Help with freezing episodes

[Babowen898]

Freezing episodes are worsening for my husband. Any advice? Do any meds help?

[Helen119]

Hi as far as I know there are no meds, but when my husbands legs freeze I stand behind him and instruct his legs myself, by saying “left” “right” sounds ridiculous but I have found it works sometimes.

Love and hugs xxx

Helen xxx

[aliciamq in reply to Helen119]

Not ridiculous!!!!!!😄

[Hidden]

Rocking from side to side foot to foot to getting things moving again.

[Kevin_1]

Hi

As someone else said, there are no meds. that I am aware of.

Often the person knows they want to move the leg or whatever, it just won't respond. We were told to tap the leg along with saying move it forward left or whatever. Apparently this sends a signal back up the limb which helps them move it. For sitting gentle pressure on the hip and ask them to bend forwards.

These were the best things we found.

Best wishes

Kevin

[daddyt in reply to Kevin_1]

I've had some success with that. I do the same thing when writing or typing... shaking my hand/wrist, learned from a PSP conference. Don't quite know the science behind it... something with signals to the brain, in any event it seems to work somewhat for me.

[raincitygirl]

Our neuro physio has G himself point to the foot that won't move - amazingly such a simple trick usually works. Same as Kevin said, it sends a signal a different route to the brain.

Good luck!

Anne

[Bobaroony]

My husband has the same problem. The worst time is navigating the stairs. I have to tap his legs then foot and tap the step. Usually works first time but sometimes I have to repeat it several times. Not comfortable situation. Will be glad when the shower room is finished downstairs so he will sleep down stairs to make it easier for both of us.

He often freezes when eating too, the spoon will stay in mid air for a while before he puts it into his mouth. Interesting how the functions change

Best wishes

Brenda

[LuisRodicioRodicio]

Hi Babowen898!

If possible, I recommend following these suggestions:

Gymnastic tables 6 days a week: passive in bed (Move all major muscles) and active (helped by 1 or 2 people): At least go up and down 50 steps (odd days), walk 200-300 meters (even days), speech therapy exercises and exercises mouth and ocular muscles. Then she needs to rest at least 30 '.

We have seen that laughter and good hydration (moisturizers for skin and liquids by mouth) help to mantain in good shape the face muscles.

Without any scientific basis, only observation of few nearby neurological diseases PSP like, I have the impression that a specific program of intense gymnastics can slow down the disease progression in a significant way and is more effective the earlier the disease is detected.

Hugs and good luck.

Luis

[2660Carol]

Hello My husband Ben has since passed in 2017 with PSP but when he went through this terrible disease he froze a lot his legs got stiff then he started marching with his legs I would grab his shirt and walk with him for 2 whole years then slowly he became bed bound then the last 10 months he was in a nursing home everything slowed down on him his bowels he had a cath his swallowing got worse his anxiety went full blown but the month he died Jan 2017 I was able to bring him home and he died with his family surrounding him at home Ben disease never had a chance to go into advance stages of PSP I hope this helps nothing is good about this disease Ben died at 68 years old he started at age 62 with the diagoise of Dementia/Parkinson then 3 months before he died it was PSP Love Carol

[Babowen898]

Thank you all for the suggestions. We are trying several, and he has found that pointing to his foot has brought some success! You all are amazing with your support.

He says that his eyes are freezing in the shut position. This mostly happens during the morning hours, but occasionally does happen later in the day. Is this another symptom of this crazy disease? He says it feels as if they are stuck together and he must use his fingers to pull on the top eyelid to get his eyes fully open.