Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for June 2023

Advanced stage?

Hi my dad was diagnosed last year. Like many was first diagnosed with Parkinson's disease. Every few months he seems to deteriorate. I won't say he's displayed...

Hi my dad was diagnosed last year. Like many was first diagnosed with Parkinson'...

whiskey50

•1 year ago

10 Replies

Home Care

Do you think it is possible to keep my husband home the entire time of the illness or do I need to plan on long-term care in a facility. I'm in the US and...

Do you think it is possible to keep my husband home the entire time of the illne...

Granny29335

•1 year ago

14 Replies

eyesight

hello all. My mum is saying that her eyesight is really terrible now. Is it worth speaking to an optician?

hello all. My mum is saying that her eyesight is really terrible now. Is it wort...

Girvangal

•1 year ago

5 Replies

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Alternative treatment

Hi All, My mum has PSP (previously diagnosed Parkinson's). The last six weeks have seen a very rapid determination in health. She is medicated but I am writing...

Hi All, My mum has PSP (previously diagnosed Parkinson's). The last six weeks ha...

EnglishPointer

•1 year ago

8 Replies

CBD & Parkinsonism

Hi my husband and got his official diagnosis last year but I say he had symptoms for nearly 2 years before. Life was at breaking point when we first went to...

Hi my husband and got his official diagnosis last year but I say he had symptom...

45purple

•2 years ago

23 Replies

Respite Care Tips Please

Hi, my mum has CBD and has two carers four times per day currently. She cannot walk unaided, use the toilet unaided (difficult even with help) and although she...

Hi, my mum has CBD and has two carers four times per day currently. She cannot w...

Daffodil41

•2 years ago

8 Replies

deterioration of mum

I come to this group as it offers far more help and advice than many of the medical staff dealing with mum and their limited understanding of PSP Mum was...

I come to this group as it offers far more help and advice than many of the medi...

Walking18

•2 years ago

18 Replies

Hello, maybe there is someone who wants to share their experience with psp?

Hello, maybe there is someone who wants to share their experience with psp? What medicines did you take? What medications improved the patient's condition?...

Hello, maybe there is someone who wants to share their experience with psp? What...

GIJAN

•2 years ago

6 Replies

eating while reclined

The nursing home have just phoned me today to say that although the OT has told them to feed mum when she is reclined for her comfort, they won’t do that...

The nursing home have just phoned me today to say that although the OT has told ...

messier

•2 years ago

10 Replies

multiple system atrophy

i Have been diagnosed with MSA and although marrired my husband gives little suppor i also cannot speak and it takes so long to anything.what to do?

i Have been diagnosed with MSA and although marrired my husband gives little s...

Aprilfool20

•2 years ago

4 Replies

CHC Funding

My 71 year old husband had his diagnosis for PSP confirmed in April 2023 after 4 years of care based on diagnosis of Parkinsons.Our new hospice nurse is...

My 71 year old husband had his diagnosis for PSP confirmed in April 2023 after 4...

Hidden

•2 years ago

8 Replies

I'm looking for help

Hello, More than a year ago I was diagnosed with ps p. before that I was treated for Parkinson's disease. and now there are two opinions, one that Parkinson's...

Hello, More than a year ago I was diagnosed with ps p. before that I was treated...

GIJAN

•2 years ago

13 Replies

Obsessions

My husband has PSP and has been in respite care for four weeks now. In the next few days he will be moving into a care home permanently as I just can’t manage...

My husband has PSP and has been in respite care for four weeks now. In the next...

Redjune1

•2 years ago

4 Replies

positive thoughts

can I ask if anyone ever has a positive day where they feel better than usual I seem to hear such terrible stories and wanted to hear any positive news from...

can I ask if anyone ever has a positive day where they feel better than usual I ...

ChocolateFaceTeddy

•2 years ago

12 Replies

speech and language team

16 days ago I posted about our first SALT visit and said I felt very positive that the practitioner understood PSP. My husband newly diagnosed with PSP in...

16 days ago I posted about our first SALT visit and said I felt very positive th...

Sun-flowerwearer

•2 years ago

15 Replies

Thank you

It's been wonderful getting honest and helpful answers to all of my post. My sweet lady gained her wings Saturday June 10th. She fought to the very end. So I...

It's been wonderful getting honest and helpful answers to all of my post. My swe...

Stephanielayell82

•2 years ago

16 Replies

Dizziness

My mothers main complaint is dizziness it is responsible for falls usually between her bed and the bathroom. Is there any way to reduce the feeling of...

My mothers main complaint is dizziness it is responsible for falls usually betwe...

harleybsa

•2 years ago

7 Replies

Drooling solution for someone with a feeding tube

There are several posts about drooling solutions... but i don't think i've seen a solution for excessive drooling for someone who has a feeding tube and cannot...

There are several posts about drooling solutions... but i don't think i've seen ...

LARWLSN

•2 years ago

7 Replies

online forum

hi I’m trying to access the Scottish online forum listed for tonight but can’t find link to it

hi I’m trying to access the Scottish online forum listed for tonight but can’t f...

buzzbay

•2 years ago

1 Reply

Care - Tips please

Hello everyone I am hoping I get some useful advice. We started to have carers come for my dad and it has been about a month. They come 3 times a day, 20...

Hello everyone I am hoping I get some useful advice. We started to have carers...

Khalissi

•2 years ago

13 Replies

The PSP & CBD Ice Cream Challenge 2023 Holdout

The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us have found ourselves in front of the refrigerator/freezer after we've gone to...

The PSP & CBD Ice Cream Challenge 2023 Holdout Okay admit it. How many of us ha...

daddyt

•2 years ago

3 Replies

Stooped Over

My husband has psp and gradually he is becoming more and more stooped over. He looks directly at the floor now, so along with the problems with his eyes, he...

My husband has psp and gradually he is becoming more and more stooped over. He l...

Redjune1

•2 years ago

23 Replies

Smoothie recipes or soup

Hello, my mom condition has worsened to the point where solid food is no longer a option. She can barely open her mouth now and can only do small chewing...

Hello, my mom condition has worsened to the point where solid food is no longer ...

A2theD

•2 years ago

3 Replies

neck pain

hello, have you found a way to ease neck pain? My husband was diagnosed with PSP a few years ago, though like many, symptoms were evident a few years before...

hello, have you found a way to ease neck pain? My husband was diagnosed with PSP...

Rose1sunflower

•2 years ago

12 Replies

CBD and everyday tasks

Hi, My mum hasn’t received a formal diagnosis but the neurologist thinks it’s CBD. She struggled to put her bra on and became obsessed over it, practising...

Hi, My mum hasn’t received a formal diagnosis but the neurologist thinks it’s C...

Malteaser12

•2 years ago

3 Replies

What does "the end" look like?

Hi all Sorry to ask such a morbid question but someone in my family who I am extremely close to has PSP and they have had it for a long time (i can't...

Hi all Sorry to ask such a morbid question but someone in my family who I am e...

ilovedogs7

•2 years ago

21 Replies

Jaw locking while trying to feed. Suggestions?

Hi there,I'm new to this group. My mom was diagnosed with PSP back in 2020. She has progressively been having issues with her swallowing. Initially she was...

Hi there,I'm new to this group. My mom was diagnosed with PSP back in 2020. She ...

Mkfernz

•2 years ago

2 Replies

please release yourself

Please release yourself from the imposible job of carrying for your mom at home. It is dangerous for her now and will be dangerous for you before too long....

Please release yourself from the imposible job of carrying for your mom at hom...

susantigner

•2 years ago

Be the first to reply

Speech and Language Team visit today. A positive experience.

This visit was arranged when I rang up about my husband having difficulty swallowing. We are based in Devon. I received a very helpful phone call...

This visit was arranged when I rang up about my husband having difficulty swallo...

Sun-flowerwearer

•2 years ago

5 Replies

thanks to all of you

Thank you for all the helpful advice! I am working on getting help 2x a week and my kids have just moved closer to help out which is a blessing. I’m so glad I...

Thank you for all the helpful advice! I am working on getting help 2x a week and...

Stellabella121

•2 years ago

1 Reply

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2023

Advanced stage?

Home Care

eyesight

Alternative treatment

CBD & Parkinsonism

Respite Care Tips Please

deterioration of mum

Hello, maybe there is someone who wants to share their experience with psp?

eating while reclined

multiple system atrophy

CHC Funding

I'm looking for help

Obsessions

positive thoughts

speech and language team

Thank you

Dizziness

Drooling solution for someone with a feeding tube

online forum

Care - Tips please

The PSP & CBD Ice Cream Challenge 2023 Holdout

Stooped Over

Smoothie recipes or soup

neck pain

CBD and everyday tasks

What does "the end" look like?

Jaw locking while trying to feed. Suggestions?

please release yourself

Speech and Language Team visit today. A positive experience.

thanks to all of you

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive