Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for August 2014

One day at a time!

Oh boy, has that saying hit home today! S went for a spinning fall outside, his head was literally millimetres from the wall of the house. I couldn't get to...

Oh boy, has that saying hit home today! S went for a spinning fall outside, his...

•10 years ago

Thank you for all your kind messages of support

We had my brothers funeral yesterday. It was a celebration of his life and we would not let psp rob us all of that. It has been a long winding and difficult...

We had my brothers funeral yesterday. It was a celebration of his life and we w...

•10 years ago

Hi Im new

Hi everyone I was told about this site yesterday by my mums doctor, She has CBD & has had it since 2004, Im struggling to cope now as she has gone down hill...

Hi everyone I was told about this site yesterday by my mums doctor, She has CBD...

•10 years ago

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And now for our next trick

We have had a good week. Brian is now completely off the pd medication and is more mobile then he has been for 18 months or more. He was champing at the bit to...

We have had a good week. Brian is now completely off the pd medication and is mo...

•10 years ago

Throat Pain

Has anyone had sever throat pain with PSP before? What do I do to help my husband with the pain? ENT or Nurologist I try and do things with my husband to get...

Has anyone had sever throat pain with PSP before? What do I do to help my husban...

•10 years ago

A 56 year-old woman walks into a Doctor's Office...

...and gets diagnosed with hand-foot-mouth disease...! Yup. That's me. Today. Came on suddenly yesterday. The Doc said it's 'running rampant' in our area....

...and gets diagnosed with hand-foot-mouth disease...! Yup. That's me. Today. Ca...

•10 years ago

Getting worse?

Hello, I haven't been on here for a long time. My mum has PSP she was diagnosed 3 years ago but we think she has had it for at least 5 years + The reason...

Hello, I haven't been on here for a long time. My mum has PSP she was diagnosed ...

•10 years ago

Confused

It's 3am in Humble, Texas and I can't sleep. Mike my wonderful husband, was diagnosed on June 27, 2014 . He has had two surgical procedures this summer on both...

It's 3am in Humble, Texas and I can't sleep. Mike my wonderful husband, was diag...

•10 years ago

Help!

I've just found out my dad has CBD. He's had symptoms for a couple of years, was diagnosed a year ago but my parents have avoided ever saying what he has. He...

I've just found out my dad has CBD. He's had symptoms for a couple of years, was...

•10 years ago

Feeling emotional

Hi everyone, I find myself turning back to this site,. I'm scared about even looking on here because for me it's facing facts, and that I am finding really...

Hi everyone, I find myself turning back to this site,. I'm scared about even loo...

•10 years ago

Ice Bucket Challenge!

The Ice Bucket Challenge for raising awareness and money for Motor Neurone Disease (ALS) has gone around the world. What can we set in motion for PSP/CBD...

The Ice Bucket Challenge for raising awareness and money for Motor Neurone Disea...

•10 years ago

An AMAZING woman has passed

Over the past few days my inspirational mother has passed. She has been suffering with breathing difficulties and after returning home from hospital, she had...

Over the past few days my inspirational mother has passed. She has been sufferin...

•10 years ago

Clinical Trials

My Aunt Bev has had PSP for 7 years now we just got off the phone with the research director at UCSF she qualifys for two trials one observational and one...

My Aunt Bev has had PSP for 7 years now we just got off the phone with the resea...

•10 years ago

Hi

Just a note to say good morning to all the other carers out there. It's nice to know we are not alone xx

Just a note to say good morning to all the other carers out there. It's nice to ...

•10 years ago

Wheelchairs?

are there any suitable wheelchairs for PSP patients? my dad was admitted to fit the tubes, as he had terrible aspirations and has become quite weak, his body...

are there any suitable wheelchairs for PSP patients? my dad was admitted to fit ...

•10 years ago

Sinement

Anyone having problems with their taking sinement

Anyone having problems with their taking sinement

•10 years ago

I keep hearing about stages of psp

How do you know.what stage someone is and if it's the final.stage my dad has psp he can.hardly talk and has a food tube in he leans to one side and.is very...

How do you know.what stage someone is and if it's the final.stage my dad has psp...

•10 years ago

Heartbroken

Hi everyone, been writing posts a few times when I have questions but don't have much activity on here, I have been reading through people's post and it's...

Hi everyone, been writing posts a few times when I have questions but don't have...

•10 years ago

Have A Question About Facial Tremors.

Okay. Before I was diagnosed with PSP, I was accustomed to mild or moderate tremors in my hands. Decided to be sneaky and tried to hide it. Over time, my...

Okay. Before I was diagnosed with PSP, I was accustomed to mild or moderate trem...

•10 years ago

Psp

My dad has psp.he's in the final stages just getting over a chest infection wasn't sure he was going to pull thro but today showing signs of an improvement...

My dad has psp.he's in the final stages just getting over a chest infection wa...

•10 years ago

Goodbye dear brother

Hello everyone , today my darling brother died. It was a very peaceful and calm ending. We were with him constantly day and night and now his suffering is...

Hello everyone , today my darling brother died. It was a very peaceful and calm...

•10 years ago

Problem with walking

My husband over the last few days seems to have lost the use of his legs and I am unable to guide him as he seems to double over. I am frightened that this...

My husband over the last few days seems to have lost the use of his legs and I a...

•10 years ago

Problems at physiotherapy class

Hi I go to physio on Tuesdays - all in the class have Parkinson D except me - whose diagnosis of PSP - p is still not decided. The wife of a man in this class...

Hi I go to physio on Tuesdays - all in the class have Parkinson D except me - wh...

•10 years ago

Anger

My anger today was a real problem. It is pouring, dark, cold and I get that trapped feeling with nowhere to go to get out of here and my husband Bob following...

My anger today was a real problem. It is pouring, dark, cold and I get that trap...

•10 years ago

Hi

Hi again. I feel so miserable. It's my birthday today, and I'm here with mum. I don't know why I keep crying, is it because I'm thinking she might not be here...

Hi again. I feel so miserable. It's my birthday today, and I'm here with mum. I ...

•10 years ago

Good morning

Good morning all Thought I would just give an update on Brian. Its now just about two weeks since we started the reduction in pd meds and the difference it...

Good morning all Thought I would just give an update on Brian. Its now just abo...

•10 years ago

Medication or no medication ?

Hi, my husband has not been offered any medication for PSP, but his condition continues to deteriorate. The complication here is that he had a liver transplant...

Hi, my husband has not been offered any medication for PSP, but his condition co...

•10 years ago

Second opinion

Hi everyone. I went to see my neurologist on Wednesday . I explained the problems I have been having with my foot . he said it was dystonic dyskinesias . I...

Hi everyone. I went to see my neurologist on Wednesday . I explained the problem...

CheekyChops1973

•10 years ago

Mum

I can't remember what mums voice was like before PSP, how can that be?. Mum asked me to made her well again, but it's the one thing I can't do. Sitting here...

I can't remember what mums voice was like before PSP, how can that be?. Mum aske...

•10 years ago

Psp

Hi everyone, I'm 29 years old and recently found out my mam to has psp, after them wrongly diagnosing her with a stroke 2 and a half years ago I just knew it...

Hi everyone, I'm 29 years old and recently found out my mam to has psp, after th...

•10 years ago

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