Posts - PSP Association | HealthUnlocked

PSP Association

9,232 members • 11,334 posts

All posts for June 2018

Just wondering

Just wondering if anyone out there is dealing with both PSP and type 1 diabetes and how they are coping. regards to all

Just wondering if anyone out there is dealing with both PSP and type 1 diabetes ...

Hidden

•6 years ago

5 Replies

Chocolate

This might sound ridiculous but, when I visited Colin in the hospice today, he was very anxious, hot(even though it was chilly in there as he has the air con...

This might sound ridiculous but, when I visited Colin in the hospice today, he w...

Helen119

•6 years ago

6 Replies

Another episode for me.

Felt relatively good yesterday when I went out with Larry’s cousin Diane to do some errands. She’s been helping haul me around when she has time. The last stop...

Felt relatively good yesterday when I went out with Larry’s cousin Diane to do s...

Hidden

•6 years ago

20 Replies

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CurePSP at Mayo Clinic

Would love to know if anyone is here in Rochester at Mayo Clinic for the CurePSP Seminar tomorrow. xoDorie

Would love to know if anyone is here in Rochester at Mayo Clinic for the CurePSP...

DeDeDickson

•6 years ago

12 Replies

Psp and marijuana.

New and only asking for my wife.she has psp late stages.no talking or walking.could medical marijuana help her?

New and only asking for my wife.she has psp late stages.no talking or walking.co...

harleykeeton

•6 years ago

10 Replies

Wonderful weather here in the UK.

I managed to take this photo yesterday evening down by the riverside 3 miles from where I live............... it took a lot of effort but I am so glad I made...

I managed to take this photo yesterday evening down by the riverside 3 miles fro...

Bargiepat

•6 years ago

32 Replies

Ozone therapy

Nobody try ozone therapy for PSP? In Italy an onlus try this protocol and I speak with a people that have good benefit from this terapy? Anyone try this ?

Nobody try ozone therapy for PSP? In Italy an onlus try this protocol and I spea...

bantumi

•6 years ago

9 Replies

Ozono terapy

Nobody try ozono terapy for PSP? In Italy an onlus try this protocol and I speak with a people that have good benefit from this terapy? Anyone try this ?

Nobody try ozono terapy for PSP? In Italy an onlus try this protocol and I speak...

bantumi

•6 years ago

1 Reply

My father in law who is suffering from psp since last 10 years is having high fever these days and he has closed his eyes for the last 6 day

Closing of eyes in psp

Ashu736

•6 years ago

4 Replies

Aspirational pneumonia

Brian been diagnosed with aspirational pneumonia today not eating but is drinking plenty any advice?

Brian been diagnosed with aspirational pneumonia today not eating but is drinkin...

lindaD_

•6 years ago

5 Replies

The bicycle for excursions of Kevin and Luis

At the request of numerous chat partners ;-) , I present the bicycle we have designed for excursions (including the home garden). 0:-), 0:-) The photograph has...

At the request of numerous chat partners ;-) , I present the bicycle we have des...

LuisRodicioRodicio

•6 years ago

24 Replies

Just diagnosed

Hi, not sure that I want to do this but I'm finding it difficult to accept and I guess that why I have gone this far and writing this. I don't normally write...

Hi, not sure that I want to do this but I'm finding it difficult to accept and I...

Iwantoaccept

•6 years ago

10 Replies

80th Birthday Party

With great difficulty we managed to give Horace a wonderful birthday party with his very best friends, brought him out in a wheelchair taxi to his favourite...

With great difficulty we managed to give Horace a wonderful birthday party with ...

Chrissmitch

•6 years ago

7 Replies

Leeds meets

Had a wonderful afternoon good company and great weather ,going to do it again nearer xmas.

Had a wonderful afternoon good company and great weather ,going to do it again n...

allotmentartist

•6 years ago

11 Replies

Final Stages?

hi long time reader of this forum, which has been helpful. i realise PSP is kind of different for everyone thats had it, but was wondering about the final...

hi long time reader of this forum, which has been helpful. i realise PSP is kind...

jessie_walker

•6 years ago

15 Replies

Saying Goodbye.

My darling husband Stephen passed away last week. He was taken from me far, far too early and I don't know how I look to the future without him! He donated...

My darling husband Stephen passed away last week. He was taken from me far, far ...

jakedog14

•6 years ago

27 Replies

Good morning Luis :)

Good morning Luis Wishing you a better day today and a bike ride with Jamon by the river ;) I've got a realy nice bottle of white Rioja in the fridge... But...

Good morning Luis Wishing you a better day today and a bike ride with Jamon by t...

Kevin_1

•6 years ago

34 Replies

Leeds meet up

Well folks we have a beautiful day for the meet looking forward to seeing you all later ,hope you caneed all make it xx

Well folks we have a beautiful day for the meet looking forward to seeing you al...

allotmentartist

•6 years ago

6 Replies

Trip Down Memory Lane.

The Late Late Show with James Corden: Paul McCartney Carpool Karaoke https://m.youtube.com/watch?v=QjvzCTqkBDQ This is 23 minutes long. Took me back to my...

The Late Late Show with James Corden: Paul McCartney Carpool Karaoke https://m.y...

Hidden

•6 years ago

11 Replies

Physical therapy

Hi all we keep on pushing Charlie today I’m taking him for physical therapy I prey they can help. It’s getting harder for me to take care of him. We do live...

Hi all we keep on pushing Charlie today I’m taking him for physical therapy I pr...

Marg52

•6 years ago

9 Replies

Drama at every step - update

Firstly, thankyou to all you amazing people who took the time to respond to my previous posts. Your words of advice, supportand love mean the world to me....

Firstly, thankyou to all you amazing people who took the time to respond to my p...

Careenh

•6 years ago

15 Replies

Great party - But I got thrown out!

Lovely sunny day. Liz home and a rare smile. She really likes the ponds :) The water is a bit scummy still, but that will go as the ecosystem corrects it. Liz...

Lovely sunny day. Liz home and a rare smile. She really likes the ponds :) The w...

Kevin_1

•6 years ago

38 Replies

Charles has passed

Just letting you know the hero of my heart, Charles, passed away early this morning. I was beside him on the bed and I held his hand. His last moments were...

Just letting you know the hero of my heart, Charles, passed away early this morn...

Cuttercat

•6 years ago

102 Replies

End of life care plan - cbd

Mums nursing home have asked me to come in on a Tuesday to speak with the consultant and Mum. I have LPA as Mum can’t see speak or write or see properly...

Mums nursing home have asked me to come in on a Tuesday to speak with the consul...

17052011

•6 years ago

10 Replies

Hello everyone and a question or two :)

I haven't been posting for some time as I became ill myself; but am getting well. This is so hard for me to ask or explain, but I have often found a wealth of...

I haven't been posting for some time as I became ill myself; but am getting well...

adrianna60

•6 years ago

30 Replies

Coughing Loop and too much Morphine?

Last week Charles coughed for 14 hours straight! They told me to give morphine every hour on the hour. I did but now three days later he can't eat (teeth...

Last week Charles coughed for 14 hours straight! They told me to give morphine ...

Cuttercat

•6 years ago

10 Replies

Advice on booking carers through Local Council

Aside from the fact that they do all the necessary contract filing and negotiating and providing check and balance, are there really other benefits to using...

Aside from the fact that they do all the necessary contract filing and negotiati...

Megabrew88

•6 years ago

7 Replies

This is a first

Did my workout yesterday which helped with my craziness. Went up to bed at 7 last night and after getting Larry settled read until 7:30. Turned the light out...

Did my workout yesterday which helped with my craziness. Went up to bed at 7 las...

Hidden

•6 years ago

12 Replies

EEG effectiveness in showing PSP?

Have any of you had changes in EEG?? My husband still hasn't spoken, his vision is blurry, he has difficulty understanding me, and the doctor sent him for an...

Have any of you had changes in EEG?? My husband still hasn't spoken, his vision ...

-shelly26-

•6 years ago

16 Replies

Some help at last....

Hi all The last few months have been pretty hard going with Mum. I've felt no one has listened to me and just passed the buck onto another health...

Hi all The last few months have been pretty hard going with Mum. I've felt no ...

Spiralsparkle

•6 years ago

33 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2018

Just wondering

Chocolate

Another episode for me.

CurePSP at Mayo Clinic

Psp and marijuana.

Wonderful weather here in the UK.

Ozone therapy

Ozono terapy

My father in law who is suffering from psp since last 10 years is having high fever these days and he has closed his eyes for the last 6 day

Aspirational pneumonia

The bicycle for excursions of Kevin and Luis

Just diagnosed

80th Birthday Party

Leeds meets

Final Stages?

Saying Goodbye.

Good morning Luis :)

Leeds meet up

Trip Down Memory Lane.

Physical therapy

Drama at every step - update

Great party - But I got thrown out!

Charles has passed

End of life care plan - cbd

Hello everyone and a question or two :)

Coughing Loop and too much Morphine?

Advice on booking carers through Local Council

This is a first

EEG effectiveness in showing PSP?

Some help at last....

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive