Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2018

When to be assertive

When do we try to intervene in loved ones lives? When is a parent no longer capable of caring for themself? When they crawl to the bathroom in the middle of...

When do we try to intervene in loved ones lives? When is a parent no longer capa...

Cocodunny

•6 years ago

17 Replies

Amiodarone and PSP?

I'm new here. My husband was diagnosed with PSP yesterday at Northwestern U, Chicago. He has also had two strokes since January and has Afib for which he has...

I'm new here. My husband was diagnosed with PSP yesterday at Northwestern U, Chi...

Dianajeanann

•6 years ago

6 Replies

My J

Sorry all that I have not posted in a while. J was admitted into hospital last Sunday as he became unresponsive whilst trying to wake him from sleep. The week...

Sorry all that I have not posted in a while. J was admitted into hospital last S...

Escada29

•6 years ago

13 Replies

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@Westerngrl.. Chair side table/stand

Unfortunately the forum doesn't seem to allow pictures to be included with a reply, only a new post. Here is what I was talking about, It can go on either...

Unfortunately the forum doesn't seem to allow pictures to be included with a rep...

Dadshelper

•6 years ago

2 Replies

Bladder Issues?

My friend's bladder is "stressed" leading to incontinence. Is this common with PSP. She is on an antibiotic - but will this "cure" that problem?

My friend's bladder is "stressed" leading to incontinence. Is this common with ...

Mybeautifulfriend

•6 years ago

6 Replies

CBD and PSP

Has anyone ever heard CBD and PSP described as the same disease but on different ends of the spectrum?

Has anyone ever heard CBD and PSP described as the same disease but on different...

hubetsy

•6 years ago

9 Replies

do You have PSP

I would like to speak with people who have PSP not their careers if there are any out there? It would be nice to

I would like to speak with people who have PSP not their careers if there are an...

Janet5

•6 years ago

6 Replies

Made a memory

Yesterday here in the NW of Blighty was a beautiful warm sunny day, I went to Mum's as usual and she was having a good day, she had had her hair done,...

Yesterday here in the NW of Blighty was a beautiful warm sunny day, I went to Mu...

AJK2001

•6 years ago

8 Replies

Granni B

Hi everyone. Granni B messaged me on my author website saying that she was having some difficulty reaching the group - computer issues? Anyways she says hello...

Hi everyone. Granni B messaged me on my author website saying that she was havin...

daddyt

•6 years ago

2 Replies

Consitpation

Another first. Larry’s had a very hard time having a bowel movement. Even with lots of fiber, enemas and a laxative things were backed up. Over the last few...

Another first. Larry’s had a very hard time having a bowel movement. Even with l...

Hidden

•6 years ago

29 Replies

3 hours of heavy spasams

Just home it's midnight. FiL had a 3 hour episode of spasams which took over the whole of his body they came and went every 30 seconds. I have never seen any...

Just home it's midnight. FiL had a 3 hour episode of spasams which took over the...

Pooches

•6 years ago

9 Replies

Website-Blog

Hello to my extended PSP fam-jam. I posted a short blog with a link to my website. wordpressco900.wordpress.com should you get you there. You'll be happy to no...

Hello to my extended PSP fam-jam. I posted a short blog with a link to my websit...

daddyt

•6 years ago

4 Replies

A Neurologist is Asking YOUR Help to do a Study On a DRUG that Extends the QUALITY Of LIFE and CAN Restore LOST FUNCTIONS to Those With PSP

What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta, who is willing to go beyond what any other doctor has offered or suggested in...

What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta...

grafixapn

•6 years ago

8 Replies

It's Over

Dad passed away peacefully at 02:15 Sept 25th. He was with family and our Priest the evening before and seemed to be very at ease. I was there at his passing...

Dad passed away peacefully at 02:15 Sept 25th. He was with family and our Pries...

Dadshelper

•6 years ago

48 Replies

Night time Incontinence pads leave bed sores alternatives?

I’m new to this site, and new to having to deal with problems Relating to a family member who is dying from cancer and needs to have protection overnight....

I’m new to this site, and new to having to deal with problems Relating to a fami...

Caregiverhelper

•6 years ago

4 Replies

Hopeing it's only a blip............

Thismorning I lost my balance while opening the door for my early morning care call. Luckily I only hit the wall and not the floor, broken glasses and a...

Thismorning I lost my balance while opening the door for my early morning care c...

Bargiepat

•6 years ago

32 Replies

Happy Birthday Dad - we miss you!

To my beloved Daddy, Happy birthday dad, for today would have been your 80th! It’s the first birthday that you are not here with us, so I try to take comfort...

To my beloved Daddy, Happy birthday dad, for today would have been your 80th! I...

Cjhorseygirl

•6 years ago

3 Replies

Questions

Hi everyone! My name is Michelle and I was diagnosed with parkinson's disease a year and a half ago after a crazy decline in health over a year. By the time...

Hi everyone! My name is Michelle and I was diagnosed with parkinson's disease a ...

Hidden

•6 years ago

13 Replies

music for a rainy day

thought you might like this https://youtu.be/rjqHtmW3Eno

jmoffat

•6 years ago

4 Replies

Up at 2:30

Larry decided to get up at 2:30 this morning because he “had been awake for hours.” I was not amused. Took him down to the living room and turned the TV then...

Larry decided to get up at 2:30 this morning because he “had been awake for hour...

Hidden

•6 years ago

12 Replies

Autumn Leaves

https://www.youtube.com/watch?v=xXBNlApwh0c

Bargiepat

•6 years ago

19 Replies

The PSP Triple Crown

A warm hello to my extended PSP family. Many of you know by now that I have published my first book - The PSP Chronicles (sounds oddly familiar). Did you know...

A warm hello to my extended PSP family. Many of you know by now that I have publ...

daddyt

•6 years ago

1 Reply

Success rates with CHC funding application

We are in the process of appealing a CHC rejection and I am looking for any evidence of the % of CBD suffered who successfully get funding. If you are in the...

We are in the process of appealing a CHC rejection and I am looking for any evid...

SallySmith

•6 years ago

22 Replies

Battle of Corticobasal

Good day… I read with heartache about your 11 year battle with CBD… Is your husband able to speak…? Is his speech drastically affected? Is he able to move out...

Good day… I read with heartache about your 11 year battle with CBD… Is your hus...

Hionarock1

•6 years ago

7 Replies

Brooklyn46

I,m new here, my husband was diagnosed with PSP 2 month ago. Any one out there considering Stem cell therapy? Pease let me know.

I,m new here, my husband was diagnosed with PSP 2 month ago. Any one out there ...

berros

•6 years ago

3 Replies

Confused about what to do...

This week I was told to move my mom to a long term care facility...while in the same breath the Dr told my mom to enjoy her life as much as she can. I don't...

This week I was told to move my mom to a long term care facility...while in the ...

bluehoo

•6 years ago

9 Replies

Hello everyone I am Sarah and my lovely fiancé Steve has PSP

Hi everyone I have been reading posts on here for days and it has really helped me through what has been an horrendous few months. I thought my life was...

Hi everyone I have been reading posts on here for days and it has really helped ...

Hiking13

•6 years ago

88 Replies

Journey through this one day at a time

Husband is rounding 11 years with CBD. Lots of blessings and hard times with being his caretaker. Need to find lots of caring people to help, otherwise...

Husband is rounding 11 years with CBD. Lots of blessings and hard times with be...

Mtorres9235

•6 years ago

10 Replies

Does anyone have any results from a Clinical Trial they can share?

Hi, my husband, 53 years old was Dx with probably PSP in July 2017, symptoms began in 2015. We are in the Boston area but will travel to Columbia University...

Hi, my husband, 53 years old was Dx with probably PSP in July 2017, symptoms beg...

Kristin447

•6 years ago

23 Replies

Mainly muscle relaxants, I know about chest infections and GSF 😋

My wife who has PSP gets severe pain in her jaw neck and shoulders she recently seen a dental consultant who said she needs to use a muscle relaxant alongside...

My wife who has PSP gets severe pain in her jaw neck and shoulders she recently ...

Evertonian

•6 years ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2018

When to be assertive

Amiodarone and PSP?

My J

@Westerngrl.. Chair side table/stand

Bladder Issues?

CBD and PSP

do You have PSP

Made a memory

Granni B

Consitpation

3 hours of heavy spasams

Website-Blog

A Neurologist is Asking YOUR Help to do a Study On a DRUG that Extends the QUALITY Of LIFE and CAN Restore LOST FUNCTIONS to Those With PSP

It's Over

Night time Incontinence pads leave bed sores alternatives?

Hopeing it's only a blip............

Happy Birthday Dad - we miss you!

Questions

music for a rainy day

Up at 2:30

Autumn Leaves

The PSP Triple Crown

Success rates with CHC funding application

Battle of Corticobasal

Brooklyn46

Confused about what to do...

Hello everyone I am Sarah and my lovely fiancé Steve has PSP

Journey through this one day at a time

Does anyone have any results from a Clinical Trial they can share?

Mainly muscle relaxants, I know about chest infections and GSF 😋

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive