Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for August 2021

A little help with food please

Hi All. This is not the usual plea for help and understanding what I need are some food suggestions. My Margaret is now on puréed food (home prepared and food...

Hi All. This is not the usual plea for help and understanding what I need are so...

Birdman42

•3 years ago

19 Replies

PSP and holding breath

My husband (diagnosed with PSP Spring 2020) holds his breath. It has been going on for some time, but is now much more frequent and distressing. It occurs...

My husband (diagnosed with PSP Spring 2020) holds his breath. It has been going...

Rustington

•3 years ago

6 Replies

Red Admiral Butterfly

Another flutter bye in the garden

fishponds

•3 years ago

6 Replies

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Brain Stimulation Treatments?

Hello, I'm totally new to this forum, so grateful for the resource. Just wondering if anybody has had any experience or knowledge regarding Electrical,...

Hello, I'm totally new to this forum, so grateful for the resource. Just wonderi...

LARWLSN

•3 years ago

3 Replies

Creatine supplements - any evidence on possible benefits?

We have seen a few research papers suggesting that creatine supplementation might help ward off neurodegenerative diseases, and also improve cognitive...

We have seen a few research papers suggesting that creatine supplementation migh...

Epsilon12

•3 years ago

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Great piece in the New York Times

NOTHING COULD PREPARE ME FROM WATCHING MY WIFE, JUDY, SLIP AWAY By Tom Coughlin Mr. Coughlin, a two-time Super Bowl-winning head coach, led the New York...

NOTHING COULD PREPARE ME FROM WATCHING MY WIFE, JUDY, SLIP AWAY By Tom Coughlin ...

Regann

•3 years ago

11 Replies

Moving - again

Hey everyone, I found a new place for Mom. I am really hopeful that this will be her final move as I could see how overwhelming it was for her to go look and...

Hey everyone, I found a new place for Mom. I am really hopeful that this will be...

ARutzen

•3 years ago

9 Replies

PSPA Podcast - Episode 4 Caring for a parent

The fourth PSPA Podcast episode is now available to listen to. In this episode, we speak to Claire about her experience of caring for her mum who is living...

The fourth PSPA Podcast episode is now available to listen to. In this episode, ...

HelenPSPA

Administrator•3 years ago

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Meet the Helpline Team - Liz Sturgess

Today we are introducing another member of the Helpline Team, Liz Sturgess. “I trained as an Occupational Therapist and worked for over 20 years in a variety...

Today we are introducing another member of the Helpline Team, Liz Sturgess. “I t...

HelenPSPA

Administrator•3 years ago

1 Reply

Giving new meaning to life following diagnosis

Download the summer edition of PSPA Matters to read how Julia Tickridge gave life new meaning following her husband's diagnosis of evolving PSP. Julia also...

Download the summer edition of PSPA Matters to read how Julia Tickridge gave lif...

HelenPSPA

Administrator•3 years ago

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Its over

It has been such a long road. This is truly a horrible disease. Jeff fought to the bitter end. He finally went home to be at peace this past Saturday. We all...

It has been such a long road. This is truly a horrible disease. Jeff fought to t...

Gingerw3

•3 years ago

34 Replies

2 Months of Change-Advanced Stages?

Good morning all, I put mom into an Assisted Living place June 14th and now within just 2 months, her physical state has declined to the point of needing 24/7...

Good morning all, I put mom into an Assisted Living place June 14th and now with...

ARutzen

•3 years ago

17 Replies

Jack and Stan - Parody for PSP

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3Dl1y6Lf8VXKc%26feature%3Dshare%26fbclid%3DIwAR1MCoOld4L6n6j5uwKbsizUZSKZRhwBnOjASILDgOr-fn

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3Dl1y6Lf8VX...

daddyt

•3 years ago

7 Replies

Recognise members of the PSP & CBD Community

The closing date for PSPA's first 10,000 Voices Awards nomination period is fast approaching on 22 August. If you would like to help recognise the achievements...

The closing date for PSPA's first 10,000 Voices Awards nomination period is fast...

HelenPSPA

Administrator•3 years ago

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Is confused about when to wake up part of the condition?

My father-in-law has CBS and it is getting more often than he doesn’t know when is time to wake up. An year ago, we put clocks with big numbers and the time...

My father-in-law has CBS and it is getting more often than he doesn’t know when ...

Hidden

•3 years ago

3 Replies

PSP Resources in Singapore

Hi, I'm from Singapore and have recently joined this group. My father was diagnosed with PSP about 2 years ago. But we have struggled to find any Singapore...

Hi, I'm from Singapore and have recently joined this group. My father was diagno...

Niki2095

•3 years ago

2 Replies

My ex was ready- he didn’t have any strength left to fight the fight - OT was time to go home to rest in God’s heaven.

God brought my ex home yesterday. I got to see him again beforehand…..no words needed between us…..we just held hands and I told him I loved him and to save...

God brought my ex home yesterday. I got to see him again beforehand…..no words...

ConcernedEx

•3 years ago

41 Replies

Flutterbye

Haven’t posted a pic for a while so here’s a comma butterfly in the garden

fishponds

•3 years ago

6 Replies

A very hot summer day!

A house finch hit my plate glass window It broke a wing and a foot In my stupor I waited for the finch to gain consciousness Finally, after several minutes,...

A house finch hit my plate glass window It broke a wing and a foot In my stupo...

SewBears

•3 years ago

1 Reply

The PSP Chronicles Volume III - Putting Purpose To PSP

Coming soon. Tim

daddyt

•3 years ago

6 Replies

Meet the PSPA Helpline - Cathy Moughton

Today we are introducing another member of the Helpline Team, Cathy Moughton. “I joined the voluntary sector on returning to work after having my children and...

Today we are introducing another member of the Helpline Team, Cathy Moughton. “I...

HelenPSPA

Administrator•3 years ago

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COVID at-home antigen tests

For those in the US, just to let you know COVID antigen tests for use at home are commercially available. In the UK they are available for free. Now that it is...

For those in the US, just to let you know COVID antigen tests for use at home ar...

Martina_MP

•3 years ago

2 Replies

Tips for staying active with PSP & CBD

Responding to feedback given in our Research Priorities survey last year, you can read about the benefits of staying active with PSP & CBD in the summer...

Responding to feedback given in our Research Priorities survey last year, you ca...

HelenPSPA

Administrator•3 years ago

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vision decline

My husband has PSP since 2015 and is currently having increased trouble with his vision. He has several pairs of glasses with prisms and various tinted lenses....

My husband has PSP since 2015 and is currently having increased trouble with his...

ncgardener799

•3 years ago

12 Replies

“Mummy it’s very hard to take care of grandad”. When is the time for a caring home?

This is what my 4-year old daughter told me today about my father-in-law with CBD who lives with us. I’m worry that on the effort to help him we’re affecting...

This is what my 4-year old daughter told me today about my father-in-law with CB...

Hidden

•3 years ago

15 Replies

My Ex is giving up

Yesterday my ex’s sister called to say the end is upon us and she granted me permission to see my ex. We communicated through squeezing (as much as he could...

Yesterday my ex’s sister called to say the end is upon us and she granted me per...

ConcernedEx

•3 years ago

19 Replies

Where to from here?

Writing to you from New Zealand where thus far we have had no contact with other PSP sufferers. In late 2019 my wife (80yrs) had significant weight loss and...

Writing to you from New Zealand where thus far we have had no contact with other...

BlairWit

•3 years ago

21 Replies

CBD help in Italy

Hello, My mum has CBD and her condition is worsening by the day. Sh has just relocated back to Italy from France (I live in the UK) and I'm struggling to find...

Hello, My mum has CBD and her condition is worsening by the day. Sh has just rel...

SilP

•3 years ago

7 Replies

What's the biggest Post COVID-19 health problem we are facing today?

Moshe_Strugano

•3 years ago

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First post

Hi. I’m new here. I’m a carer for my husband who is entering into his 7th year of MSA and showing signs of PSP. For me I can really see PSP more so than MSA....

Hi. I’m new here. I’m a carer for my husband who is entering into his 7th year o...

Traveller45

•3 years ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2021

A little help with food please

PSP and holding breath

Red Admiral Butterfly

Brain Stimulation Treatments?

Creatine supplements - any evidence on possible benefits?

Great piece in the New York Times

Moving - again

PSPA Podcast - Episode 4 Caring for a parent

Meet the Helpline Team - Liz Sturgess

Giving new meaning to life following diagnosis

Its over

2 Months of Change-Advanced Stages?

Jack and Stan - Parody for PSP

Recognise members of the PSP & CBD Community

Is confused about when to wake up part of the condition?

PSP Resources in Singapore

My ex was ready- he didn’t have any strength left to fight the fight - OT was time to go home to rest in God’s heaven.

Flutterbye

A very hot summer day!

The PSP Chronicles Volume III - Putting Purpose To PSP

Meet the PSPA Helpline - Cathy Moughton

COVID at-home antigen tests

Tips for staying active with PSP & CBD

vision decline

“Mummy it’s very hard to take care of grandad”. When is the time for a caring home?

My Ex is giving up

Where to from here?

CBD help in Italy

What's the biggest Post COVID-19 health problem we are facing today?

First post

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive