Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for January 2018

Full Moon

Hi all, long time no post. just wondering if anyone else suffering because of the full moon? I always seem to get more flare up round the time of the full...

Hi all, long time no post. just wondering if anyone else suffering because of ...

•6 years ago

The Other Man

The "Phantom Stealing People" (PSP) my new acronym!! Charles isn't truly here anymore. He's taking Trazadone at night and they just upped the dose again to...

The "Phantom Stealing People" (PSP) my new acronym!! Charles isn't truly here a...

•6 years ago

PSP care Philippines

Hi everyone my name is Jonathan Torreon I'm from Philippines, I am taking care of my mother who was diagnosed with PSP last 2016. Here in my country it is...

Hi everyone my name is Jonathan Torreon I'm from Philippines, I am taking care o...

Jonathan_Torreon

•6 years ago

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Decline, flu, recovery, decline?

Dans PSP seemed to be causing a rapid decline the past several weeks. He would stop mid way when eating, leaving food in his hand near his mouth, but not...

Dans PSP seemed to be causing a rapid decline the past several weeks. He would ...

•6 years ago

Can PSP progress quite fast or very quickly

My husband T has been diagnosed with PSP in 2013. Apart from his deteriorating speech attendant gagging on water, he seemed to be beating the odds, and we were...

My husband T has been diagnosed with PSP in 2013. Apart from his deteriorating s...

•6 years ago

Bad back pain

Can i take paracetamol while im on amitriptyline and etoricoxib it's for bad back pain

Can i take paracetamol while im on amitriptyline and etoricoxib it's for bad bac...

•6 years ago

Donation

Since my hubby died on the 14th December 2017 I haven’t posted but I have been reading what has been occurring on the forum. Each day is now different in fact...

Since my hubby died on the 14th December 2017 I haven’t posted but I have been r...

•6 years ago

Pip

I have been on dla then pip for 21 years I went to an assessment and was seen to pick up my bag and walk a bit longer than I said because I was in there over 2...

I have been on dla then pip for 21 years I went to an assessment and was seen to...

•6 years ago

My Dad

My dad was diagnosed with PSP in October 2015. We were very lucky that his Neurologist diagnosed it straight away. He had several years of little falls,...

My dad was diagnosed with PSP in October 2015. We were very lucky that his Neur...

•6 years ago

Thank You to our Survivors: Part 2

This is a Thank You to those of you who have completed the PSP/CBD journey with your loved one, and who stay connected to this site. Your "freedom" has come at...

This is a Thank You to those of you who have completed the PSP/CBD journey with ...

•6 years ago

Thank You to our Survivors: Part 1

2 parts to this post: First of all: Thank you to those of you PSP/CBD survivors who check in and share with us: Jillianf6, BargiePatrick, JimM, Brian, Tom,...

2 parts to this post: First of all: Thank you to those of you PSP/CBD survivors...

•6 years ago

Lovely day with beautiful granddaughter

Something to feel happy about our first granddaughter is 18 such a special beautiful young lady, love her so much, she passed her driving test on Friday, my...

Something to feel happy about our first granddaughter is 18 such a special beaut...

Yvonneandgeorge

•6 years ago

Can’t create a new post on the PSP site.

I seem to have lost the ability to create a new post. I noticed my name is no longer on my page when I sign in. No idea what is going on.

I seem to have lost the ability to create a new post. I noticed my name is no lo...

•6 years ago

COPD, dysphagia and the future

Hi all, I'm new here, and the reason I joined is I'm looking in for information from people who have been in our situation. My dad is 73 has COPD, recently...

Hi all, I'm new here, and the reason I joined is I'm looking in for information...

Margie1000000000

•6 years ago

First timer

Hello to all you wonderful and caring people! This is my first time posting although I have been following you since September 2017 ( kinda like a stalker...

Hello to all you wonderful and caring people! This is my first time posting alt...

•6 years ago

Advice needed on chewing himself and objects

My husband is chewing everything. He is chewing his fingers until they bleed, he has a blood blister on his arm that he bites until it bleeds. He chews the...

My husband is chewing everything. He is chewing his fingers until they bleed, h...

•6 years ago

bathrooms an windows

many many thanks for all your wonderful, helpful suggestions on en suite bathrooms. as a thank you i attach a scan of a painting i did in 1992 n a country...

many many thanks for all your wonderful, helpful suggestions on en suite bathroo...

•6 years ago

Show us your wet room lol

I just thought I would add a pic of my wet room that was fitted for David. Very functional if a bit medical, but it was fitted by the local authority here so...

I just thought I would add a pic of my wet room that was fitted for David. Very...

•6 years ago

Bathroom, wet, Wett room 2nd picture

The bar has been proven to be very helpful, its a rail off a old tread mill,with added runner.Neil has something to lean on when getting up from the toilet.

The bar has been proven to be very helpful, its a rail off a old tread mill,with...

•6 years ago

Picture of bathroom,wet,Wett room.

It may help others with ideas,shower commode is a big help,I'm going to post another picture of the toilet area.wish there was a easier of posting pictures

It may help others with ideas,shower commode is a big help,I'm going to post ano...

•6 years ago

Speaking

My mother's PSP is worsening to the point where she is rarely able to speak in a manner that one can hear and or understand. Are there any kind of symbol...

My mother's PSP is worsening to the point where she is rarely able to speak in a...

•6 years ago

Respite care at home

Hi Has anyone had respite care delivered at home from someone living in? The hospice don't do inpatient respite care unfortunately, which is the only place Mum...

Hi Has anyone had respite care delivered at home from someone living in? The hos...

•6 years ago

Respite care at home

Hi Has anyone had respite care delivered at home from someone living in? The hospice don't do inpatient respite care unfortunately, which is the only place Mum...

Hi Has anyone had respite care delivered at home from someone living in? The hos...

•6 years ago

adding a bathroom

we are planning ahead for the time when i need to move downstairs so we are building a bathroom onto the study room on the ground floor which will also connect...

we are planning ahead for the time when i need to move downstairs so we are buil...

•6 years ago

QUERY PEG FEEDING

Terry had a PEG tube fitted two weeks ago - spent 7 days in hospital- 3 of them on fluids only for hydration before the feed regime was commenced. I am now...

Terry had a PEG tube fitted two weeks ago - spent 7 days in hospital- 3 of them ...

•6 years ago

Coughing problem

Hello again everyone. Valerie has had a build up of phlem in her throat the last couple of weeks. I've tried pineapple juice and carbosystine but not had much...

Hello again everyone. Valerie has had a build up of phlem in her throat the last...

•6 years ago

Has anyone else had this experience with chc?

I've tried to post a link to my blog lookingafterdadblog.wordpress.com but can't seem to at the moment so thought I'd just post my query... My Dad was...

I've tried to post a link to my blog lookingafterdadblog.wordpress.com but can'...

•6 years ago

Farewell

We were finally able to lay Rog to rest on Monday. He was piped in by Jimmy the piper!Delma and i had done all his flowers on Saturday with the help of a...

We were finally able to lay Rog to rest on Monday. He was piped in by Jimmy the...

•6 years ago

Sudden tremors

Looking for some advice please. My mum has PSP and both her and my father live with me. My dad is 83 and up until 2 weeks ago looked after Mum whilst I was at...

Looking for some advice please. My mum has PSP and both her and my father live w...

•6 years ago

Changes to home/house...will he be able to cope with upheaval? Any advice?

Hi all, I don't know if anyone can help with this as each case is so different, and every family situation different as well. Dad (79)has PSP, diagnosed last...

Hi all, I don't know if anyone can help with this as each case is so different, ...

•6 years ago

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