well at all, the doctors have indicated he will be in hosp rehab 4-6 weeks.. Have a...

Hubbys hip surgery went well but he has a touch of pneumonia he’s not well at al...

demlac

•5 years ago

8 Replies

Any news on Yvonne?

Hi gang, I just wondered if anyone knew how Yvonne was keeping, it’s been a month or so since she lost a George, and I know she hasn’t been on here, so just...

Hi gang, I just wondered if anyone knew how Yvonne was keeping, it’s been a mont...

Ratcliffe

•5 years ago

27 Replies

Psp

Mum 81 bed bound, PSP, has not opened her mouth for food or fluids for 4 days now, we all feel so helpless, she is becoming quite vacant, any body else been...

Mum 81 bed bound, PSP, has not opened her mouth for food or fluids for 4 days no...

Kaylewis

•5 years ago

15 Replies

Diagnosis of Cortical basal syndrome

Cortical basal syndrome was diagnosed at the Mayo clinic in Rochester Minnesota… My wife’s condition was diagnosed in July 2015… Looking back we could see...

Cortical basal syndrome was diagnosed at the Mayo clinic in Rochester Minnesota...

Hionarock1

•5 years ago

22 Replies

Bon Voyage!

Last minute decision to take my sweet Momma on a memory making cruise. I decided I should do this while she can enjoy everything. Celebrating every day ......

Last minute decision to take my sweet Momma on a memory making cruise. I decided...

bazooka111

•5 years ago

18 Replies

New to this horrible disease

I am so glad to have found this support page. My Father is 79 and has was diagnosed with dementia for the past 3 years. He was living with my sister and left...

I am so glad to have found this support page. My Father is 79 and has was diagn...

JodiP

•5 years ago

13 Replies

Any info would be appreciated.

Hello all. This site has provided me lots of info that I couldn’t find elsewhere. My mom has psp and has gotten to the point where she falls daily. She and my...

Hello all. This site has provided me lots of info that I couldn’t find elsewhere...

mwv1

•5 years ago

18 Replies

Hospice and CHC

Hi everyone, J is now under hospice support and CHC are sending in 6 carers per day he is not bed bound but gets very tired and is in bed fairly early in the...

Hi everyone, J is now under hospice support and CHC are sending in 6 carers per...

Escada29

•5 years ago

9 Replies

Another change

In the past two weeks my husband who has CBD has been non responsive twice. People would talk to him with no response. They would touch him or shake his...

In the past two weeks my husband who has CBD has been non responsive twice. Peop...

Meykat4

•5 years ago

22 Replies

Thankful for all you!

We are celebrating Thanksgiving today in the United States, and one of the things I am thankful for today is all of you! This connection I’ve made has brought...

We are celebrating Thanksgiving today in the United States, and one of the thing...

bazooka111

•5 years ago

6 Replies

Sharing our hemp oil experience

My wife, Pam, has PSP. Diagnosed in Jan 2017. She has been taking Holos hemp oil with noticeable improvements. Most of her movements are more fluid, over all...

My wife, Pam, has PSP. Diagnosed in Jan 2017. She has been taking Holos hemp o...

Hilltoptim

•5 years ago

9 Replies

Surrounded by siblings!

We celebrated my Moms 73rd birthday this week! Thats her in the middle with the look of pure joy and surprise! She had no idea anyone was coming over —- my Mom...

We celebrated my Moms 73rd birthday this week! Thats her in the middle with the ...

bazooka111

•5 years ago

11 Replies

Status - Marie Nelson!

Dearest Friends, Wanted to send a status report regarding Marie_14. Marie has broken her right arm. She will have to have surgery (don't know when...

Dearest Friends, Wanted to send a status report regarding Marie_14. Marie has b...

Cuttercat

•5 years ago

18 Replies

CBD oil massage for PSP good?

My father has been diagnosed as PSP 8 months back. After that his condition is deteriorating faster than doctors advise. Read about CBD oil which claims to...

My father has been diagnosed as PSP 8 months back. After that his condition is d...

ashutoshbbpandey

•5 years ago

4 Replies

Mothers battle

Wow what a long summer. I haven't been on here much this summer. Mom just get a worse as the days go by even with the cbd oil. She has been waking up confused...

Wow what a long summer. I haven't been on here much this summer. Mom just get a...

Cwolpe

•5 years ago

7 Replies

Pain in Alien Arm

Dear all Any advice for the pain in alien arm? KR Alex

Amth_1948

•5 years ago

8 Replies

Being Creative

My mom used to be “everyone’s seamstress” ... if you needed something mended, or even back in the day .. a dress to be made; my Momma was your girl! So...

My mom used to be “everyone’s seamstress” ... if you needed something mended, or...

bazooka111

•5 years ago

4 Replies

Strange noises

My husband makes keening noises like a child when upset.I find all the noises difficult.Growling,moaning etc,he has the full range.Are they dementia symptoms?I...

My husband makes keening noises like a child when upset.I find all the noises di...

Westerngirl

•5 years ago

13 Replies

Just keep talking ...

I’m starting to hear my Mom repeat my statements back to me :-( I would say you look beautiful Momma .. she repeats it right back, and then seems to catch...

I’m starting to hear my Mom repeat my statements back to me :-( I would say yo...

bazooka111

•5 years ago

12 Replies

Prism glasses

My mom has PSP and recently hasn’t been able to see as good to text or feed herself. I heard the PSP association would give PSP patients prism glasses to use...

My mom has PSP and recently hasn’t been able to see as good to text or feed hers...

sdf0mgb

•5 years ago

8 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(133)

All things PSP Association(133)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2018

My lovely book

reconnecting and still publishing

Mum with PSP.

1 year today

Some advice please

Still has a sense of humor

It's been a year

Constantly freezing cold

Coughing

Thickening agents

Sad

Any news on Yvonne?

Psp

Diagnosis of Cortical basal syndrome

Bon Voyage!

New to this horrible disease

Any info would be appreciated.

Hospice and CHC

Another change

Thankful for all you!

Sharing our hemp oil experience

Surrounded by siblings!

Status - Marie Nelson!

CBD oil massage for PSP good?

Mothers battle

Pain in Alien Arm

Being Creative

Strange noises

Just keep talking ...

Prism glasses

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive