Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for February 2017

Respite with Harry !

Just to say I had a lovely few days with my Grammy, she came to stay when she had something called respite for grandad! We had lots of fun, but Grammy said she...

Just to say I had a lovely few days with my Grammy, she came to stay when she ha...

•8 years ago

Last snow I hope

Hope all is well with everyone thought I would share a picture of out side. I plan on going skinny dipping in Aunt Bevs walk in tub I have on the back porch...

Hope all is well with everyone thought I would share a picture of out side. I p...

•8 years ago

Thankyou

I would like to thank you all for the kind words you have written, the help and advice you have given me whilst trying to understand this awful disease. There...

I would like to thank you all for the kind words you have written, the help and ...

•8 years ago

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Happy birthday Jilliann

Sorry a bit late. I hope you had a brilliant day. Love and ifs maddy xx

Sorry a bit late. I hope you had a brilliant day. Love and ifs maddy xx

•8 years ago

Happy Birthday, Jillann!

Hey, Jill! I think I am a day late, sorry, but will wish you a years' worth of happiness just the same. I'm always cheered when I see your picture pop up on a...

Hey, Jill! I think I am a day late, sorry, but will wish you a years' worth of h...

•8 years ago

Feeling Spoilt

Just had a lovely morning. Been for breakfast with two very special, lovely people. Gave me some me time, and strength to now go and visit DC in hospital....

Just had a lovely morning. Been for breakfast with two very special, lovely peop...

•8 years ago

Love you lotses dad xxx

My dad sadly passed away at 12.10pm on the 19th February a year and five days after my mum. I was with dad holding his lovely warm hands like I have always...

My dad sadly passed away at 12.10pm on the 19th February a year and five days af...

•8 years ago

Groin pain

Hi all you lovely people, George gets a bad pain in his groin, does anyone suffer with this. Also his coughing has got much worse, what about you all is...

Hi all you lovely people, George gets a bad pain in his groin, does anyone suffe...

Yvonneandgeorge

•8 years ago

I lossed my husband and best friend. Really going to miss him

Hi everyone. Just wanted to say my Dave passed away at 701 am feb 24. Very sad. My only advice is go with what is. Stay strong and look after yourself. Sucks...

Hi everyone. Just wanted to say my Dave passed away at 701 am feb 24. Very sad. ...

•8 years ago

Big thanks

Thank you all so very much for you kindness and thoughts. My thoughts are with you all as we all struggle with this horrendous disease. I have found so much...

Thank you all so very much for you kindness and thoughts. My thoughts are with y...

•8 years ago

Rubbish day

Oh dear having a really rubbish day today. Just found some photos of DC and I taken about 40 years ago. I sobbed my heart out it is all so unfair. I hate hate...

Oh dear having a really rubbish day today. Just found some photos of DC and I ta...

•8 years ago

Getting geared up for the holiday of a lifetime...in Canada!!!

Hi there all my fellow members of this fabulous website! Well, as the headline has stated my husband and I are gearing up for a fantastic holiday over in...

Hi there all my fellow members of this fabulous website! Well, as the headline ...

•8 years ago

Storm Doris

Storm Doris has been and now has left us . Our village is situated on the side of the Exe valley facing west so any westerly or northwesterly winds...

Storm Doris has been and now has left us . Our village is situated on the sid...

•8 years ago

Oral care

Hi all Just seen that this gadget will be on sale in lidl on Sunday. Water flosser. Hope the link posts!...

Hi all Just seen that this gadget will be on sale in lidl on Sunday. Water flos...

•8 years ago

Feeling so sad !

Hi everyone, I have just come home from visiting P in the nursing home where he`s been for 16 months now. Most days, if he whispers half a dozen words, I think...

Hi everyone, I have just come home from visiting P in the nursing home where he`...

•8 years ago

Keith, the love of my life

Hi everyone and firstly can I say how grateful I have been to each and every one of you for your love and support through this terrible journey that's called...

Hi everyone and firstly can I say how grateful I have been to each and every one...

•8 years ago

Thank you

Thank you all for your condolences, prayers and love on the loss of my father. You have truly been a blessing and a great source of support. My mom will be...

Thank you all for your condolences, prayers and love on the loss of my father. ...

•8 years ago

Peg fitted

Monday 11.50 phone from hosp. Can I get ger there by 3pm. They've got a bed. Rush rush rush. Got him there. Straight into ward and bed. Great. Tues morn 9.45...

Monday 11.50 phone from hosp. Can I get ger there by 3pm. They've got a bed. Rus...

•8 years ago

Tube feeding, choking or deep sedation/euthanasia? Your thoughts would help so much, we are quite lost about dad's late PSP stage.

Dear all, I have been following your posts which have helped me so much communicate invaluable information to my mum who is supporting my sick father, most of...

Dear all, I have been following your posts which have helped me so much communic...

•8 years ago

More advice needed please.

I have been told that B. is due for CHC assessment again. They are just waiting for someone to be allocated to do it. We were turned down last time. All advice...

I have been told that B. is due for CHC assessment again. They are just waiting ...

•8 years ago

11 days and counting

It's been 11 days now since J went onto morphine and last had anything to eat or drink. He's at home, where he wanted to be, and being kept comfortable, but...

It's been 11 days now since J went onto morphine and last had anything to eat or...

•8 years ago

Thank you

I would like to thank you all for your support and keep no words. Now I know I'm not on my own. Hope you have all had a better day today. Take care my new...

I would like to thank you all for your support and keep no words. Now I know I'm...

•8 years ago

5 years ago

It was five years ago today that I lost my Steve not a day goes by without me thinking of you Steve xxx

It was five years ago today that I lost my Steve not a day goes by without me th...

•8 years ago

Daddy has left us

Hi all. I'm sad to say this morning that daddy passed away yesterday afternoon. I'm very sad to have him gone, but thank god that his fight with this...

Hi all. I'm sad to say this morning that daddy passed away yesterday afternoon....

•8 years ago

Mestinon for disphagia in parkinson

Hi, Has anyone tried Mestinon(pyridostigmin) for releiving disphagia in parkinson? What were the side effects? Is it safe to use? Doctor priscribe it for my...

Hi, Has anyone tried Mestinon(pyridostigmin) for releiving disphagia in parkinso...

•8 years ago

First time

This is my first time here. I look after my husband 8 years diagnosed with PSP. He is in hospital at present. Very difficult day as he knows about a care...

This is my first time here. I look after my husband 8 years diagnosed with PSP. ...

•8 years ago

Body temperature out of sync??

Hi, am new to this page. My Dad suffers from PSP, it's a really crappy disease and there is such a lack of information out there for families. We are at the...

Hi, am new to this page. My Dad suffers from PSP, it's a really crappy disease a...

•8 years ago

Speech deteriorating

My mother has CBD and the first thing we noticed before she actually had a proper diagnosis was that her speech was slurred and she found it hard to find some...

My mother has CBD and the first thing we noticed before she actually had a prope...

•8 years ago

And in a link of an eye....

On Friday my mother in law passed....it was like she knew she was going to die, little things are coming up now, signs, things she was doing all led here....

On Friday my mother in law passed....it was like she knew she was going to die, ...

•8 years ago

Bemused

I went for the result of my heart scan and 2 week heart monitor results today. The consultant reminded me that he had seen me in 2009 and that he and our Doc....

I went for the result of my heart scan and 2 week heart monitor results today. T...

•8 years ago

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