Posts - PSP Association | HealthUnlocked

PSP Association

9,250 members • 11,347 posts

All posts for February 2014

profuse sweating.....

I am writing this for my mother in law to which is the sole carer of her husband with PSP. As many of you no it is hard to get time to yourself. She has not...

I am writing this for my mother in law to which is the sole carer of her husband...

gahelper1414

•10 years ago

9 Replies

Does any other PSP sufferer have problems with Pseudo Obstruction of the stomach/bowel?

davyh

•10 years ago

8 Replies

My mother-in-law, Peg was diagnosed with PSP and several symptoms of CBD in December 2013. Is it common to be dealing with both diseases?

I haven't seen much on CBD....do they have the same progression or does one progress faster than the other?

I haven't seen much on CBD....do they have the same progression or does one prog...

Buckeye7

•10 years ago

15 Replies

Want to take advantage of all our features? Just log in!

My friend's head lies full forward now when she is sitting. She can only lift it when verbally cued, and then only 1/4 inch.

Is a soft neck brace helpful? Thanks for your comments.

patandlinda

•10 years ago

7 Replies

About thick saliva buildup........

My wife does not yet have a problem of excess saliva but does have the issue of thick saliva. We've stopped the milk products because they can cause saliva to...

My wife does not yet have a problem of excess saliva but does have the issue of ...

jimandsharynp

•10 years ago

5 Replies

Hi my husband was diagnose with psp in aug 2013 but suspected about 2 years he was In hospital for a month with infection it seemed travel

Through his body as chest kidneys and bladder was affected we nearly lost him now since he has come home he has lost his speech his speech was slurred a bit...

Through his body as chest kidneys and bladder was affected we nearly lost him no...

Kris1983

•10 years ago

3 Replies

COCONUT OIL

1ST My meds/Sup coconut oil , CoQ10 , turmeric , Sinemet I take these for my psp. b-12 , asprin ,flecanide , diltizem for my heart condition, I ran out of...

1ST My meds/Sup coconut oil , CoQ10 , turmeric , Sinemet I take these for my p...

edkor

•10 years ago

18 Replies

Newly diagnosed

My father has just been told he likely had PSP. We know nothing at all about the condition so any info will be belpful please.

My father has just been told he likely had PSP. We know nothing at all about the...

Andyclairea1

•10 years ago

17 Replies

How long has you or your loved one had PSP?

Hi all, been going down the old road, why?how? Etc. etc. and have come up with this theory! How long has you or your loved had PSP? From reading all of your...

Hi all, been going down the old road, why?how? Etc. etc. and have come up with t...

Heady

•10 years ago

24 Replies

Hello all! my dad has PSP for about 2 years. it is difficult especially for my mum:-( who takes care of him all the time. one of the problem

we experience are his eyes. He rather keeps them close as they are itchy and very sensitive for light. also very red inside. The doctor gave us a cream , then...

we experience are his eyes. He rather keeps them close as they are itchy and ver...

zuzanka2

•10 years ago

9 Replies

Is Apathy just as bad?

Just been reading all your comments about temper tantrums. My husband did suffer from them for years, long before we realised that something was wrong. I...

Just been reading all your comments about temper tantrums. My husband did suffe...

Heady

•10 years ago

15 Replies

Mum and Dad

Hi. Just a quick update to say that dad's heart surgery went well on Thursday, and yesterday they even had him walking a circuit of the ward. Mum is in respite...

Hi. Just a quick update to say that dad's heart surgery went well on Thursday, a...

lindsey48

•10 years ago

12 Replies

Symptoms of chest infection?

My dad has psp. He chokes a lot. A lot. He seems so extra ill all the time at the moment.... stuff like always being too hot, being so tired all the time,...

My dad has psp. He chokes a lot. A lot. He seems so extra ill all the time at th...

Orangezebragirl

•10 years ago

19 Replies

Has anyone else had to deal with very violent outbursts?

I am beginning to dread doctor and therapy appointments. The least little thing will set him off. He is very combative and still mobile (though starting to...

I am beginning to dread doctor and therapy appointments. The least little thing ...

goldcap

•10 years ago

19 Replies

hi all, any information about holidays abroad with PSP - especially in france?

1st time on the forum , my dad has PSP can barely walk and my mum cares for him. They are french and live in france - I would love to help them get away - but...

1st time on the forum , my dad has PSP can barely walk and my mum cares for him....

gwend

•10 years ago

8 Replies

I'm feeling very sad today :(

We put my hubby into a care facility today. He was teary eyed going to bed at home last night knowing it's possibly his last night ever spent here. I too had a...

We put my hubby into a care facility today. He was teary eyed going to bed at ho...

laroux

•10 years ago

26 Replies

Hello, My dad has been suffering from PSP for about 7-8 years he was officially diagnosed in 2011. He has developed a cough...

which has increasingly become worst. my theory is that is choking on his saliva but can it be something else? It is very loud and at times is a an extended...

which has increasingly become worst. my theory is that is choking on his saliva ...

jessybx19

•10 years ago

9 Replies

Hi my husband went into hospital with an infection he was very ill now since infection is clear he has not been able to say anything o

Only diagnosed in August 2013 with psp has anyone else experienced doctors are baffled he is 64 kris1983

Only diagnosed in August 2013 with psp has anyone else experienced doctors are ...

Kris1983

•10 years ago

6 Replies

New ere

Hi I am new ere I lost my mum last week on the 11th February , it was sudden even though she was 82 , the funeral is on Friday , my heart is broken just don't...

Hi I am new ere I lost my mum last week on the 11th February , it was sudden eve...

nodramas

•10 years ago

9 Replies

Coq10 Uniquinol for PSP patient query.

Hey after reading about how coq10 has been benefiting some of the patients,we have decided to give it a shot for my grand dad who suffers from PSP. My question...

Hey after reading about how coq10 has been benefiting some of the patients,we ha...

chopra123

•10 years ago

6 Replies

Mum has got psp and I have been told she has blood in her urine. Is this common? Also what is causing it? Thank you

steph75

•10 years ago

5 Replies

Local Support Groups in the UK.

Is anyone on this forum involved with the new local support group for sufferers of PSP/CBD arranged by the PSP Association? If so, would you be prepared to...

Is anyone on this forum involved with the new local support group for sufferers ...

Peter3

•10 years ago

13 Replies

Memantine

Consultant is suggesting Memantine in place of Rivistigmine. Anyone with any experience of this drug for CBD?.

Consultant is suggesting Memantine in place of Rivistigmine. Anyone with any exp...

•10 years ago

8 Replies

Dad lost his fight

My Dad lost his long hard battle against PSP on 13th February. He fought bravely for so long, I can't quite believe the struggle is finally over for him. We...

My Dad lost his long hard battle against PSP on 13th February. He fought bravely...

Sharon637

•10 years ago

54 Replies

Dark Pitch Black Room = No Balance

Even though I can't tolerate bright lights I also can't stand up in complete darkness. I tested this several times and if I shut off all lights and make the...

Even though I can't tolerate bright lights I also can't stand up in complete dar...

mcfly

•10 years ago

7 Replies

Hi my husband was diagnosed in August. 2013 with psp he was in hospital. Gravely ill with chest and urine infection. But it seemed to affect

His whole body his kidneys sodium levels he is also on drips as he is peeing a lot he has now clear of infection. But sleeping an awful lot does anyone else...

His whole body his kidneys sodium levels he is also on drips as he is peeing a l...

Kris1983

•10 years ago

7 Replies

Dad's operation

Hi. I don't know if you remember me but mum has PSP and dad was waiting for heart valve replacement surgery. We just heard yesterday that dad's operation s to...

Hi. I don't know if you remember me but mum has PSP and dad was waiting for hear...

lindsey48

•10 years ago

10 Replies

Medication for PSP.

Hey hows your daily lifestyle and what medicines are you on for PSP. is it helping? xoxo.

Hey hows your daily lifestyle and what medicines are you on for PSP. is it helpi...

chopra123

•10 years ago

60 Replies

Need Advices for Steps to be taken

My father Age 60 having PSP.WE diagnosed 1 week before.His right hand and right leg are slow active...falling all of a sudden...Now he s in complete bed...

My father Age 60 having PSP.WE diagnosed 1 week before.His right hand and right ...

hitsshanu

•10 years ago

35 Replies

Frend with PSP can't use Thickit, it makes saliva so thick she can't talk at all, yet she chokes on liquids. Is there something that works?

patandlinda

•10 years ago

38 Replies

Search posts

Latest poll

See all polls

What are your main concerns as a carer?

Vote

Topics

All posts(134)

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2014

profuse sweating.....

Does any other PSP sufferer have problems with Pseudo Obstruction of the stomach/bowel?

My mother-in-law, Peg was diagnosed with PSP and several symptoms of CBD in December 2013. Is it common to be dealing with both diseases?

My friend's head lies full forward now when she is sitting. She can only lift it when verbally cued, and then only 1/4 inch.

About thick saliva buildup........

Hi my husband was diagnose with psp in aug 2013 but suspected about 2 years he was In hospital for a month with infection it seemed travel

COCONUT OIL

Newly diagnosed

How long has you or your loved one had PSP?

Hello all! my dad has PSP for about 2 years. it is difficult especially for my mum:-( who takes care of him all the time. one of the problem

Is Apathy just as bad?

Mum and Dad

Symptoms of chest infection?

Has anyone else had to deal with very violent outbursts?

hi all, any information about holidays abroad with PSP - especially in france?

I'm feeling very sad today :(

Hello, My dad has been suffering from PSP for about 7-8 years he was officially diagnosed in 2011. He has developed a cough...

Hi my husband went into hospital with an infection he was very ill now since infection is clear he has not been able to say anything o

New ere

Coq10 Uniquinol for PSP patient query.

Mum has got psp and I have been told she has blood in her urine. Is this common? Also what is causing it? Thank you

Local Support Groups in the UK.

Memantine

Dad lost his fight

Dark Pitch Black Room = No Balance

Hi my husband was diagnosed in August. 2013 with psp he was in hospital. Gravely ill with chest and urine infection. But it seemed to affect

Dad's operation

Medication for PSP.

Need Advices for Steps to be taken

Frend with PSP can't use Thickit, it makes saliva so thick she can't talk at all, yet she chokes on liquids. Is there something that works?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive