Posts - PSP Association | HealthUnlocked

PSP Association

9,253 members • 11,349 posts

All posts for January 2022

Common Denominator

I was searching today on the closing of someone's eye that has PSP and I discovered your group. As I read through some of the posts, I found that many of what...

I was searching today on the closing of someone's eye that has PSP and I discove...

•2 years ago

Accusations that are very concerning

Hope everyone is well as can be. I have a question about certain behaviors with this disease. My loved one I have been taken care of has recently accused care...

Hope everyone is well as can be. I have a question about certain behaviors with ...

Stephanielayell82

•2 years ago

OxQuip Research finding published

The OxQuip research team has today published some findings gained from looking into the longitudinal changes of early motor and cognitive symptoms in PSP. You...

The OxQuip research team has today published some findings gained from looking i...

Administrator•2 years ago

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Over a year ..

It’s been almost a year and a half since my Mom has been in the same room with my siblings. This past Sunday, I offered some time to be together —- all...

It’s been almost a year and a half since my Mom has been in the same room with m...

•2 years ago

New Discovery

As crazy as this may sound, I have found something that really is working for my Mom (Marlene). She is no longer able to be precise in pushing the button to...

As crazy as this may sound, I have found something that really is working for my...

•2 years ago

IS EXTREME BODY HEAT PART OF HAVING CBD?

Thank you to all who responded to my question about muscle constriction! Now I have another question. Since the cbd diagnosis, my husband suffers from an...

Thank you to all who responded to my question about muscle constriction! Now I...

•2 years ago

Anything to help excessive drooling for PSP?

Hi everyone. Just wondering if anyone has tried anything to help with drooling? My dad is drooling quite significantly. We had used patches but I don’t think...

Hi everyone. Just wondering if anyone has tried anything to help with drooling?...

•2 years ago

PAINFUL MUSCLE CONSTRICTION

I'm new to what appears to be a very friendly and helpful site! I'm caregiver for my husband who was diagnosed with CBD in 2018. We're both 75 and live in...

I'm new to what appears to be a very friendly and helpful site! I'm caregiver ...

•2 years ago

My sister has passed

My sister who we believe was in her 8th year with CBD has finally passed. My sister died January 12th after a long and painful struggle from this horrible...

My sister who we believe was in her 8th year with CBD has finally passed. My sis...

•2 years ago

Peace at last

My wife of 55 years passed away peacefully yesterday after a 4+ year battle with PSP. Her symptoms pretty well paralleled those of others with this same...

My wife of 55 years passed away peacefully yesterday after a 4+ year battle with...

•2 years ago

PSP and eyes watering

Does anyone know what would help with my mums extremely watery eyes from PSP please ? They don’t seem to bother her but continuously watering it looks so...

Does anyone know what would help with my mums extremely watery eyes from PSP ple...

•2 years ago

Looking for a cure

I am taking a lot of vitamins but haven't found the one that works yet? anyone out there that has used anything else?

I am taking a lot of vitamins but haven't found the one that works yet? anyone ...

•2 years ago

Hi I’m new here - my dad has PSP

Hello everyone. Hope this message finds everyone well. I’m happy to have found this online community since I’ve been feeling quite lonely throughout this...

Hello everyone. Hope this message finds everyone well. I’m happy to have found t...

•2 years ago

CHC - when is the right time?

My mum has CBD and I suspect in the mid stages. Dad is full time carer and I am there to support him as much as mum. I have power of attorney (health and...

My mum has CBD and I suspect in the mid stages. Dad is full time carer and I am ...

•2 years ago

INCONTINENCE

Hi my husband has PSP & has a few episodes of fecal incontinence, which has caused him considerable distress & anxiety about going out. Is it common with PSP?...

Hi my husband has PSP & has a few episodes of fecal incontinence, which has caus...

•2 years ago

Black outs or falling in deep sleep

My loved on whose diagnosed in 2015 with PSP. Is having difficulty swallowing big time starting to choke and asperating. But more recently have had what she...

My loved on whose diagnosed in 2015 with PSP. Is having difficulty swallowing bi...

Stephanielayell82

•2 years ago

Raising PSP-CBD Awareness

https://youtu.be/B_zLIROn-vk

https://youtu.be/B_zLIROn-vk

•2 years ago

Always Raising PSP-CBD Awareness

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DB_zLIROn-vk%26feature%3Dshare%26fbclid%3DIwAR0SRqWsVkTe5jPnlud9L_5a5cM71B7TwSwFVvpUzCyCQj

https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DB_zLIROn-...

•2 years ago

My mum is up to toilet to pass urine 6 or 7 times a night . GP prescribed gabapentin 100mg which does not seem to help . Any advice . .?

Urine frequency poor sleep

Urine frequency poor sleep

•2 years ago

Zoey’s Extraordinary Playlist

Thank you to whoever suggested watching this- I came across it accidentally whilst searching old posts last week. Whilst lamenting the fact that my mum is not...

Thank you to whoever suggested watching this- I came across it accidentally whil...

•2 years ago

Next stage corticobasal degeneration

Hi all first post in a while. I recently saw my neurologist. He was great as usual. Only this time he informed me that I am now at the next stage. But he did...

Hi all first post in a while. I recently saw my neurologist. He was great as usu...

•2 years ago

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