Downhill: Syringedriver been in place a... - PSP Association

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Downhill

Zeberdee profile image
30 Replies

Syringedriver been in place a couple of weeks. Hyoscine to help dry up secretions created by the terrible coughing and morphine for the pain caused by the coughing. Extra stat doses are also being given by needle as only so much hyoscine can be given in the driver. This must be painful as hubby has lost a tremendous amount of weight. Elbows and knees turning purple today which means the body is starting to close down. Hubby has been asleep since Saturday lunchtime and doesn’t appear to be in pain and is comfortable. Feel so helpless watching decline. Cannot post approprite words for how I feel about PSP. Jxx

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Zeberdee profile image
Zeberdee
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30 Replies
Satt2015 profile image
Satt2015

Aww Zeberdee so utterly saddened to read. Sending you much love and strength for the coming days. I won’t post the words I feel about Psp, I’d seriously offend too many people here! Hugs darling x

Zeberdee profile image
Zeberdee in reply to Satt2015

My thanks satt2015 I need strength. Jxx

easterncedar profile image
easterncedar

My heart is with you. Love and peace and strength to you and your family. Ec

Yvonneandgeorge profile image
Yvonneandgeorge in reply to easterncedar

My heart also goes out to you, so sad, sending you a big hug I feel you need it, words can’t express my feelings xxxx

Zeberdee profile image
Zeberdee in reply to Yvonneandgeorge

My thanks to you Jxx

Zeberdee profile image
Zeberdee in reply to easterncedar

Thankyou Ec. Jxx

Kevin_1 profile image
Kevin_1

Zeberdee. J

Just to say your not alone.

I and, I am sure many others, are here for you.

I have lit a candle for you both and placed it in the window, old seafarer fashion, for sailors in peril. To bring them home.

Warmly

Kevin

xx

Zeberdee profile image
Zeberdee in reply to Kevin_1

Thankyou Kevin I appreciate your kind words and action. Jxx

doglington profile image
doglington

Big hug, Zeberdee. I know how it is and have no words.

love, Jean xx

Zeberdee profile image
Zeberdee in reply to doglington

Thankyou Jean x I do love hugs Jxx

Careenh profile image
Careenh

So so sad😢 I'm dreading the time we get to that stage with my mum, which I don't think will be long. God bless you. Stay strong. 💔 xx

Zeberdee profile image
Zeberdee

Thankyou we all need strength because it’s so hard. Jxx

Hi J we are with you too and I am sending my love and hugs to you at this very sad time. We are not far behind you and I know its so very difficult prayers Mxx

Zeberdee profile image
Zeberdee

My thoughts are with you too xx Jxx

Marie_14 profile image
Marie_14

J this is so sad. Poor man. There have been so many sad posts this year. I wish so much they would find a cure. God bless you both. Hold his hand, kiss him, and tell him you love him.

Hugs to you J.

Marie x

Heady profile image
Heady

No words needed on how you feel about PSP. We all feel the same. My heart goes out to you at this very painful time. Just cuddle him and tell him you love him, as much as you can.

Sending very big hug and much love

Lots of love

Anne

JR61 profile image
JR61

Feeling so sad for you both, wishing you both strength in your hour of need JR61 x

Julieandrog profile image
Julieandrog

Brave warriors, these men are so strong, my heart is aching for you

Julie x

Pentland profile image
Pentland

Hi Zeberdee. I am so sorry for both of you. Why is it that we appear to be asked to cope with things that are totally unbearable but we seem to get the strength to hang in there? I hope it helps to know that so many people have you in their thoughts. Take care of yourself.

Margaret

PUTLAND profile image
PUTLAND

My heart goes out to you this time last month I was in your situation. Hold his hand tell him you love him. Big hugs from me xxxx

1941mary profile image
1941mary

May you find strength zeberdee .... im So saddened to read your post . Please know we are all sending you love and stay strong.

Jude

Xxxx

Sawa profile image
Sawa

Hi Zeberdee, so sorry to read your post. Unfortunately too many of us have walked that road and know just how you feel. Sending you strength and peace and much love (and hugs, because you said you like them!). I will hold you both in my thoughts. Treasure the time that you have and love him as much as you can. xx

Robmatlol profile image
Robmatlol

Dear Zeberdee, sending you the biggest of hugs. We have literally just been thru this. Mum passed on the 3rd December. She too had syringe driver and parts of her body began shutting down, her heels turned black where the tissue was dying. It was awful to watch and at that point you just want it to be over so that our loved one is not suffering any longer. It sounds as though your husband is very near the end. Stay strong a little longer sweetheart. God bless, Michele xxx

Sadden to read you post,it must be so frightening for you.As much as we read and try to prepare ourselves for this point in this dreadful disease I don't think it will be ever enough to say goodbye to your love one.

(((Hugs)))

Dee

Zeberdee profile image
Zeberdee in reply to

You are so right x thankyou. Jxx

41273416a profile image
41273416a

I wish you all peace and love. I have this disease and wouldn’t wish it on anyone. Love, Mary B.

Zeberdee profile image
Zeberdee in reply to 41273416a

Mary I am so dreadfully sorry that you should have this nightmare of a disease. Sending you love and strength. Jxx

41273416a profile image
41273416a in reply to Zeberdee

Thank You,Zeberdee. Great to hear from you.

Cuttercat profile image
Cuttercat

Oh dearest, I'm so sorry. I'll start praying for you.

Cuttercat

Cuttercat profile image
Cuttercat

Oh dearest Zeberdee, I'll start praying for you.

Cuttercat

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