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PSP Association

9,229 members • 11,328 posts

All posts for September 2014

Plan B

My friends, I need some advice. Last night I had a very panicked phone call from my Dad who is the primary carer for my Mum who has PSP. He was unwell and...

My friends, I need some advice. Last night I had a very panicked phone call from...

Katet68

•10 years ago

16 Replies

loss of sensation?

last night I questioned whether MSA, PSP or CBGD patients experienced pain when they had injuries from falls. My mother in law had CBGD and had little or no...

last night I questioned whether MSA, PSP or CBGD patients experienced pain when...

Buckeye7

•10 years ago

13 Replies

DEPRENYL

Is anyone on DEPRENYL if so I need comment good or bad how is it preforming? I might take it starting Monday . HELP PLEASE !!!!

Is anyone on DEPRENYL if so I need comment good or bad how is it preforming? I ...

edkor

•10 years ago

2 Replies

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SHOWERING

Has anyone had the shakes or pain after showering ?

edkor

•10 years ago

5 Replies

Should I take mam?

Hi everyone just a quick question,. Today at 2 o'clock the hospital near us (James Cook) has a big meeting on for people with psp, there is going to be a...

Hi everyone just a quick question,. Today at 2 o'clock the hospital near us (Jam...

Maxine12

•10 years ago

10 Replies

Poll....

Which hand is affected......your dominately used hand or the opposite one? Peg was left handed......but her right hand and side was her weak/stiff...

Which hand is affected......your dominately used hand or the opposite one? ...

Buckeye7

•10 years ago

22 Replies

Doesn't feel much pain....

My mother in law, Peg died in June of CBGD, she had been diagnosed as cerebellar ataxia, MSA, PSP before her final diagnosis. There is one issue, I have never...

My mother in law, Peg died in June of CBGD, she had been diagnosed as cerebellar...

Buckeye7

•10 years ago

12 Replies

Starting neuro-rehabilitation

Today we had our first visit to neuro-rehabilitation. Was aprehensive about it because it makes the psp real now. Up untill today it was just a diognoses told...

Today we had our first visit to neuro-rehabilitation. Was aprehensive about it ...

jzygirl

•10 years ago

29 Replies

Zolpidem:

Does anyone have any experience with this drug? My husband has PSP and terrible restlessness and continual pacing. Jill

Does anyone have any experience with this drug? My husband has PSP and terrible ...

zjillian

•10 years ago

5 Replies

sad

my hsband has stated to sleep a lot everytime i look at him i dont no if he is sad or happy i find myself keep saying to him are you alright does anyone else...

my hsband has stated to sleep a lot everytime i look at him i dont no if he is s...

laila123

•10 years ago

12 Replies

How do I make end of life decisions with dad without him thinking I just want rid of him?

Hi everyone! I've only just found this site but I'm so glad I have! Dad, aged 77, has had PSP for approximately 4 or 5 years. I care for dad in his own home...

Hi everyone! I've only just found this site but I'm so glad I have! Dad, aged 77...

Rexs_daughter

•10 years ago

8 Replies

Side affects or infection

Scopoderm patch applied on friday evening. Saturday saw no differance. 2am Saturday night Brian was up and it was a case of one up all up. So onto Sunday I was...

Scopoderm patch applied on friday evening. Saturday saw no differance. 2am Satur...

jzygirl

•10 years ago

12 Replies

Procerus revisited

There is much already published on the medical websites about the facial expressions in psp. Some call it a "worried look" others say "astonished, grimmising,...

There is much already published on the medical websites about the facial express...

mcfly

•10 years ago

19 Replies

Gadgets/gizmos to help CBD patient?

Hello, my dad has CBD and lives in a warden-assisted flat with Carers coming in four times daily. I organise his shopping and his finances and spend a couple...

Hello, my dad has CBD and lives in a warden-assisted flat with Carers coming in ...

Mikocat

•10 years ago

11 Replies

Hyoscine

Just a quick question is it best to have the patches or the tablets I have read the side affects of both and I'm worried that I will be doing Brian more harm...

Just a quick question is it best to have the patches or the tablets I have read ...

jzygirl

•10 years ago

18 Replies

Bad day

Hi. I'm having a bad day. Mum has been really demanding, and I'm finding it hard to cope. I have shouted at her. She lunged herself onto the commode (not to go...

Hi. I'm having a bad day. Mum has been really demanding, and I'm finding it hard...

lindsey48

•10 years ago

6 Replies

How do you deal with stress?

Hi all, As some of you know I had a really bad day on Friday. Nothing really happened, just a small thing that broke the camel's back! We went away for the...

Hi all, As some of you know I had a really bad day on Friday. Nothing really h...

Heady

•10 years ago

25 Replies

Bathroom Problems??

I am stuck with a worsening of my husband's PSP bathroom -ing problems at night. He paces at night and urinates everywhere and has large bowel movements and I...

I am stuck with a worsening of my husband's PSP bathroom -ing problems at night....

zjillian

•10 years ago

21 Replies

MY DAD WHO DID NOT HAVE PSP HAS DIED AGED 92 (I HAVE PSP)

HI ALL I THAS BEEEN SIGGESTED THAT I WRTE A PROPER POSTN ABTOUMHY DAD AS YOU WILL WANT OT KNWO SO WE SPENT THE WEEK BEFOR LAS T(GLORIOUS WEATHER) BACK HOEM IN...

HI ALL I THAS BEEEN SIGGESTED THAT I WRTE A PROPER POSTN ABTOUMHY DAD AS YOU WIL...

jillannf6

•10 years ago

29 Replies

Trek & half marathon for PSP

Hi all, Today I'm embarking on my first challenge to raise money for PSPA. Any support or words of encouragement much appreciated! Here is a link to my...

Hi all, Today I'm embarking on my first challenge to raise money for PSPA. Any...

running4PSPA

•10 years ago

2 Replies

Done correct today

After the escapade of our bus trip last week we just had to try it again this week and it was a success. Of we went on the bus Brian installed correctly so it...

After the escapade of our bus trip last week we just had to try it again this we...

jzygirl

•10 years ago

16 Replies

Throat problems

My husband has had throat problems for about a month now. Someone on here said it might be spams in the throat. Now he is starting to breath funny. He has...

My husband has had throat problems for about a month now. Someone on here said i...

mthteach

•10 years ago

13 Replies

Any PSP'ers in Cheltenham area?

I was just wondering if there were any carers / PSP peeps in the Cheltenham area on this site. My wonderful dad passed away from this dreadful disease nearly...

I was just wondering if there were any carers / PSP peeps in the Cheltenham area...

daughter_Julie

•10 years ago

3 Replies

This is a beautiful and meaningful article

http://www.salon.com/2014/09/06/alzheimers_a_love_story/ I found it helpful, reinforcing the lesson often given here to live in the present. Best wishes to...

http://www.salon.com/2014/09/06/alzheimers_a_love_story/ I found it helpful, re...

easterncedar

•10 years ago

28 Replies

Peacerose

Just been inform that neurologist thinks this may be my husband a diagnosis! Trong to be strong to be positive but help!

Just been inform that neurologist thinks this may be my husband a diagnosis! Tro...

Hidden

•10 years ago

18 Replies

Eyes

My husband has recently developed very small pupils,the optician wondered if it is due to medication. Also he reaches for his sunglasses all the time and lying...

My husband has recently developed very small pupils,the optician wondered if it ...

loppylugs5

•10 years ago

12 Replies

MY BUCKET LIST NO 1 a support group for psp in South Africa

I look at times pretty sickly an invetably the question is asked wants wrong. welll i may as well tell them i suffer from a deadly space virus picked up from...

I look at times pretty sickly an invetably the question is asked wants wrong. w...

whisperer

•10 years ago

11 Replies

Any advice?

Hi so I'm new to this type of thing and I've never really talked to anyone about this outside of family before and when I try and bring it up no one likes to...

Hi so I'm new to this type of thing and I've never really talked to anyone about...

Aggie2018

•10 years ago

7 Replies

just lost my mum to PSP

Hello all, my first post here. I dint know where else to go, so here I am, trying to understand PSP. My dear mum Carole was just 63 years old when she passed...

Hello all, my first post here. I dint know where else to go, so here I am, tryin...

my3babies

•10 years ago

14 Replies

Psp

Hi my dad has just got over a chest infection and wasn't sure he would make it very poorly . Went to see him yesterday and has developed another one and he...

Hi my dad has just got over a chest infection and wasn't sure he would make it v...

Glyder

•10 years ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2014

Plan B

loss of sensation?

DEPRENYL

SHOWERING

Should I take mam?

Poll....

Doesn't feel much pain....

Starting neuro-rehabilitation

Zolpidem:

sad

How do I make end of life decisions with dad without him thinking I just want rid of him?

Side affects or infection

Procerus revisited

Gadgets/gizmos to help CBD patient?

Hyoscine

Bad day

How do you deal with stress?

Bathroom Problems??

MY DAD WHO DID NOT HAVE PSP HAS DIED AGED 92 (I HAVE PSP)

Trek & half marathon for PSP

Done correct today

Throat problems

Any PSP'ers in Cheltenham area?

This is a beautiful and meaningful article

Peacerose

Eyes

MY BUCKET LIST NO 1 a support group for psp in South Africa

Any advice?

just lost my mum to PSP

Psp

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive