Posts - PSP Association | HealthUnlocked

PSP Association

9,625 members•11,552 posts

All posts for September 2020

Keeping PSP & CBD a priority during the COVID-19 crisis

"PSPA is aware as many as 50% of people living with PSP & CBD are initially misdiagnosed with similar neurodegenerative conditions such as Parkinson’s. We will...

"PSPA is aware as many as 50% of people living with PSP & CBD are initially misd...

Administrator•4 years ago

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Prednisone en fiáis bajas para psp

Alguien ha usado prednisone con pacientes de psp, mi esposo las tomo para un ataque de asma por aspiración de comida y note que no solamente mejoró su...

Alguien ha usado prednisone con pacientes de psp, mi esposo las tomo para un ata...

•4 years ago

You are never prepared for it 😢

My dad has been fighting against PSP for 16 yrs but now he is at the final stage. He had a pneumonia 2 months ago so he stayed In icu for 2 weeks. He turned...

My dad has been fighting against PSP for 16 yrs but now he is at the final stage...

•4 years ago

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THE BENEFITS OF TAURINE ON STRESS

I recently found some interesting info re: Taurine, an amino acid that can be missing in the brain or lower in people with neurological disorders with extreme...

I recently found some interesting info re: Taurine, an amino acid that can be mi...

•4 years ago

Take part in The Great PSPA Cake Off

Join us this autumn as we celebrate our love for baking by launching our first ‘Bake Off’ inspired cake decorating competition! Use your love of baking and...

Join us this autumn as we celebrate our love for baking by launching our first ‘...

Administrator•4 years ago

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No longer able to read

My husband has had PSP for about 5 years. I just noticed that he is no longer able to read the newspaper. Can anyone share experience with special glasses...

My husband has had PSP for about 5 years. I just noticed that he is no longer a...

•4 years ago

Participants wanted for small research study

Liberating Research are conducting a small study aiming to improve their understanding PSP & CBD and their impact on the daily lives of the individual affected...

Liberating Research are conducting a small study aiming to improve their underst...

Administrator•4 years ago

Simon Koe steps down as PSPA Chair

Following a five year term as Chair of Trustees, Simon Koe, this week confirmed he would be stepping down from the charity. Over the past five years, Simon has...

Following a five year term as Chair of Trustees, Simon Koe, this week confirmed ...

Administrator•4 years ago

Combative Behavior and Delusions

My husband has been expressing delusional thinking and combative behavior. Is this in any of the stages of PSP? He has always been reasonable and kind. I’m...

My husband has been expressing delusional thinking and combative behavior. Is th...

•4 years ago

Research shows neuroinflammation and tau co-localise in PSP

New research at the University of Cambridge with PSPA funding has shown inflammation in the brain occurs in PSP. It is found in the same part of the brain as...

New research at the University of Cambridge with PSPA funding has shown inflamma...

Administrator•4 years ago

I’m new to posting..

I have been diagnosed since June of 2019 with Parkinsonism , probable PSP by a movement disorder specialist. I cycle inside or outside daily. I still enjoy...

I have been diagnosed since June of 2019 with Parkinsonism , probable PSP by a m...

•4 years ago

PSP Consultation

Hi. My mum has her first consultation next week in the PSP clinic at hospital. I have arranged with the nursing home to take mum to the appointment myself, by...

Hi. My mum has her first consultation next week in the PSP clinic at hospital. I...

•4 years ago

Head protection for falls?

Hi everyone, Mum has had a nasty fall over night, she had got up to check that the lights were out in the corridor (she just can’t seem to stay put!) and fell...

Hi everyone, Mum has had a nasty fall over night, she had got up to check that ...

•4 years ago

Inability to control micturation for long and takes too long to eat.

Hey I am from Pakistan and my Dada was diagnosed with pssp 5 yrs back but now he can't control his micturation for more than a minute and also takes a lot of...

Hey I am from Pakistan and my Dada was diagnosed with pssp 5 yrs back but now he...

•4 years ago

Her Eyes Smile

Can you see her smile underneath that mask? Swallow test success ✅ I have had to cancel the test twice Since March, because they would not allow me to go back...

Can you see her smile underneath that mask? Swallow test success ✅ I have had t...

•4 years ago

Advice

Hi everyone, my mother died in jan of PSP. Aged only 60. All these months down the line and I’m still really struggling with the reality of losing her... does...

Hi everyone, my mother died in jan of PSP. Aged only 60. All these months down t...

•4 years ago

Sussex Regional Meeting - 29 September

We will be holding a Zoom meeting at 2pm on 29 September, for everyone living in Eastbourne, Worthing and West Sussex. The aim of the meeting is to provide an...

We will be holding a Zoom meeting at 2pm on 29 September, for everyone living in...

Administrator•4 years ago

trials make us strong

Hi everyone, I'm new here. my hubby has recently confirmed in 2020 with psp. he was diagnosed with Parkinson's in 2015. unfortunately he kept to himself and...

Hi everyone, I'm new here. my hubby has recently confirmed in 2020 with psp. he...

•4 years ago

Research study participants wanted

Researchers at the University of Sheffield are looking for participants to help develop a NeuroCare digital learning tool for care staff and families living...

Researchers at the University of Sheffield are looking for participants to help ...

Administrator•4 years ago

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TV license

Has anyone managed to get a reduced fee TV licence due to poor eye sight from this condition?

Has anyone managed to get a reduced fee TV licence due to poor eye sight from th...

•4 years ago

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Youth Support Group meeting - 30 September

Our first Youth Support Meeting is taking place on Zoom at 7pm on Wednesday 30 September. If you are aged between 8 and 30 years old and would like to dial...

Our first Youth Support Meeting is taking place on Zoom at 7pm on Wednesday 30 S...

Administrator•4 years ago

communication

Hi can i ask, when communication and voice has gone overnight due to an acute uti, will the voice come back after antibiotics and the person recovering.

Hi can i ask, when communication and voice has gone overnight due to an acute ut...

•4 years ago

My husband is refusing his meds

John has finally been diagnosed with PSP. It's only been 4 years! But he is starting to refuse his anti depressants, saying they are causing his headaches....

John has finally been diagnosed with PSP. It's only been 4 years! But he is st...

•4 years ago

My mum wins her battle against PSP at last!

Hi All, My mum passed away few hours back. She lived for 7 years with PSP The last few months has been a real struggle Finally she found her peace. u all have...

Hi All, My mum passed away few hours back. She lived for 7 years with PSP The la...

•4 years ago

Incontinence

My mum has CBD..she urinates 2 to 3 times every hour from 9am to 10.30pm..between 10.30pm and 11.15pm tonight she went 3 times. At 12.20 she just woke me to...

My mum has CBD..she urinates 2 to 3 times every hour from 9am to 10.30pm..betwee...

•4 years ago

July 4 2020 🇺🇸

Would like to thank every one who sent their condolences, your caring meant a lot to me, yes it is bittersweet when they pass, it was a long 10 year journey...

Would like to thank every one who sent their condolences, your caring meant a l...

•4 years ago

Bed sores

Hello everyone! Just looking for some advice please. My Mum has been in hospital for the past month and is starting to get a bed sore on her sacrum. I know...

Hello everyone! Just looking for some advice please. My Mum has been in hospital...

•4 years ago

Share tips and information to help the PSPA Community

Help other members of the PSPA Community by leaving your #MyPSPALegacy in the comments below 👇 From useful information about travel, day out and shopping, to...

Help other members of the PSPA Community by leaving your #MyPSPALegacy in the co...

Administrator•4 years ago

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"Learn all you can about PSP."

Tim recently spoke to Uspire about his PSP diagnosis. Tim said: “I would recommend learning all that you can about the disease, no matter how disconcerting it...

Tim recently spoke to Uspire about his PSP diagnosis. Tim said: “I would recomme...

Administrator•4 years ago

Ice Cream Therapy

You cant buy happiness…but, you can buy ice cream and that is pretty much the same thing! I say, every day should start with coffee & end with ice cream....

You cant buy happiness…but, you can buy ice cream and that is pretty much the sa...

•4 years ago

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