Posts - PSP Association | HealthUnlocked

PSP Association

9,254 members • 11,351 posts

All posts for October 2015

the online party for next friday?

it has been suggested that i offer a couple of dates rather than just fixing it for next friday 6th NOVember: so what about the following Tuesday 10th how is...

it has been suggested that i offer a couple of dates rather than just fixing it...

jillannf6

•8 years ago

24 Replies

Help!

Does anyone have any advice for me, any way to prevent the toilet destruction? He just cracked his third one, water everywhere. I had hoped that the raised...

Does anyone have any advice for me, any way to prevent the toilet destruction? H...

easterncedar

•8 years ago

44 Replies

What color is PSP?

Just read the wonderful post about support of breast cancer. And I am sure one or two of us have loved ones with this dreaded condition! I support the need to...

Just read the wonderful post about support of breast cancer. And I am sure one ...

abirke

•8 years ago

16 Replies

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End Of The Day

The magic of the estuary as night approaches.

Georgepa

•9 years ago

16 Replies

A routine seems to help.

So for the last 3 years I have not been able to have any type of routine. My husband Mr C has been eating the same foods and drinking the same drinks, watching...

So for the last 3 years I have not been able to have any type of routine. My hus...

AlmaJ67

•9 years ago

29 Replies

CHC

I am sick and tired of this CHC struggling to look after the person you are caring for, district nurse came, she has to redo the assessments, because things...

I am sick and tired of this CHC struggling to look after the person you are cari...

Yvonneandgeorge

•9 years ago

11 Replies

New scientist article October 2015

A trial of anti cancer medication has helped bedridden ppl walk and talk for the first time in years, finds Jessica Hamzelou. It is the first drug that seems...

A trial of anti cancer medication has helped bedridden ppl walk and talk for the...

Hidden

•9 years ago

11 Replies

ANOTHER ONLINE PARTY?

AR E WE GOING TO HAV E ANOTHER ONLIEN PARTU B4 XMAS I HOPE IS A WEEKDAY BETTER THAN A WEEKEND AND WHAT TIME WOULD SUIT YOU ALL >> I SUGGEST NOVEMBER 6TH...

AR E WE GOING TO HAV E ANOTHER ONLIEN PARTU B4 XMAS I HOPE IS A WEEKDAY BETTER T...

jillannf6

•9 years ago

31 Replies

HI EVERYONE

Hope everyone is doing well havent been on in a while only for a few seconds to check on everyone things have been just crazy. Well you want to hear something...

Hope everyone is doing well havent been on in a while only for a few seconds to ...

kryste

•9 years ago

14 Replies

decisive diagnosis

I joined the group early on this year with a tentative and provisional diagnosis for my husband F of PSP/CBD. I have followed post and been convinced that it...

I joined the group early on this year with a tentative and provisional diagnosis...

hellebore

•9 years ago

19 Replies

Eating

Hi My mum is losing weight fairly rapidly and now weighs about 42kg. She is still able to eat and drink ( puréed food and thickened drinks). However for the...

Hi My mum is losing weight fairly rapidly and now weighs about 42kg. She is st...

Bob40

•9 years ago

7 Replies

British Summer time Ends

C has 2 night carers during the week. Both are good at their job but of totally different character. S will arrive early and make me a hot drink, sit down and...

C has 2 night carers during the week. Both are good at their job but of totally...

NannaB

•9 years ago

26 Replies

Struggling

Anybody else out there suffering verbal abuse from a psp sufferer. My husband uses me as a verbal battering ram, shouting that he's had enough of this illness,...

Anybody else out there suffering verbal abuse from a psp sufferer. My husband us...

gypsywoman1947

•9 years ago

27 Replies

Losing interest.

My husband woke up in the middle of the night and asked,"Who are you? At first I thought he was kidding but he truly was bewildered. In the morning he did not...

My husband woke up in the middle of the night and asked,"Who are you? At first ...

goldcap

•9 years ago

21 Replies

Chris

Hi extended family ! Went out for girls luncheon yesterday with girls that I used to work with ( we known as the old teasers ) there's always maltesers on...

Hi extended family ! Went out for girls luncheon yesterday with girls that I us...

Chrism2

•9 years ago

32 Replies

University of Miami Study with Mannose

Hi. My sister was diagnosed with PSP 2 years ago. Like many of you, I have spent time searching the web for any possible thing that may help. I came across...

Hi. My sister was diagnosed with PSP 2 years ago. Like many of you, I have spe...

msmock

•9 years ago

7 Replies

Antacid for excessive mucus/saliva/sputum

Hi all, I keep seeing the excessive mucus /saliva / sputum causing choking symptom on this site. I hope what worked for my dad might work for someone else. My...

Hi all, I keep seeing the excessive mucus /saliva / sputum causing choking sympt...

carlam

•9 years ago

10 Replies

Heart issues with PSP

Morning everyone, hope you've all got some sleep and have a good day to look forward to. Just wondered if anyone else has noticed any heart issues in their...

Morning everyone, hope you've all got some sleep and have a good day to look for...

Kelly55

•9 years ago

14 Replies

This describes me and my friends

I hope this makes you smile. It did me. X

NannaB

•9 years ago

11 Replies

CHC ......again!

Well we have submitted our complaint which is long and tedious but we have two allies. Bills neurologist and the community matron. Both reckon that if Bill...

Well we have submitted our complaint which is long and tedious but we have two a...

Kathie48

•9 years ago

13 Replies

Care to be different

I am sorry if I have posted this before, but the Care to be different website is a great help to anyone considering a CHC claim. It has helped guide me through...

I am sorry if I have posted this before, but the Care to be different website is...

NanBabs

•9 years ago

1 Reply

Tony dixon

My wife has psp and is falling down 2 a day in am having a terrible time trying to get her up my back is always hurting me can you get everything to...

My wife has psp and is falling down 2 a day in am having a terrible time tr...

tonydixo

•9 years ago

17 Replies

Hi everyone

Hi everyone that responded to my first post , so many of you I haven't replied to , but must say what a friendly lot you are It's a great site and has helped...

Hi everyone that responded to my first post , so many of you I haven't replied t...

Chrism2

•9 years ago

3 Replies

PSP pain relief ??

Hello all. Just wondered if any of you have any tips on pain relief. My poor Mum is in such pain now. Her hands are like claws and her hands and arms are so...

Hello all. Just wondered if any of you have any tips on pain relief. My poor M...

JB569

•9 years ago

7 Replies

AZILECT

Has anyone been on this medicine before? What are the side effects and intersections with other medicines? Have a nice day.

Has anyone been on this medicine before? What are the side effects and intersect...

mahmoud

•9 years ago

4 Replies

Mum passed away

My beautiful mum passed away last Friday after suffering PSP for around 7 years . My heart is breaking but I feel a sense of peace as she is now free of this...

My beautiful mum passed away last Friday after suffering PSP for around 7 years ...

elizalou1710

•9 years ago

30 Replies

To help find answers to help my Father

I heard gaba was very good for Parkinson. How can I help my dad with night and day HALUSAGENI. My father has had Parkinson's for over 10 yrs . It's at the...

I heard gaba was very good for Parkinson. How can I help my dad with night and d...

Alexgrant2

•9 years ago

10 Replies

Stages of psp

Hi lovely people. This is my first post though I have been 'stalking' you all for months. It's good to read from others experiencing the trials and...

Hi lovely people. This is my first post though I have been 'stalking' you all fo...

Robmatlol

•9 years ago

14 Replies

Recently diagnosed, Montréal, Québec, Canada

Hello, My brother (65 yrs old) had been diagnosed with PSP in May 2015. In retrospect, I think his symptoms started in 2013, maybe earlier. He lives by...

Hello, My brother (65 yrs old) had been diagnosed with PSP in May 2015. In ret...

Etoile

•9 years ago

6 Replies

WHY

I keep on forgetting to give D his meds on time. I am so petrified I am loosing it. His face looks worse today. The bruise below his eye is getting worse. It...

I keep on forgetting to give D his meds on time. I am so petrified I am loosing ...

Auddonz

•9 years ago

30 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2015

the online party for next friday?

Help!

What color is PSP?

End Of The Day

A routine seems to help.

CHC

New scientist article October 2015

ANOTHER ONLINE PARTY?

HI EVERYONE

decisive diagnosis

Eating

British Summer time Ends

Struggling

Losing interest.

Chris

University of Miami Study with Mannose

Antacid for excessive mucus/saliva/sputum

Heart issues with PSP

This describes me and my friends

CHC ......again!

Care to be different

Tony dixon

Hi everyone

PSP pain relief ??

AZILECT

Mum passed away

To help find answers to help my Father

Stages of psp

Recently diagnosed, Montréal, Québec, Canada

WHY

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive