Posts - PSP Association | HealthUnlocked

PSP Association

9,382 members • 11,414 posts

All posts for March 2015

MY HUSBAND JUST DIAGNOSED WITH PSP

No one until yesterday could figure out what he had. Got an apt wth the head of the movement disorder clinic yesterday at Shands in Gainesville and he finally...

No one until yesterday could figure out what he had. Got an apt wth the head of ...

•9 years ago

New here.

Hi I'm 26, iv just found out today my dad has psp.. I'm very worried about what is to come... 😞

Hi I'm 26, iv just found out today my dad has psp.. I'm very worried about what ...

•9 years ago

No balance

My Mum saw the consultant today who told her that when he first saw her in December last year, he felt she had Parkinson's. He went on to examine her eyes and...

My Mum saw the consultant today who told her that when he first saw her in Decem...

Julieanne25arobinson

•9 years ago

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Bed sore.

Hi all, as you all know Rose my sister is very frail now and on comfort feeding her swallow is bad. Nursing home have moved her to a down stairs room which is...

Hi all, as you all know Rose my sister is very frail now and on comfort feeding ...

•9 years ago

TOO MUCH INFO ON DIAGNOSIS?

HI I WAS DXD WITH PSP OVER 4 YR S AGO AND TOOK IT ALL ON BOAR D AND AM STILL HERE NOW USING A WHEELCHAIR INDOORs and Out to prevent my falling over os much...

HI I WAS DXD WITH PSP OVER 4 YR S AGO AND TOOK IT ALL ON BOAR D AND AM STILL HER...

•9 years ago

Spring in Maine

Happy Palm Sunday, everyone. I have so enjoyed the conversation about spring around the world that I thought I would share a picture I took this morning of...

Happy Palm Sunday, everyone. I have so enjoyed the conversation about spring ar...

•9 years ago

Dad with psp

Sorry haven't been on here for so long try to juggle work around me dad. When we went to see him the other night he was very agitated he was led in bed and his...

Sorry haven't been on here for so long try to juggle work around me dad. When we...

•9 years ago

Eyes

I went to see mum the other day and noticed that her eyes have changed, she has a startled look all the time. Is this a progression of this disease?

I went to see mum the other day and noticed that her eyes have changed, she has ...

Julieanne25arobinson

•9 years ago

Why is medical care so expensive?

Come on, why is medical care so expensive. Is this like the frog in the pot of boiling water? That they have raised the temperature so slowly that we never...

Come on, why is medical care so expensive. Is this like the frog in the pot of b...

•9 years ago

remember: before you go to hospital

hospital error is the third leading cause of death in USA, 98,000 people died last year from hospital error. Sort of makes you think. I think it is only my...

hospital error is the third leading cause of death in USA, 98,000 people died la...

•9 years ago

Doctors are only consultants!!

Sorry in advance for this long post. I just needed to talk to people who would understand: I have been alive long enough to have heard many doctors tell me...

Sorry in advance for this long post. I just needed to talk to people who would u...

•9 years ago

Toilet time

Oh the problems of toilet time. All the struggle to use the equipment to transfer him into the bathroom. Stand him up and drop the trousers to have a shower of...

Oh the problems of toilet time. All the struggle to use the equipment to transfe...

•9 years ago

Income based ESA and new pension changes

I am in the support group receiving income related ESA. My question is that in the new tax year I will have access to my pension fund in one lump sum....

I am in the support group receiving income related ESA. My question is that in t...

•9 years ago

Be the first to reply

Just to clear something up....

Dear All, Thank you again for your varied and supportive replies, all views appreciated! However, I would like to clear something up here......the friend I...

Dear All, Thank you again for your varied and supportive replies, all views app...

•9 years ago

Thank you

Thank you to all that responded to my post about male cathers. I feel very positive and can,t wait to try them on my dad. You all are great and have so much...

Thank you to all that responded to my post about male cathers. I feel very posit...

•9 years ago

Well meaning friend.....

Last night I had a conversation with a friend of mine who I have been friends with for about 30 years - she is considered one of our family and even lived with...

Last night I had a conversation with a friend of mine who I have been friends wi...

•9 years ago

Change of room.

Hi all, had a call from nursling home to say a room has become available on the lower floor and as rose needs more nursing in her bed they thought itbettershe...

Hi all, had a call from nursling home to say a room has become available on the ...

•9 years ago

Condom cathers

Hi everyone...... Has any one tried male codom cathers? I am thinking of trying them on my dad to help my mother out with the constant urination and so much...

Hi everyone...... Has any one tried male codom cathers? I am thinking of trying ...

•9 years ago

Amantadine syrup

Is anyone using amantadine syrup. If so how much are you using and how much are you suplied with. We have just changed from 2 x 100mg tablets a day to 10ml...

Is anyone using amantadine syrup. If so how much are you using and how much are...

•9 years ago

Holiday Insurance

Can anyone tell me of a decent provider of Holiday Insurance for PSP sufferers with the complication of Breast Cancer and recovering from Throat Cancer. I am...

Can anyone tell me of a decent provider of Holiday Insurance for PSP sufferers w...

•9 years ago

Mum

They doubled mums dose of madopar she is now struggling to open her eye lids is this part of psp or could it be the increase of the madopar, has anybody else...

They doubled mums dose of madopar she is now struggling to open her eye lids is ...

•9 years ago

A strange silence?

Can anyone advise, Rose has went so so quiet, and her eyes were strange! Hard to explain. She still grasps my hand but absolutely no other responds. She has...

Can anyone advise, Rose has went so so quiet, and her eyes were strange! Hard to...

•9 years ago

Progress

I wish I could understand this illness...how come my husband can march to the newsagent and back every day, about half a mile, walking quite fast , but falls...

I wish I could understand this illness...how come my husband can march to the ne...

•9 years ago

PSP; A CRAZY DISEASE.IF YOU UNDERSTAND IT YOUR OK. THE HARD PART IS WHEN YOUR CG IS YOUR ADULT DAUGHTER & SHE WON'T TRY TO UNDERSTAND .

I JUST HAD PHYSCE NURSE TODAY, AT MY REQUEST. SHE CAME JUST BEFORE MY DAUGHTER LEFT FOR AN APPOINTMENT. BEFORE SHE CAME INTO THE HOUSE THE NURSE, {I'LL...

I JUST HAD PHYSCE NURSE TODAY, AT MY REQUEST. SHE CAME JUST BEFORE MY DAUGHT...

•9 years ago

Carers dilemma responses

Thanks guys and gals for all your comprehensive responses , they really do help. There are so many variables aren,t there . It depends how far the down the...

Thanks guys and gals for all your comprehensive responses , they really do help...

•9 years ago

JUST A COMMENT................

I JUST WANT TO SAY THAT IS THE BEST WAY TO LEARN ABOUT ALL OF US & HOW WE COPE. I GAVE MY NEW CG SOME OF THE INFORMATION I'VE PRINTED ABOUT MY PSP SO S...

I JUST WANT TO SAY THAT IS THE BEST WAY TO LEARN ABOUT ALL OF US & HOW WE COP...

•9 years ago

Be the first to reply

Rose, in strange mood today!

Visited Rose today and she was in the residents lounge watching the T.V. intently, she did not say one single word, usually she makes a sound and loks at me...

Visited Rose today and she was in the residents lounge watching the T.V. intentl...

•9 years ago

Struggling

We have been fighting the NHS for over 7 years, mum has rheumatoid arthritis and we been telling her rheumatologist that something else is wrong. Mum was...

We have been fighting the NHS for over 7 years, mum has rheumatoid arthritis and...

•9 years ago

Carers dilemma

Every day my wife seems to able to do a little bit less - and asks me to do more for her . I understand the decreased mobility and fear of falling etc but...

Every day my wife seems to able to do a little bit less - and asks me to do m...

•9 years ago

Been busy

Well I have mastered making macarons I thought I would show you all they are delicious. On the bad side George fell over and hit he's head, so he has got a...

Well I have mastered making macarons I thought I would show you all they are del...

Yvonneandgeorge

•9 years ago

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