Posts - PSP Association | HealthUnlocked

PSP Association

9,255 members • 11,351 posts

All posts for November 2016

He knows CBD!!!

Hi Everyone, I wanted to give an update to my mother in law after her admission into a home. Well, seems to be the best thing we ever did. This morining I...

Hi Everyone, I wanted to give an update to my mother in law after her admission ...

•7 years ago

PSP Article in the New York Times

October 21, 2016 | By Lucas Metherall Categories: News| Tags: carepartner, neurodegeneration, PSP, support Sylvia Rupani-Smith, long-time friend of CurePSP and...

October 21, 2016 | By Lucas Metherall Categories: News| Tags: carepartner, neuro...

•7 years ago

Finding it hard to accept my dads no longer here :(

It's been 2 weeks and we held the funeral Monday. I'm so down I know dad would not want to see me or my family feeling this way. I just can't help feeling hurt...

It's been 2 weeks and we held the funeral Monday. I'm so down I know dad would n...

•7 years ago

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Hello, my mum was diagnosed with bile duct and liver cancer stage 4, with a prognosis of 6months maybe a bit longer. We have had a wonderful summer but 17 days...

Hello, my mum was diagnosed with bile duct and liver cancer stage 4, with a prog...

•7 years ago

Up date on George

Well he has been discharged, last nurse came in the afternoon, last drip given, we have to give him antibiotics liquid for another week, his body must be...

Well he has been discharged, last nurse came in the afternoon, last drip given, ...

Yvonneandgeorge

•7 years ago

I am new here although I have been following you for a few months

I have been following your discussions for a while now. In fact, I tell my family I am addicted to this community. We live in the US so I faithfully read your...

I have been following your discussions for a while now. In fact, I tell my fami...

•7 years ago

FIRST NIGHT A NIGHTMARE

Hi All So we placed my mother in law into her new home, it really is a great place and I got to spend the entire day with her. We were lucky enough to see a...

Hi All So we placed my mother in law into her new home, it really is a great pla...

•7 years ago

A very involved checkup at UCSF about BMS study drug.

We just returned home (it only took 4 1/2 hours to get home) and we are exhausted. My husband does the driving and he has a terrible head cold. I had all...

We just returned home (it only took 4 1/2 hours to get home) and we are exhauste...

•7 years ago

So v sad

Hello again - Don went into the Care Home this afternoon after being in hospital for a month - he so needed to get out of there, the euphoria of that bit of...

Hello again - Don went into the Care Home this afternoon after being in hospital...

•7 years ago

The PSP Chronicles

The story continues... AFTER THE DIAGNOSIS After the diagnosis (beginning continued…) It seemed to take forever, but I’m finally at Dr. Hysen’s office for my...

The story continues... AFTER THE DIAGNOSIS After the diagnosis (beginning contin...

•7 years ago

Be the first to reply

A Short Video on PSP, CBD and MSA, useful for anyone at the start of the illness.

Symptoms and Diagnosis; PSP, CBD and MSA

Symptoms and Diagnosis; PSP, CBD and MSA

•7 years ago

Advice on a cold

Hi all, I need a little help. My David seems to have gone down with a cold today, and he is currently chuffing like a train into a hanky... I know that colds...

Hi all, I need a little help. My David seems to have gone down with a cold toda...

•7 years ago

Do you know about palliative care?

I have read some things about palliative care and think it could help my sister who has PSP. Have any of you used palliative care for your loved one with PSP?...

I have read some things about palliative care and think it could help my sister ...

•7 years ago

Strength

Hi all Today when my plumber had his head in the boiler hoping that it will last a bit longer he said out of the blue to me, I have known him years mind, Julie...

Hi all Today when my plumber had his head in the boiler hoping that it will last...

•7 years ago

The PSP Chronicles... THE DIAGNOSIS

https://wordpressco900.wordpress.com/2016/02/07/the-diagnosis-beginning-continued/. I'm curious to know how others reacted when they or the caregivers reacted...

https://wordpressco900.wordpress.com/2016/02/07/the-diagnosis-beginning-continue...

•7 years ago

GEORGEPA THE INTREPID SLAYS THE DRAGON .HURRAH!

Yes we won !!!!! Got the phone call this morning just as I was about to launch my full frontal attack (that might not be quite the right expression but...

Yes we won !!!!! Got the phone call this morning just as I was about to laun...

•7 years ago

Get by with a little help from your friends

So, since I last ranted I have some good news, my mother in law had come to the conslusion that her being in a home is the best thing for her, in her own words...

So, since I last ranted I have some good news, my mother in law had come to the ...

•7 years ago

Happy Turkey Day I guess we got a couple new friends around here in the last couple days.

Hope every one is safe and warm. Anyone having company over that you cant see. Well we are, lately Aunt Bev has a few friends here that are not there....

Hope every one is safe and warm. Anyone having company over that you cant see. ...

•7 years ago

New on here as at this evening ... desperate and frantic sums up my feelings regarding my husband's situation

My husband is in hospital since 4 weeks and I am desperate to get him discharged to a suitable care home appropriate to his needs. Up to my neck with social...

My husband is in hospital since 4 weeks and I am desperate to get him discharged...

•7 years ago

More than cross

I am cross, no more than cross , I am furious ,incandescent with rage , boiling mad spitting feathers - today I contacted the CCG with regard to our...

I am cross, no more than cross , I am furious ,incandescent with rage , boiling ...

•7 years ago

Really struggling - need help

Just wanted some advice from others - my mum is really struggling looking after my dad. She cares for him 24/7 and doesn't get any help. Has anyone tried or...

Just wanted some advice from others - my mum is really struggling looking after...

•7 years ago

ranting gone wild

With everyday that passes I hate CBD and everything associated with it....I know what lies ahead and I am struggling with so many emotions...just left my...

With everyday that passes I hate CBD and everything associated with it....I know...

•7 years ago

CARER'S ASSESSMENT

I was advised to ask for a carer's assessment as my Crossroad's 3 hr weekly cover is coming to an end in December, due to lack of funding. The S.S. told the...

I was advised to ask for a carer's assessment as my Crossroad's 3 hr weekly cove...

•7 years ago

New bed!

Hi everyone my partner has gone into nursing care for a couple of weeks and Im told they will be delivering a new hospital style bed to our flat and that I...

Hi everyone my partner has gone into nursing care for a couple of weeks and Im t...

•7 years ago

Happy Thanksgiving

The title says it. For all of us in the U.S., I'm wishing a lovely day tomorrow. I hope everyone finds at least a little light and love and peace. Happy...

The title says it. For all of us in the U.S., I'm wishing a lovely day tomorrow....

•7 years ago

George

Well an update on George, the hospital is rubbish, they leave people shouting asking for water, no one comes. Son came up had a word with the nurses...

Well an update on George, the hospital is rubbish, they leave people shouting as...

Yvonneandgeorge

•7 years ago

Just dropping in with good news.

Our CHC personal budget was finally approved today. We might not have got all we asked for. but apparently most of it. They have even allowed us to up the care...

Our CHC personal budget was finally approved today. We might not have got all we...

•7 years ago

decissions

Hi All We received the call that a bed was available for my MIL Monday, we grappled with how to tell her..I am not one for procrastination so I decided to let...

Hi All We received the call that a bed was available for my MIL Monday, we grapp...

•7 years ago

Itchy back

Dad has an itchy back. I can't see anything there, any ideas?

Dad has an itchy back. I can't see anything there, any ideas?

•7 years ago

Bathroom issues

Dad was having severe constipation, up to 7 days. Even with lachulose twice a day and prune juice. No results. Even slow results with using suppository....

Dad was having severe constipation, up to 7 days. Even with lachulose twice a d...

•7 years ago

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