Posts - PSP Association | HealthUnlocked

PSP Association

9,728 members•11,604 posts

All posts for August 2011

I am In Canada and am wondering if there is anyone who has PSP living in B.C.

LyndaEllis

•13 years ago

4 Replies

A photo of a good day

I wanted to share it as good days are too few and far between and should be treasured. This is my mum and her lovely smile, with my daughter. I'm sad that she...

I wanted to share it as good days are too few and far between and should be trea...

CateT

•13 years ago

14 Replies

I hugged Dad for the first time in 3 years today.

This morning, my Dad mumbled "I do love you, your Mum & George" I felt like I'd been hit in the stomach. I hadn't heard him say he loved us for a long time....

This morning, my Dad mumbled "I do love you, your Mum & George" I felt like I'd ...

HannahDaykin

•13 years ago

9 Replies

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Dad wants to die.

Somebody came round to pray for Dad and asked if there was anything he wanted her to pray for. He mumbled he was ready and wanted God's will to be done....

Somebody came round to pray for Dad and asked if there was anything he wanted he...

HannahDaykin

•13 years ago

8 Replies

Getting worse.

Dad has changed so much in a week. It looks like PSP has moved along another step. He doesn't seem himself at all and it's not just as if he's got a cold....

Dad has changed so much in a week. It looks like PSP has moved along another...

HannahDaykin

•13 years ago

11 Replies

stomach trouble

hi every body, I wrote a blog a little while back about weight loss as i had lost a stone and a half in just five weeks and since then i have been...

hi every body, I wrote a blog a little while back about weight loss as i ...

ray-wiffen-1958

•13 years ago

19 Replies

Restlessness

Apart from communication difficulties, my mum's restlessness is the biggest problem we have. I say we, but it is mainly for my dad who cares for her most of...

Apart from communication difficulties, my mum's restlessness is the biggest prob...

CateT

•13 years ago

11 Replies

A new week ahead...............

Talk about wishing your life away. This time last week Frank was getting ready to go to hospital for biopsy of tumour in bladder and to have pubic catheter...

Talk about wishing your life away. This time last week Frank was getting ready ...

kay1

•13 years ago

5 Replies

I have been meaning to blog for a while!

As the title says, I have been meaning to blog for a while but everything just seems to be on top of us at the moment. I had a ridiculous amount of uni work to...

As the title says, I have been meaning to blog for a while but everything just s...

HannahDaykin

•13 years ago

5 Replies

COMMUNICATION IS SUCH A PROBLEM

My communicaiton skills r getting worse- Speech gettign more slurred and much too fast i can think ok inside mj head then it all comes out much too quickly...

My communicaiton skills r getting worse- Speech gettign more slurred and much ...

jillannf6

•13 years ago

9 Replies

HOW USEFUL IS AN IPAD AS A MEANS TO COMMUNICATING?

I HAVE A NETBOOK WHICH I NOW FIND DIFFICULT IN TAKIGN ANYWHERE - TOO HEAVY) WOULD AN IPAD BE A BETTER MEANS WITH HTE APP OF PROLOQUO FOR COMMUNITCATING?

I HAVE A NETBOOK WHICH I NOW FIND DIFFICULT IN TAKIGN ANYWHERE - TOO HEAVY) ...

jillannf6

•13 years ago

7 Replies

Is anyone involved in the drug trial in Brighton under Dr D Chan?Peter 2.

Peter2

•13 years ago

13 Replies

Just joining in and needing advice

Hi everyone. I've been reading blogs for so long but feeling a bit down today I thought I'd join in. My husband Tony was diagnosed with CBD in 2008. We retired...

Hi everyone. I've been reading blogs for so long but feeling a bit down today I ...

Lorri-2

•13 years ago

10 Replies

Another fall.

After a successful day of daycare Eddie had another fall at home. Another nasty gash on his head. This time we had to get the MECS service to come and lift him...

After a successful day of daycare Eddie had another fall at home. Another nasty ...

SheilaN

•13 years ago

13 Replies

A few hours of respite are just around the corner

Yesterday Tony and I were invited to The Marie Curie Hospice near where we live in Solihull to check out the Day Respite Unit. What a wonderful place. There...

Yesterday Tony and I were invited to The Marie Curie Hospice near where we live ...

SuzieQ

•13 years ago

8 Replies

My father is affected by PSP and joining this association I'd like to get in touch with people that share my condition. I live near Siena IT

Rosati

•13 years ago

4 Replies

Support group or someone to speak to?

Is anybody interested in or knows of a support group? I am 36 and have moved back home to help care for my mum who was diagnosed with psp 2.5 years ago. I am...

Is anybody interested in or knows of a support group? I am 36 and have moved b...

Victoriab

•13 years ago

6 Replies

Then and Now

I am changed. I am not the person I was a little over two and a half years ago. Then - I had heard of PSP but didn't know a huge amount about it. Like...

I am changed. I am not the person I was a little over two and a half years ago. ...

Kathy

•13 years ago

22 Replies

Always expect the unexpected with PSP

I was on holiday for 10 days but afrer 2 days developed cystitis / bladder infectiion adn had to come home early missed seeing my 89 year old dad / good...

I was on holiday for 10 days but afrer 2 days developed cystitis / bladder infec...

jillannf6

•13 years ago

6 Replies

HealthUnlocked and Facebook

You might have already noticed on the homepage that you can now Facebook 'like' our HealthUnlocked page. This does not make any individual comments or...

You might have already noticed on the homepage that you can now Facebook 'like' ...

PSPA_DebbieB

Partner•13 years ago

5 Replies

Changing character

Has anyone else noticed that a person suffering with PSP their character changes? I am experiencing that with looking after my sister - she comes out with the...

Has anyone else noticed that a person suffering with PSP their character changes...

maeve

•13 years ago

8 Replies

adidas Women's 5K Challenge

Hello! I am planning to run the adidas 5K this year for PSP and wondered if there would be others also sporting their green T shirts and running around the...

Hello! I am planning to run the adidas 5K this year for PSP and wondered if ther...

VerW

•13 years ago

6 Replies

Taking a Break

Dad has been the main carer for Mum for the best part of three years now and it is really taking its toll on him. There was a brief period of respite last year...

Dad has been the main carer for Mum for the best part of three years now and it ...

hmfsli

•13 years ago

5 Replies

Respite care

I have been advised by family, friends and health care visitors to organise some respite care before I really need it so that when I do it's tried and tested....

I have been advised by family, friends and health care visitors to organise some...

SheilaN

•13 years ago

9 Replies

Dads Birthday...!

Its my dad Tommy's 59th Birthday this coming saturday so we are throwing him a party as next year he may not be capable of having one I am buying him a new...

Its my dad Tommy's 59th Birthday this coming saturday so we are throwing him a p...

Amy_Brazier

•13 years ago

14 Replies

A day to cherish xx

Well the summer holidays are here and my Two young children are off School , because i have had more bad than good days with Mum my children were finding...

Well the summer holidays are here and my Two young children are off School , bec...

Back

•13 years ago

10 Replies

Settling in

It is four weeks now since Frank arrived at care home, he left hospital, as far as i was concerned, never to leave his bed again. The care home have since...

It is four weeks now since Frank arrived at care home, he left hospital, as far ...

kay1

•13 years ago

8 Replies

Daycare.

My husband had his first day at the daycare centre yesterday. Everyone, staff and 'clients' (I hate the term service users) were so welcoming. Some have...

My husband had his first day at the daycare centre yesterday. Everyone, staff an...

SheilaN

•13 years ago

16 Replies

'We all fight together' Song Released in aid of PSP

Dear all. I have written a song in memory of my dad 'Pops' who passed away in June and in support of everyone living with and supporting people with PSP. The...

Dear all. I have written a song in memory of my dad 'Pops' who passed away in J...

LesleyB

•13 years ago

15 Replies

How can I contact the PSP On-line Shop to order some PSP Information cards?

I have been diagnosed with PSP. I read Suzie Q's posting about the PSP Information Cards available through the PSP On-line Shop. I would really like to have...

I have been diagnosed with PSP. I read Suzie Q's posting about the PSP Informa...

barnett910

•13 years ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2011

I am In Canada and am wondering if there is anyone who has PSP living in B.C.

A photo of a good day

I hugged Dad for the first time in 3 years today.

Dad wants to die.

Getting worse.

stomach trouble

Restlessness

A new week ahead...............

I have been meaning to blog for a while!

COMMUNICATION IS SUCH A PROBLEM

HOW USEFUL IS AN IPAD AS A MEANS TO COMMUNICATING?

Is anyone involved in the drug trial in Brighton under Dr D Chan?Peter 2.

Just joining in and needing advice

Another fall.

A few hours of respite are just around the corner

My father is affected by PSP and joining this association I'd like to get in touch with people that share my condition. I live near Siena IT

Support group or someone to speak to?

Then and Now

Always expect the unexpected with PSP

HealthUnlocked and Facebook

Changing character

adidas Women's 5K Challenge

Taking a Break

Respite care

Dads Birthday...!

A day to cherish xx

Settling in

Daycare.

'We all fight together' Song Released in aid of PSP

How can I contact the PSP On-line Shop to order some PSP Information cards?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive