Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2017

Stress testing carers - (Rant warning)

I'm sure of it - How else could everything go so perfectly wrong so many times? Some dark department of Human Endurance is experimenting on us. We are just...

I'm sure of it - How else could everything go so perfectly wrong so many times? ...

•7 years ago

Confused

On reading all you lovely people's post it appears that either you or your loved ones are suffering from psp. I am very confused with Brian's diagnosis as...

On reading all you lovely people's post it appears that either you or your loved...

•7 years ago

Urine infection continues?

I see the urine collected in the bag is now dark in color for the past 1/1.5 days. Blame the heat here that has got dad dehydrated or another catheter issue...

I see the urine collected in the bag is now dark in color for the past 1/1.5 day...

•7 years ago

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What Causes PSP -- My theory.

I've been told by 3 different neurologists that no one knows the cause of PSP -- so I am putting this out there: My husband was on prednisone on and off for 20...

I've been told by 3 different neurologists that no one knows the cause of PSP --...

•7 years ago

No life as a carer.

Hello from the distant past. Some of you will remember me and a lot of you are new since I last posted. Life is very different, my husband F is home with CHC...

Hello from the distant past. Some of you will remember me and a lot of you are n...

•7 years ago

Home at last

Hi all Well 11 weeks on and archie is finally home .Took him into lounge to sit in his recliner and hey presto 2 mins and fast asleep. At least it gives me...

Hi all Well 11 weeks on and archie is finally home .Took him into lounge to sit...

•7 years ago

Calamity Georgepa

Disaster - I have broken my leg - I have never broken a single bone in my body in my life and I have to go and do it now ! V was being got up by her...

Disaster - I have broken my leg - I have never broken a single bone in my bo...

•7 years ago

Water infections

Hi all,my husband has recently had urine infection and seems to have become weaker since,this is the first one so.don't know if this happens ,also he has lost...

Hi all,my husband has recently had urine infection and seems to have become weak...

•7 years ago

Hospice

Well this hospice is like a 5 star hotel, so lovely, so quiet, just feel like laying down and going to sleep. Took a picture of some of the gardens, so...

Well this hospice is like a 5 star hotel, so lovely, so quiet, just feel like la...

Yvonneandgeorge

•7 years ago

PEG feeding

Hi everyone Richard finally had PEG fitted 2 months ago. He seems to be finally putting on weight. Should be, as well, because not only is he having peg feed...

Hi everyone Richard finally had PEG fitted 2 months ago. He seems to be finally ...

•7 years ago

Feeling scared

Just when things seem to be progressing smoothly,the unexpected happens.Don's PSP has for a year now been progressing steadily but slowly.Now,in the last 3...

Just when things seem to be progressing smoothly,the unexpected happens.Don's P...

•7 years ago

Ashamed

I'm ashamed for yelling this morning. Again, Charles tears his depends off (complete with pad inside that is doubled) and urinated all over the bed. I have...

I'm ashamed for yelling this morning. Again, Charles tears his depends off (com...

•7 years ago

Nursing homes

Good afternoon & what a sunny one it is! I have been looking at a couple of nursing homes (forward planning, hoping I won't need one for my Dad). I asked at...

Good afternoon & what a sunny one it is! I have been looking at a couple of nurs...

•7 years ago

FALLS: Something important carers should know

PSP can cause the sufferer to lose impulse control, which happened to my Dad. It led to him (when he was in that stage of falling) to try to stand when he'd...

PSP can cause the sufferer to lose impulse control, which happened to my Dad. It...

•7 years ago

CHC assement today, feeling shredded.

Well the assessment took place today, they were here for 3 hrs and I'm absolutely shattered now. Not sure how it went as you can't tell what's going on behind...

Well the assessment took place today, they were here for 3 hrs and I'm absolute...

•7 years ago

There is always something to worry about!

HI Folks, I am new to this Forum. My husband has been ill for 5 years now with peculiar symptoms nobody, including doctors, could understand and, as usual,...

HI Folks, I am new to this Forum. My husband has been ill for 5 years now with ...

•7 years ago

I need to share the news

Hi all Finally after 11 weeks in hospital and 7 weeks ready to come home archie is finally coming home Monday I just cannot believe it but after going to the...

Hi all Finally after 11 weeks in hospital and 7 weeks ready to come home archie...

•7 years ago

Hospice

Well yesterday a bed was available for George at the hospice, what a lovely place, he has his own room, his bedroom opens on to lovely gardens, it is so...

Well yesterday a bed was available for George at the hospice, what a lovely plac...

Yvonneandgeorge

•7 years ago

Need help lifting him up

Doctors believe my husband has PSP, but are careful to not make an absolute diagnosis. It all began with falling, incontinence, and a blank stare with a few...

Doctors believe my husband has PSP, but are careful to not make an absolute diag...

•7 years ago

My dad

Hello all My father has been diagnosed a year ago with psp although he had symptoms for 3 years previous... i am finding it very difficult at the moment...

Hello all My father has been diagnosed a year ago with psp although he had sympt...

•7 years ago

Paper products

I live in harrow, UK, and I know some helpful person put the name of a company here someplace as an alternative to tena for pants and pads etc. Unfortunately I...

I live in harrow, UK, and I know some helpful person put the name of a company h...

•7 years ago

I need to vent (thanks for listening)

I thought I was handling things pretty well but today I lost it. My husband was diagnosed with PSP last month although it was hardly a surprise. He is still...

I thought I was handling things pretty well but today I lost it. My husband was ...

•7 years ago

Emotional Rollercoaster

My dear husband of 40 years was diagnosed with PSP and some days I feel empathy, but some days I'm just so angry with him for not being able to understand my...

My dear husband of 40 years was diagnosed with PSP and some days I feel empathy,...

•7 years ago

Donation

I finally found this information I wanted to share. Richard Rainwater was a billionaire who was diagnosed with PSP in 2009 he passed away September27 2015. He...

I finally found this information I wanted to share. Richard Rainwater was a bill...

•7 years ago

I'm sorry Manchester

Just heard of the horrible terrorist explosion at a concert last night. I send my condolences....My heart and prayers go out for all those who were affected...

Just heard of the horrible terrorist explosion at a concert last night. I send ...

•7 years ago

Bloated tummy and frequent bowel movements

(pls refer to my previous post to understand my dad's condition) hello friends.. help. I scanned thru the forum to find if frequent bowel movement and/or...

(pls refer to my previous post to understand my dad's condition) hello friends.....

•7 years ago

Surviving Care giver Stage!!

How to prepare for the care giver role?

How to prepare for the care giver role?

•7 years ago

A Year with PSP

I am a 68 Year old female. Two children, a daughter48, and a son,44. My daughter lives in the state of Georgia,about 7 hrs. away. I live in The northshore of...

I am a 68 Year old female. Two children, a daughter48, and a son,44. My daughter...

•7 years ago

He is gone

To all my friends here, My sweetheart died Saturday morning. Eight days before, Just a few days after I wrote in some reply here that he was choosing to live,...

To all my friends here, My sweetheart died Saturday morning. Eight days before,...

•7 years ago

The vagaries of PSP

Back in March V was sent home from the hospice and my daughter and I were told to prepare ourselves as they thought V would only survive ten days to a...

Back in March V was sent home from the hospice and my daughter and I were to...

•7 years ago

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