Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for May 2016

CBD - Is this the end?

Got to hospital today to find my man on a drip and not very responsive!! And they had not bothered to let me know! Was NOT IMPRESSED. And made sure the message...

Got to hospital today to find my man on a drip and not very responsive!! And the...

•9 years ago

Frustrated

I have my pip assesme t on the 8of next do t know what to expect do t know why they are wanting to see me as most days i dont function fatigue sleepall the...

I have my pip assesme t on the 8of next do t know what to expect do t know why t...

•9 years ago

Summer trip

Took M out for the day from the nursing home, glad to be feeding her for short time. This was taken at the Pin mill in Bodnant gardens in North wales....

Took M out for the day from the nursing home, glad to be feeding her for short t...

•9 years ago

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Did your PSP patient work with metals?

I just posted a video: http://www.uctv.tv/shows/Progressive-Supranuclear-Palsy-PSP-On-Our-Mind-30399 which is an interview with an expert in the PSP field, and...

I just posted a video: http://www.uctv.tv/shows/Progressive-Supranuclear-Palsy-P...

•9 years ago

Expert interview about PSP and possible cause

I'm in shock right now, after watching the video: http://www.uctv.tv/shows/Progressive-Supranuclear-Palsy-PSP-On-Our-Mind-30399

I'm in shock right now, after watching the video: http://www.uctv.tv/shows/Prog...

•9 years ago

Poem about PSP (author unknown)

How did it happen? A poem about PSP How did it happen? From where did it come? This monstrous illness known only by some. No treatment to help, no cure is...

How did it happen? A poem about PSP How did it happen? From where did it come?...

•9 years ago

Warmth in the air

Today , couldn't you just smell the warmth in the air for the first time this year . It was a day of scents , gone is the all-pervading slightly...

Today , couldn't you just smell the warmth in the air for the first time ...

•9 years ago

Hastings Pier

Picture of the new pier, re opened this weekend after a fire in 2010, doesn't look very spectacular but sounds good, maybe we can explore tomorrow xx

Picture of the new pier, re opened this weekend after a fire in 2010, doesn't lo...

•9 years ago

hooting and whooping

for a while now bugs has been making awful hooting/whooping noises for no apparent reason. They seem to start every sentence or often it is just a succession,...

for a while now bugs has been making awful hooting/whooping noises for no appare...

•9 years ago

Safe transfers with one person

Can anyone advise what sort of equipment or techniques they have been shown to enable transfers of sufferers. Mum has CBD and no use of her left arm but can...

Can anyone advise what sort of equipment or techniques they have been shown to e...

•9 years ago

My guy went missing for 20 minutes!

We were at a hotel in the heart of Austin, Texas. My son and I were getting our bags together and my husband walked out of our room just seconds ahead of us. I...

We were at a hotel in the heart of Austin, Texas. My son and I were getting our ...

•9 years ago

Wishing him luck .....

Our son is taking part in the London2Brighton Challenge this weekend to raise money/awareness for PSP. He is walking from London to Brighton (on the South...

Our son is taking part in the London2Brighton Challenge this weekend to raise mo...

•9 years ago

Shock in the night

F woke me at 2.15am, can you help me? I've broken my back, that's why I'm laying like this,( top half in bed, legs on floor. ) I've tried to lift his legs into...

F woke me at 2.15am, can you help me? I've broken my back, that's why I'm laying...

•9 years ago

indistinguishable Symptoms

Charles has had "three" bad days. Can't completely tell me what's wrong except stiffness, tiredness, etc. We've been through this but would like an...

Charles has had "three" bad days. Can't completely tell me what's wrong except ...

•9 years ago

thanks

Thank you all for your suggestions to help my wife with her saliva problem I am very grateful to you all. many thanks.

Thank you all for your suggestions to help my wife with her saliva problem I am ...

•9 years ago

Eye problems

Took P to see the neurologist for 6 monthly check and I asked him about P`s sight. How do you check the eyesight of someone who is barely able to communicate ?...

Took P to see the neurologist for 6 monthly check and I asked him about P`s sigh...

•9 years ago

help

Hi Everyone Does anyone know what could help my wife clear her throat when clogging up with saliva, it is very worrying hearing her...

Hi Everyone Does anyone know what could help my wife clear h...

•9 years ago

PSP - 'shudders/shakes' advice?

Good morning everyone - my dad has been living with PSP for at least 10 years, having had experienced all of the 'usual' issues related to the condition....

Good morning everyone - my dad has been living with PSP for at least 10 years, h...

•9 years ago

:) abirke (1)

Next to my name at the top of the bar which is between to "HealthUnlocked" and "My Communities" is the number one ensconced in orange.....or copper or...

Next to my name at the top of the bar which is between to "HealthUnlocked" and "...

•9 years ago

Another wonderful weekend with PSP!

Just spent a wonderful couple of days in my other home. You know the one I mean, the where everyone running around in different colored PJ's and the machines...

Just spent a wonderful couple of days in my other home. You know the one I mean...

•9 years ago

DYSTONIAS, SHAKING AND WHAT ELSE?

Hello, I'm here again. My poor mum has got peg two months ago but she continues to lose weight. She is in her seven year from PSP diagnosis and the situation...

Hello, I'm here again. My poor mum has got peg two months ago but she continues ...

•9 years ago

Still struggling on

Hello I am still here waiting for my miracle. I have come home from care and have four carers a day to look after me. Just as I find one that suits,she...

Hello I am still here waiting for my miracle. I have come home from care and ha...

•9 years ago

Unexplained

I dont know how or why but Aunt Bev is like reversing is the only way I can describe it. 3 weeks ago she was in the hospital and lucky to make it couldn't...

I dont know how or why but Aunt Bev is like reversing is the only way I can desc...

•9 years ago

Bowel Problems

My husband has had PSP for about five years now. Lately he has been having problems with constipation. Can anyone tell me what works to get the bowels moving

My husband has had PSP for about five years now. Lately he has been having probl...

•9 years ago

Appeal Panel CHC

Well its all over for the moment. There were only two people on the panel as the Devon County representative for social care did not turn up ....

Well its all over for the moment. There were only two people on the panel ...

•9 years ago

Calling the folks with psp

Dear Jillann, Shasha, peterjones, myjual, JudyJ, Steph02, all of you, every one in this community who has been diagnosed with psp, how are YOU doing? Please do...

Dear Jillann, Shasha, peterjones, myjual, JudyJ, Steph02, all of you, every one ...

•9 years ago

Feeling blessed

Feeling so blessed that I found this site it' terrible in one respect that we are on it but so comforting to know that when your having a extremely bad day...

Feeling so blessed that I found this site it' terrible in one respect that we ar...

•9 years ago

Sorry advice again please

I guess I'm asking girls here, f has always wet shaved, couldn't manage today's shave and I had to help with his shave, not sure I have barber qualities! I did...

I guess I'm asking girls here, f has always wet shaved, couldn't manage today's ...

•9 years ago

Informative information from those at the coalface!

Hi all, I am new here. My husband has just been disgnosed with CBD after a year of Parkinson's medication. I think he is well advanced along this horrid road....

Hi all, I am new here. My husband has just been disgnosed with CBD after a year...

•9 years ago

Twindles

Hi everyone don't forget to check out pspa Dublin, leave any advice or stories you want, help me spread the word on Dublin. x

Hi everyone don't forget to check out pspa Dublin, leave any advice or stories y...

•9 years ago

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